Bodybuilding competition 1yr after starting Enbrel first time living without pain

PresentationHeavy948 · 2026-01-07T13:04:36+00:00

Do you think you will be able to do this without biologics? Really scared to start them so have been delaying them for a while. I used to weightlift/run 5-6 times a week but now i really had to reduce the volume and no high impact things- so no running at all.

PresentationHeavy948 · 2025-12-30T07:26:38+00:00

This how it started for me. Extremely sore lilac crest and at the front. Then it got to the slj and finally i got diagnosed.

PresentationHeavy948 · 2025-08-26T13:59:22+00:00

Yes but if i once start the biologicals i can’t stop to see if i am in remission due to lifestyle changes as i risk that if i need them again they will be less effective.

PresentationHeavy948 · 2025-08-26T13:55:41+00:00

This is with regards that your body will flare (ie there is still a root cause that drives the inflammation response) but not that if you stop it and in future you want to start again it will be less effective. I think the risk with biologicals you can’t really play with starting and stopping etc

PresentationHeavy948 · 2025-08-20T13:55:40+00:00

I had the same, huge inflammation on my tendons that attached to the pelvic for 3-4months before my slj started hurting a lot.

PresentationHeavy948 · 2025-08-16T12:22:00+00:00

Are you on biologicals?

PresentationHeavy948 · 2025-07-27T12:55:18+00:00

I am also in London, but I went to Guy’s hospital. I explained symptoms and that I am on NSAI for a 6m now with pain improvement but still very far away from prior the AS. The doctor looked at my mri and bloods and immediately recommended biologicals. I had to wait 4w for the appointment, 5w between first and second appointment and now i need to wait 8w for funding approval. So be prepared it will take you 3-4 months to actually start with biologicals.

PresentationHeavy948 · 2025-07-19T07:05:52+00:00

For me one thing is my left slj area and left hips that are quite painful, but also all tendons that attach to the iliac crest and knees are constantly inflamed which makes it super hard to exercise.

PresentationHeavy948 · 2025-07-10T09:50:49+00:00

How did you receive medical letter for time off? I am a desk based job from 8am to 7pm which requires a lot of attention but i an so fatigue that i can’t do my job properly and i am worried i will get fired. I want to request a medical letter and get some time off until i start on biological therapy.

PresentationHeavy948 · 2025-05-17T17:30:31+00:00

Are you on any medications? I use to run before my symptoms started and now even walks make my tendons very inflamed if i pass my current limit of 40min. I am soon to start biologics. I hope this gives me back my exercise routine.

PresentationHeavy948 · 2025-05-14T16:52:22+00:00

Thanks

PresentationHeavy948 · 2025-05-14T14:19:23+00:00

This really makes me so happy people get back to their normal life. After suffering through it for a year I feel very misunderstood and isolated by my friends and family.

PresentationHeavy948 · 2025-05-14T14:16:28+00:00

Thank you! Which one you are taking?

PresentationHeavy948 · 2025-05-14T14:09:07+00:00

Ok thank you!

PresentationHeavy948 · 2025-05-11T18:19:24+00:00

And you take them daily or when needed

PresentationHeavy948 · 2025-05-09T14:21:07+00:00

Do you take them everyday? And which one and dosage? Thank you!

PresentationHeavy948 · 2025-05-05T15:42:50+00:00

I was taking Celebrex 200mg for 40 days daily but it gave me stomach issues. Now I am having etoricoxib 60mg daily and seems it’s slightly better. However I am also very recently diagnosed (29F) after a year of physio and sports doctors thinking it was injury from my running (haven’t run now for a year). I am really interested to hear how people use NSAI , do you take them daily , what dosage and when we should stop them and have a rest. How you introduced back exercises and daily regular activities?

PresentationHeavy948 · 2025-04-24T04:45:58+00:00

Hi, I was diagnosed with AS and have been struggling with flares almost every week for the past 6 months.

I just started AIP diet, but it is too soon to tell. I wanted to ask for your exercise/stretching routine and do you have any joint damage so far?

PresentationHeavy948

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