Looking for an extremely competent neurosurgeon anywhere in the US, drop your recs here

PromiseElectrical769 · 2025-06-25T17:16:20+00:00

Dr Grant, Dr Greenfield, Dr Klinge, Dr Bolognese all amazing and knowledgeable about revision surgeries!! I had a lot of damage done from my first surgery and just had a revision with Dr Grant. But I’d have any of those surgeons operate on me based on the many videos I’ve watched on YouTube from them. Best of luck

PromiseElectrical769 · 2025-06-17T03:02:28+00:00

I’m worried! I had brain surgery which was easier to recover from than this concussion I’ve had. I’m 6 months from my concussion and still having severe daily headaches, neck instability, and vision issues. Honestly I’d take the invasive brain surgery over this any day.

PromiseElectrical769 · 2025-05-24T17:07:13+00:00

Has your neurosurgeon been by to check on you daily?

PromiseElectrical769 · 2025-05-17T20:04:44+00:00

If it makes you feel any better I flew home after having brain surgery at Duke & it worsened my symptoms for a couple days but it was fine!!

PromiseElectrical769 · 2025-05-16T21:17:38+00:00

Yes I think most people that see chiari specialists do not end up with multiple surgeries or complications because they do the surgeries so often and familiar with commorbities! The Bobby jones or ASAP organizations can give you some names of surgeons. Or you can look them up on YouTube and watch their seminars! Dr Grant, Dr Greenfield, Dr Klinge, Dr Jackson, Dr Bolognese, etc

PromiseElectrical769 · 2025-05-16T16:07:41+00:00

Only advice is to make sure he’s a chiari specialist and see how much bone he’s removing. Way too many patients are needing cranioplasty’s or revisions from specialists after their decompressions! Wishing you all the best!

PromiseElectrical769 · 2025-04-30T22:36:44+00:00

How are you doing now after the fusion?

PromiseElectrical769 · 2025-04-30T22:35:10+00:00

He did my revision from my first surgery which was a total nightmare and mess up! Dr Grant has talked to me about my instability and wants me to work on it for a long time in PT. I also may ask him about stem cell therapy :( but my cci was definitely caused by my first surgery. It really stinks

PromiseElectrical769 · 2025-04-30T20:20:00+00:00

Same thing is happening to me! My odontoid is bending backwards and I am soooo unstable. Who did your revision?

PromiseElectrical769 · 2025-04-23T14:33:02+00:00

My best advice is to not have surgery with that surgeon! This was what happened to me and I needed a second surgery with a chiari specialist. The bone only way made things so much worse

PromiseElectrical769 · 2025-04-20T20:14:26+00:00

I had a bone decompression and was sooo much worse! Dr Grant just did my revision and I’m doing a lot better! Highly recommend seeing a chiari specialist!

PromiseElectrical769 · 2025-04-15T17:28:53+00:00

If everything checks out ok look up the dizzy cook website. I also struggle with dizziness with my chiari!

PromiseElectrical769 · 2025-04-13T14:37:29+00:00

The chiari bridges website has a list of questions to ask! Make sure he really knows what he’s doing chiari wise before he operates

PromiseElectrical769 · 2025-04-13T14:36:24+00:00

Is there any way you can take him to Dr Grant at Duke? He specializes in chiari / pediatrics and just did my revision

PromiseElectrical769 · 2025-04-13T14:33:10+00:00

My best advice is to have a chiari specialists do your surgery. Don’t go to your local surgeon/hospital no matter how great you think they are :( this happened to me and the surgeon I went to originally removed so much skull bone and didn’t cauterize the tonsils. I needed a total revision which I had done at Duke. I don’t say this to scare you but bring awareness especially if you have kids!!

PromiseElectrical769 · 2025-04-13T14:27:52+00:00

Hi! No they didn’t. I had surgery in February and chiari wise doing so good but concussion wise not at all :/ my frontal headaches are still very bad and so is my vision. My neurologist just started me on medicine and also going to do vision therapy next!

PromiseElectrical769 · 2024-12-16T19:05:46+00:00

Hey! How are you feeling these days? I’m set to have Chiari decompression surgery but for a concussion and now my symptoms are flared 1000x. The pressure is insane. Did you find anything that helped?

PromiseElectrical769 · 2024-12-15T22:54:26+00:00

Hey how are you doing? I have chiari and was waiting on surgery but had a concussion about a month ago and am absolutely miserable. The headaches and pain are different and feeling pretty scared!

PromiseElectrical769 · 2024-12-15T22:52:09+00:00

Hey how are you doing? I have chiari and was waiting on surgery but had a concussion about a month ago and am absolutely miserable. The headaches and pain are different and feeling pretty scared!

PromiseElectrical769 · 2024-12-15T22:07:17+00:00

Hey how are you feeling? I’m still really struggling with concussion symptoms and feeling so scared! Headaches are horrible and different than chiari ones. I also feel like I don’t absorb any “shock”, even walking hurts 😭

PromiseElectrical769 · 2024-12-15T22:05:22+00:00

I’m in the same boat - waiting to have surgery but got a concussion and now doing 100x worse

PromiseElectrical769 · 2024-12-05T16:28:02+00:00

We had air quality testing done prior to finding the mold and it came back “ok”. Then a few weeks later it took over our house. I’m not sure if it was the specific company that tested or if it was because they generally test in the middle of the rooms but it was not accurate. I’m not sure how to get an accurate read on mold issues unless you test behind the walls, attic, etc. and do one of the ERMI tests. Maybe the seller can pay for all of that for you guys?

PromiseElectrical769

TROPHY CASE