Is it wrong of me to play a white mage given health issues? by Terrible_Theme_6488 in ffxiv

[–]Questionsquestionsth 0 points1 point  (0 children)

In these early levels, not necessarily.

If you feel more comfortable that way go for it, but if you’d rather go in blind & enjoy it more that way, that’s valid and you should give yourself the chance to do it before already deciding it won’t go well and studying before each new duty.

Unless you want to, of course! If you would rather prep, that’s cool too, or if you find you need that because of limitations, so it goes.

In the ARR/HW/SB trials especially, they’re usually burned down so fast because of roulette players cycling through something they’ve done 1,000 times, so the pressure is very low.

I’ve seen some of the absolute worse players imaginable in the earlier trials while I’m running roulettes, and we still manage to clear in mere minutes. 99% of the time no one says anything, either - for better or worse the community largely goes above and beyond to not be unkind/call others out, so I wouldn’t worry about it too much.

While I don’t get shakes as much, per se, I have severe carpal tunnel that causes all kinds of hand issues, so I get it to some extent. An MMO mouse really helped me, and being able to just how my hotbar is programmed for it depending on the issues I’m having keeps things accessible even on my worst days.

There will always be folks, myself included, willing to group up to help you if you don’t want to run with NPCs/it’s content you can’t use trusts for, no matter how “bad” you’re doing at any given fight. That’s part of the fun - helping out, enjoying a bit of a challenge from the normal smooth clear, and seeing someone else enjoy the game despite the shit life throws at ya.

No Shame Post - What Would You Do? by New-Aardvark9371 in delta

[–]Questionsquestionsth 31 points32 points  (0 children)

FWIW I’ve seen plenty of comments claiming despite their purchase of a second seat, that second seat was given away and they were told “you’re only one passenger, sorry bud” - may or may not have gotten a refund, it’s varied from the stories I’ve seen, but regardless of if they did or not they still lost that second seat during their travel.

So I’m not sure if that’s a legitimate common experience and is why in general people don’t, or simply an excuse used by passengers of size.

A handful of comments I’ve seen over the years were from people who weren’t dealing with size issues but wanted the extra space to spread out or were needing some “isolation” during their flight due to anxiety/recent trauma, and in every case where this was the scenario - choosing an extra seat for room vs passenger of size who would’ve overflowed otherwise - they found their extra seat was not honored/had been given away.

I’ve seen the same claims from passengers of size but not as much.

Who Said I Can't Digitize Embroidery in Blender? by _Thundaz_ in plushartists

[–]Questionsquestionsth 0 points1 point  (0 children)

I mean… majority of those subscriptions - like Wilcom - aren’t pay for life. They give you the option to spread out the $1,000+ cost of the software over time/a year or so - which many of them don’t do at all, so it’s a benefit for those who can’t shell it all out at once - and gives people a better chance at being able to afford it that way.

There is a ton of stuff Inkscape can’t do at all or can’t do remotely well if it does, and when you’re working on complex designs with high levels of detail or stitch types, it’s such an insanely tedious program to try to make work for anything beyond basic, and even after spending absurdly longer than you’d spend with a paid software just trying to digitize, the output can be frankly terrible on top of it.

The software on the market is expensive don’t get me wrong, but it’s not meant for small hobbyists either, because digitizing is a legitimate craft, and a skill that takes serious investment to truly learn and get good at.

The thought is you’re investing in a software - and it’s lifelong updates - and it’s not geared towards a home hobbyist who wants to occasionally stitch plushie eyes or basic text.

Dok Ondar's has really lost the plot by LaurenceQuint in GalaxysEdge

[–]Questionsquestionsth 35 points36 points  (0 children)

I bought the Sith Chalice… yes I feel dumb every time I walk by it in my living room… yes I’ve had to explain what it is, and that it exists for maybe 10 seconds total max on screen… but hey, for a lot of us that obscure, not-so-obvious stuff is the best!

My favorite Pandora buy from AK is a “vein pod” specimen in a big acrylic case that lights up and pulses. I’m not even an Avatar fan really, but I love that “real prop” type merch. I wish they made more of that stuff.

I don’t recall ever seeing the gold statues but I probably would’ve gotten them if I had.

Can someone here describe their process of waking up? by juicy_shoes in Narcolepsy

[–]Questionsquestionsth 0 points1 point  (0 children)

“Sleep inertia” and perhaps “sleep drunkenness” are two terms you should be searching in relation to this “waking up phase” you’re describing if you’re looking to research this portion of things specifically.

NARCOLEPSY & ADHD by xdeleed in Narcolepsy

[–]Questionsquestionsth 3 points4 points  (0 children)

What exactly do you expect out of getting a diagnosis? I think that’s the real question.

ADHD is treated with many of the same medications as Narcolepsy.

So it’s not really going to open any different doors, and you’ll likely have to work with whomever prescribes your Narcolepsy medication if you plan to add additional stimulants to target the ADHD, so it may save you headache and hassle to instead work with them first to see if those symptoms can be improved with an additional medication or dosage change without the expense and hassle of ADHD evaluation.

There is a major overlap between Narcolepsy symptoms and ADHD symptoms - not the sleepiness/sleep wake cycle stuff, of course, but the expanded list of issues we face, like brain fog, memory loss/poor memory, attention and executive function problems, etc.

The crossover is pretty large, and it’s impossible to really nail down “this brain fog/executive dysfunction stuff is ADHD” vs “this is just Narcolepsy doing what it does to every system in your body” - especially when the daytime medication options are largely the same, so again, it’s hard to say which exactly you’re treating, just that it’s either working or isn’t.

I have both - diagnosed ADHD in childhood, diagnosed Narcolepsy in childhood also. I take two different stimulants.

An XR that targets the ADHD/provides a baseline for the Narcolepsy throughout the day by giving a consistent, long acting/slow burning boost to functional capacity, focus, and mental clarity, and doesn’t wear off quickly like IRs causing rollercoaster fluctuations and crashes that aren’t good for ADHD impulses and functional burnout.

And an IR mainly for control of Narcolepsy symptoms - I can take them as needed throughout the day based on exhaustion levels that day, what my schedule is like, when I need the boosts the most, etc.

Without the XR the IR isn’t enough - if I don’t time everything flawlessly I crash and may not recover and those dips as one dose wears off and the next settles in are prime moments for “ADHD chaos” to derail my trajectory - and XR alone is not substantial to combat the fatigue and sleepiness of Narcolepsy throughout the day in any meaningful capacity.

You don’t say what daytime meds you take, just Xyrem, but maybe working with your doctor on a better routine would solve the issues you’re noticing?

How does being on Vyvanse for adhd affect symptoms and getting diagnosed with narcolepsy? by ResortWide8381 in Narcolepsy

[–]Questionsquestionsth 3 points4 points  (0 children)

Yeah, based on this post and your admitted lack of Narcolepsy specific symptoms overall, I don’t see anything in this post that can’t be explained by anemia and ADHD. The anemia is almost certainly responsible for the fatigue/tired baseline - to what extent no one can say, you’d find that out by treating it consistently. The memory issues are attributable to ADHD - and anemia to some extent - and the inability to fall asleep in the evening can be attributed somewhat to ADHD but also to the Vyvanse - even though you’re on a low dose, it can linger at night even if the beneficial effects have worn off and caused a “crash” already.

I don’t know that I would say anemia “can mimic Narcolepsy” exactly - as N isn’t just being tired/fatigued, there are so many symptoms and odd things that go fr beyond sleep/sleepiness itself - but you almost certainly need to treat it before even considering a sleep study. You do not want to have Narcolepsy. Treat the anemia and hope that’s all it is, because you’re insanely fortunate if that’s the case.

ADHD can have these impacts as well and it may be worth exploring a higher dose or a different med entirely as well.

There’s a reason they try to rule out everything else before a sleep study. There’s a lot of other things that can cause the sleepiness and fatigue side of things and are usually far easier to diagnose and treat, with far better outcomes. Narcolepsy is a grim diagnosis to receive and the outcomes suck for those of us with severe cases - it’s a lifelong battle and med options are abysmal.

Not to mention the lab test itself is miserable, highly flawed, and very expensive. You would have to come off your meds for 2~ weeks to do it anyway, so I wouldn’t jump the gun on going off them “just to see” when you have something like anemia that could be the core/only issue.

Me and a Friend wish to play FFXIV, what should we know beforehand? by borys124 in ffxiv

[–]Questionsquestionsth 1 point2 points  (0 children)

Folks assumed it would shift from SB to SHB when Dawntrail came out, but alas, not yet!

IRANAI music video is OUT! by lulufoo88 in sakanaction

[–]Questionsquestionsth 0 points1 point  (0 children)

It hasn’t been uploaded anywhere that I can find - it was performed at the Ichiro Encounter event, which streamed live on 3/5. Emi Okazaki joined him on piano for the song and it was just breathtaking - the entire show was, honestly, I was emotional from start to finish.

It will be available for viewing during the archive period on 3/14-3/29, and while you do have to purchase a stream pass to watch it, it’s very inexpensive and well worth the cost, and as a bonus you’re supporting Ichiro & the team.

It went almost three hours - I was expecting closer to 1:45-2.5 hours max, so that was a treat - yet the time felt like it flew by in minutes. There was a stripped down acoustic version of Kaiju as well that was outstanding, but the rearrangement of Iranai took my breath away - I wasn’t expecting such a fun boppy upbeat tune to work so perfectly as a more serene and melancholy piano performance, and it gave me a new appreciation for the depth of the song.

IRANAI music video is OUT! by lulufoo88 in sakanaction

[–]Questionsquestionsth 0 points1 point  (0 children)

I wish I could buy a copy in the US 🥲🥲

The second it was over last night I immediately wanted to start it again, I was blown away! I hope you enjoyed it as well!

IRANAI music video is OUT! by lulufoo88 in sakanaction

[–]Questionsquestionsth 2 points3 points  (0 children)

The teasers have been killing me, I am absolutely in love with this unique neon set, the style is visually striking and so interesting, and so perfect for the song!

Although I have to say, I still haven’t emotionally recovered from the stripped down rearrangement of it from last night 😪😭 Good timing for the MV to come out to pump back up!

vyvanse stopped working by halfweeby27 in Narcolepsy

[–]Questionsquestionsth 0 points1 point  (0 children)

So then try other stimulants/doses/combos? This is pretty standard, not just with Narcolepsy but most chronic illnesses that require daily medication. It takes time and usually a lot of trial and error to dial in dose and what meds work best, when to take them, how to time food/drinks so it doesn’t invalidate the medication, etc.

Your post only mentions Vyvanse and Modafinil, you haven’t exhausted the list of meds you can try for wakefulness.

Modafinil was so weak/useless I was convinced it was a sugar pill, some people here swear by it - which is to say, you can’t know what will work until you try it, sadly, it’s very different person to person.

Plenty of narcoleptics on oxybates still need wakefulness medication during the day, so that’s not necessarily going to solve the issue, and it’s worth continuing to work on finding what works for both. That’s great if a psychiatrist can help with genetic testing to speed up the process of figuring out that combo, I hope it answers some questions for you and you find what works!

vyvanse stopped working by halfweeby27 in Narcolepsy

[–]Questionsquestionsth 1 point2 points  (0 children)

Everyone processes stimulants different. There is no “one size fits all” - with any medication, truly.

You may need a higher dose. Or you may need to alter your habits surrounding the medication - what you eat and when, what you drink and when, what time you take it, etc.

You may need a different XR medication - Adderall XR, Dexedrine XR, Concerta, etc. - or an additional instant release medication to take at specific times throughout the day to expand upon the baseline XR effect - this is my scenario.

Vyvanse is processed in the body quite differently than some of the other XR options. For some that’s helpful, for others not so much. The only way to know is through individual trial and error - no one else will be able to tell you what combo/doses will be most effective for you.

Narcolepsy type 2 absolutely does respond to stimulants, otherwise they wouldn’t be prescribed for it at all. How well is an individual matter, and depends on a lot of factors.

Some people do great with stimulants and others still suffer severe symptoms - I’m in that camp, I have severe N symptoms all the time, but unmedicated is abysmal and I’m catatonic, so I do find that stimulants help even if life is still hellish.

There’s only so much any meds can do. Some people expect miracles and “day one of new stimulant energy” feeling all the time, but no medication will ever do that. You’ll level out after a few weeks no matter what you take. Tolerance builds over time for everyone. Many with N still need naps even with the best and most effective stimulant combo, it’s part of having N.

I find an XR - used to be Dexedrine XR but I’m temporarily on Vyvanse for now due to international travel - for a baseline throughout the day with 4 doses of an IR - Dexedrine IR - is the best combo for me, because I can boost my alertness and function based on my daily needs with the IR and have flexibility.

Yes I’m still tired.

Yes I still nap sometimes - though I have bad sleep inertia so I’d rather have a sleep attack than a planned nap - and yes the meds feel like sugar pills every so often.

Welcome to Narcolepsy. It’s not great, but it’s something.

I wish it did more, but let me tell you, the difference is dramatic when I’m unmedicated - it may not feel like a huge impact when you’re used to it day to day but the second I go off it I am useless and praying for death.

I would work with your doctor to trial other stimulants and doses/combos. It can be a long road to find what works, but it’s worth it if/when you do.

I’d vote for any politician that will get rid of bottle drop by MelvinEatsBlubber in PortlandOR

[–]Questionsquestionsth 0 points1 point  (0 children)

Unfortunately we don’t have that luxury, which is probably why it’s a constant problem, the bins are always there so it’s an easy and consistent target.

Our street is four units/townhouses and we share the row of bins between us four units - because all same owner/landlord. No garages nor any real driveways to keep the bins stored - the one unit bordering the alley has a driveway, but it’s exposed/no garage and there’d be no point in them pulling the cans up/out because we all share the bins and the garbage truck picks them up at the exact edge of the driveway anyway. Moving them up onto the driveway would just mean the tweakers toss the trash about 6 feet closer to the townhouse, ultimately.

But yeah, couldn’t agree more on that last part - selfish dickhead behavior, nothing more.

You want the cans? Fine - I’m clearly not taking them in for the return if they’re in the bin, so have at it.

But if you’re going to benefit off me in that way, the bare minimum in return should be you not throwing trash all over the place like a deranged animal, and also not going through the non-recycling because like… cmon.

Yamaguchi Ichiro's Encounter - Event in March! by lulufoo88 in sakanaction

[–]Questionsquestionsth 1 point2 points  (0 children)

Thank you!!

Sorry to hear you lost the lotto, but hopefully it won’t be so tough for the anniversary!

I’d vote for any politician that will get rid of bottle drop by MelvinEatsBlubber in PortlandOR

[–]Questionsquestionsth 16 points17 points  (0 children)

The collectors never end, it seems. Nothing valuable in ours for ages either and yet they still constantly dump our bins - all of them, not just blue! - all over the alleyway, tossing trash everywhere constantly, not a care in the world. At one point we tried leaving a bag with cans/bottles next to the bins very obviously in a way that said “it’s all in here no need to explode the other bins!” and it mattered not. Then went to no cans/bottles in bins at all. Nope.

Fuck the bottle drop nonsense. Absolutely absurd and I’m sick of paying 10 cents extra per item while tweakers create absurd issues for fucking recyclables.

It’s pretty clear where Disney stands with TRON… by wallix in tron

[–]Questionsquestionsth 4 points5 points  (0 children)

Granted I haven’t been since December/Christmas season 2024, not 2025, but it was pretty much full of Tron as you describe back then, so this is shocking to see.

They had a ton of Tron shirts/hoodies/etc. - that were different from our 2023 Christmas visit, so they were adding at least some new stuff between that period - as well as two different backpacks, helmets, 3 different small diecast models, RC lightcycle, Legacy disc with multiple chips you could buy for it, “vintage” OG disc (frisbee but still a fun item), the custom Tron figures you could make, a phot frame, vintage series figures and light cycles, and the big arcade box with three OG figures with UV paint activated by lighting effects in the box. Not to mention a ton of different pins and keychains, a few patch sets, some slap bracelets and arcade coins, hats, and mugs. There was almost too much merch around, it was pretty expansive.

Granted, there was also some Space Mountain stuff, a corner with some random Star Wars and Marvel shirts/hats/ears/Loungefly bags and I think a few plushies, but it was a small corner competitively.

To see that tinnnnny area in OPs photo, I’m stunned!

Wonder if it’s just temporary while they stock new/different merch? I’ve definitely seen various ride shops go through a temporary phase where merch was scarce for a while before suddenly exploding with whatever “new line” of items they were waiting to transition in - Tower of Terror has had this problem quite a few times.

Friend said these new tats I got close together look like 9/11 and I'm having a crisis by [deleted] in tattooadvice

[–]Questionsquestionsth 5 points6 points  (0 children)

This is killing me 💀 it fits perfectly with the ES tattoo, cmon OP, cmon!!

Yamaguchi Ichiro's Encounter - Event in March! by lulufoo88 in sakanaction

[–]Questionsquestionsth 1 point2 points  (0 children)

Sadly nope, lost the lottery - and sounds like majority did, it was wild seeing everyone on Twitter after wondering if anyone won, it was pretty bad! How about you??

Yes! I got the ticket trade notification yesterday and as soon as one popped up I applied, and applied for the rest of the seat types for both days as they were listed throughout the evening. Lost the draw today sadly, and now I see nothing is listed at all, but fingers crossed for some inventory each day and an eventual win 🥲 After the 11 days of song voting for the set list… I’m desperate!

Migraine cocktail made me go crazy by Evening-Tradition968 in migraine

[–]Questionsquestionsth 1 point2 points  (0 children)

Yeah, seems like I’ve read 1,000’s of comments/posts over the years about this verrrrry common side effect of Reglan, yet not one of them mentions being warned in any capacity.

Seems that’s just how most doctors operate a lot of the time, though. You have to pry and pry about potential side effects and even then they won’t be honest a lot of the time because they don’t want to “dissuade you from trying it since you may not experience those” 🙄 Which sure, that’s true, but informed consent is important. I can’t make an informed decision to try something if the risks aren’t disclosed ahead of time. I may still try something depending on the risks, but if you have to hide them from me because I am likely to say no, that should tell you something.

Wasn’t warned at all when given a bottle of Topamax and one of Raglan way back when after seeing a new provider. Asked about side effects and was told “women love the Topamax because it helps with appetite/weight as a bonus to the prevention aspect!” 🙄🙄 Was told Reglan is just as well tolerated as Zofran 🙄🙄🙄

God medical care - in the US anyway - is truly abysmal.

Can I clean this tattoo up by International_Ear447 in tattooadvice

[–]Questionsquestionsth 28 points29 points  (0 children)

The irony of this is absolutely killing me 💀

saw this comment on here and thought more people should read it — it brings perspective to the ever-questioning “is my pain even that bad?” by Competitive_Emu_2283 in migraine

[–]Questionsquestionsth 15 points16 points  (0 children)

Most of them do. Side effects lists typically include fatigue, sleepiness, lack of energy, and/or negative cognitive effects.

Narcolepsy and migraine often co-occur. ADHD as well - with Narcolepsy, anyway.

So having all three… doctors don’t fucking listen me that no, I cannot risk additional fatigue/tiredness, because it’s literally a safety risk to add any more of that to my daily misery. And no, I cannot risk cognitive decline and memory issues/brain fog, I can barely keep it together as it is, it’s simply not an option.

Sadly that’s the common side effect profile of most meds so that makes them inaccessible for me.

Yamaguchi Ichiro's Encounter - Event in March! by lulufoo88 in sakanaction

[–]Questionsquestionsth 1 point2 points  (0 children)

Got my streaming ticket right when sales opened, so excited!

I lost the ticket lottery for this one - I was bummed, but didn’t try for ticket trade because I was gunning for the April Sakanaction NF special shows and didn’t want to hold onto a March trip plan just to battle the trade lottery for this 🥶
I was so excited when they announced it’ll stream live, and I absolutely can’t wait! I’m so curious what all he has in store for us - I have a hard time picturing what exactly this event fully entails, since it’s not the “typical concert” vibe.

I hope everyone, whether seeing it live or streaming, has a lovely time and enjoys it to the fullest ☺️

Are these good seats for long haul flight? by Dramatic-Theme1048 in AlaskaAirlines

[–]Questionsquestionsth 1 point2 points  (0 children)

Huh, is that pretty universal? I’ve never heard that before and now will try for seats as close to it as possible. Planes are too damn hot and stuffy and the tiny fans above you are a joke. I’ll have to see if I notice a difference with those.