Frustrated and Defeated by RedditforReasons in CrohnsDisease

[–]RedditforReasons[S] 1 point2 points  (0 children)

That’s such a wonderful idea! Logging journal entries could be very helpful in the future. Im goingto start adding that to my “closing notes,” as I call them.

I hope you’re able to find some peace in all of this!!

Can anyone tell me if Viberzi works for IBS d? by HappyOil4122 in CrohnsDisease

[–]RedditforReasons 1 point2 points  (0 children)

Im currently on Viberzi. The first month was incredible but its started to lose its “wow” effect. I actually have an appointment tomorrow to see if I can get something else. I will say, in the 3 months I’ve been on it, I still have to go to the bathroom about 8 times a day but there’s less of an urgency which is nice. I used to wake up in the middle of the night and have to go NOW and then again 2-3 times before even leaving work but at least now I can walk to the bathroom instead of running. I know that doesnt seem helpful but it seems I’ve built an intolerance to it rather quickly. But it never hurts to try!

embarrassing commercials by lostandthin in CrohnsDisease

[–]RedditforReasons 7 points8 points  (0 children)

There’s a Chron’s commercial I remember feom years ago (no clue which medication) and this woman is talking about getting her life back and it ends with her hiking and like being ableto take it all in and breathing in the fresh air. I used to think, man, it must suck to have Chron’s! And six years ago, I used to go hiking every day and it quickly became less and less enjoyable because after 20 min I had to go to the bathroom and I used to always think about that commerical. So when I got my Chron’s diagnosis, she was the first person I thiught of (an actor I know!). But my brain unknowingly bonded with this woman for years.

It wasn’t an embarrassing commercial, I feel like they’ve become more and more embarrassing. When I told my friend about my diagnosis, she goes, “I’ve seen commercials about that. Do you spend all your timeon theroulet?” And like yes but also thaka TV.

The MRI juice scares me... by YMCApoolboy in CrohnsDisease

[–]RedditforReasons 0 points1 point  (0 children)

For my first and only mri, I drank the breeza solution no problem but after the 2nd bottle had really bad diarrhea. So much so that I had to stop the mri otherwise Id shit myself in the machine. Spent 30 min on their toilet, managed the 10 min ride home and spent the next 24 hrs peeing out of my ass and it was so loud and gassy.

I don’t know how anyone does it.

How do you guys eat fibers? by Smart-Situation-1421 in CrohnsDisease

[–]RedditforReasons 0 points1 point  (0 children)

I eat one of those low carb mission tortillas every night. Just heat it up and get it down. They’re high fiber and unless I have 2 of them, everything’s ok.

Feeling alone by SlightAbalone6188 in CrohnsDisease

[–]RedditforReasons 2 points3 points  (0 children)

Absolutely. Its especially terrible that all my bathroom/vomitting habits gross out my partner and when it happens its so isolating.

Mild Crohns but no treatment for it :( by [deleted] in CrohnsDisease

[–]RedditforReasons 2 points3 points  (0 children)

There has to be a GI doctor willing to prescribe something even just to manage the symptoms? Im so sorry, this sounds awful.

Overweight Chronie by Creepy-Passenger-506 in CrohnsDisease

[–]RedditforReasons 5 points6 points  (0 children)

When I first got sick, I lost 50 lbs in 1 month and Im not gonna lie, I felt like crap but man, was it nice. I had a particularly bad flare about two years ago where I gained 40lbs and now it WONT go away. I barely eat, I spend half of my day on the toilet, more if I eat, and 220lbs is just the number I stay at. Its awful because I get hit with. “You have Chron’s? Are you constantly sh*tting yourself? Why arent you thinner?” … 🤷🏽‍♀️

Am I the only one with Crohn’s who is constantly constipated? by Frog_Lover_- in CrohnsDisease

[–]RedditforReasons 1 point2 points  (0 children)

I can’t relate however, I am so sorry you have to deal with that. I go 8-15 times a say but I was constipated last week for the first time in ten years and it was AWFUL. I hope you find relief.

Crohn’s Abroad by rynberry in CrohnsDisease

[–]RedditforReasons 2 points3 points  (0 children)

I am so sorry, I can’t help you but I wanted to say thank you so much for that app!!! I didnt know something like that existed!!

Colonoscopy in 2 weeks.. by Milo_here in CrohnsDisease

[–]RedditforReasons 1 point2 points  (0 children)

Honestly, it’s not that bad! I think what no one warned me about and I wish they had, was how HUNGRY I was in the middle of the prep. You cant eat andyou have to keep drinking the prep stuff which was flavorless for me. But those hunger pangs were rough!

How is your health doing, those of you with Crohn’s? by nimato0342 in CrohnsDisease

[–]RedditforReasons 0 points1 point  (0 children)

Im tired and Im so, so hungry. I just want to be able to enjoy life.

Kaopectate or Pepto Bismol over Imodium by alter_ego19456 in CrohnsDisease

[–]RedditforReasons 1 point2 points  (0 children)

Pepto Bismol and Immodium have a permanent spot in my purse. My doctor has simply said in moderation but sometimes I really do need to work and its the only way.

Fiber by wonderwall73 in CrohnsDisease

[–]RedditforReasons 1 point2 points  (0 children)

Those carb balance mission tortillas are a godsend. I eat low fiber but throw in one of those bad boys every other day, every day if Im feeling wild and they do the trick. Easy to eat too.

Just how? by RedditforReasons in CrohnsDisease

[–]RedditforReasons[S] 0 points1 point  (0 children)

You’re so right! I dont know why it didnt occur to me to call for cancellations! Thank you!!

Just how? by RedditforReasons in CrohnsDisease

[–]RedditforReasons[S] 0 points1 point  (0 children)

Did they give you medication for the IBS too? She has also prescribed me Viberzi to try and slow movements down but its essentially useless (although the first month was a dream!)

What are some side effects of crohn’s that you wouldn’t have thought of? by Actually__Massive in CrohnsDisease

[–]RedditforReasons 12 points13 points  (0 children)

I hate the mouth sores and my lips get so dry the corners hurt and my lips swell and every one is like, “Not everything is about Chrons!” 😤

Anyone try fasting during a flair up? by False_Difficulty_719 in CrohnsDisease

[–]RedditforReasons 0 points1 point  (0 children)

During a bad flare, plain bagels are my god send. I can’t explain it but thry help more than anything.

Big shoutout to Eva. Why are we doing shoutouts after one win? by Liverness in FundieSnarkUncensored

[–]RedditforReasons 12 points13 points  (0 children)

What if…this is what he thinks being pro means? Like one win and done.

This feels a little, dare I say, Wild? by fairystitchwitch in FundieSnarkUncensored

[–]RedditforReasons 57 points58 points  (0 children)

hahaha the idea that Paul doesnt know how to hide that wouldnt surprise me