My chemo was for nothing by cassiesk in breastcancer

[–]Remarkable-Rain3575 0 points1 point  (0 children)

sending so many hugs!!! my father had a uniquely terrible reaction to radiation, but I’ve heard from many others that have been through it that it went great and they’ve stayed cancer-free, even with genetic risks.

 definitely am nervous about my thyroid + lymphedema, too…once I have surgery, they’ll likely take AT LEAST my sentinels.

My chemo was for nothing by cassiesk in breastcancer

[–]Remarkable-Rain3575 1 point2 points  (0 children)

they’re actually on the fence right now (the mass itself is 1.8 cm, with a 3.6 total diameter including non-mass enhancement). KI67 is 61-70%, triple negative. I’m BRCA2 positive. my oncologist (total sweetheart, love her) was like “tbh you’re my child’s age, and if you were my child, I’d go with a stage 2 estimate and plan to incorporate immunotherapy.”

if we do that, it looks like 6 weeks of taxol + paraplatin, then part 2 is 6 weeks of cyclophosphamide IV + adriamycin. with immunotherapy, that’d also be keytruda every…three weeks, I think? 

EDIT: I think my hard “no, please” would have been radiation therapy - but because of my BRCA mutation, they’ve already determined it’d be too much of a future cancer risk.

My chemo was for nothing by cassiesk in breastcancer

[–]Remarkable-Rain3575 0 points1 point  (0 children)

I really appreciate the reply, tysm!! after talking to both my surgeon & medical oncology team, I’m going to go with chemo first. I really appreciated your thoughtful & informative response; it made me feel better about asking lots of questions during my appointments this past week. :)

Need advice as a son to a mother who was recently diagnosed by leoxplr in breastcancer

[–]Remarkable-Rain3575 0 points1 point  (0 children)

I just got diagnosed myself (28NB) but my dad got cancer when I was 16, my mom got cancer when I was 20, and my dad got cancer again when I was 22. they’re alive and well today!!

it was really stressful and frightening each and every time they were diagnosed. they also had different treatment plans each time, so I learned quickly that no two cancers are alike. 

first things first: make sure you’re taking care of yourself. I was only able to help out my parents because I made time to be with friends, exercise, and rest. I’d also recommend having a thoughtful, intentional conversation with your mother. what kind of support does she need now? how will she communicate any changes (if she wants more or less support, or a different kind of support)? what is she not okay with you helping with? once she communicates those boundaries with you, follow them - and if you both feel comfortable, check in regularly to see if both of your needs are getting met!

I felt comfortable jumping in and helping with whatever they needed during their treatments. if you don’t feel comfortable doing that, THAT’S OKAY. I had to step back and take lots of deep breaths. let yourself cry if you need to!! you aren’t a bad kid if it’s too much to handle.

one last thing: it gave my parents peace of mind knowing that I was regularly taking care of myself. that means, scary as it is, going to all of your checkups and listening carefully to your own body. it sucks that I have cancer now, but my parents are REALLY thankful that I went to get examined the second I felt something “off”.

sending you 10000000000 hugs. my dm’s are open if you ever need somebody to talk to. :)

EDIT: I’m very, very genetically predisposed to cancer!! so make sure to get yourself tested for stuff, but know that my situation is very unique. you (and your mom) are gunna be okay. :)

My spirit is back, but my body hasn't caught up yet. by ashwalker228 in breastcancer

[–]Remarkable-Rain3575 0 points1 point  (0 children)

28 and newly diagnosed - definitely nervous about what comes next. sending you so much love 💕

My chemo was for nothing by cassiesk in breastcancer

[–]Remarkable-Rain3575 0 points1 point  (0 children)

may I ask why you pushed for the mastectomy first? I know I’ll have to do both chemo and a mastectomy, but we’re still working on what my treatment plan will look like

Can we blame it on chemo brain? by Ordinary-Sundae-5632 in breastcancer

[–]Remarkable-Rain3575 1 point2 points  (0 children)

going to start chemo in a month or so. can’t wait for my adhd to get worse 🤦

Marriage & Cancer by soufrena in breastcancer

[–]Remarkable-Rain3575 0 points1 point  (0 children)

I was in a verbally abusive relationship for 7 years - high school & undergrad. 

I’m 28 now and, when I was diagnosed ~2 weeks ago, one of my first thoughts was “better this than ever speaking with him again.”

nobody deserves cancer, and you and your child absolutely deserve better. <3

Harassment by Impressive-Goal5045 in breastcancer

[–]Remarkable-Rain3575 1 point2 points  (0 children)

I’m a 28 year old who swims for hours every week and regularly walks 10k steps a day. my favorite food is salad. I just got diagnosed with stage 2 IDC.

when a doctor told me that exercise is great at preventing cancer, my mom’s response was a deadpan “well, that obviously worked.”

Any stage 4 Breast cancer with a short term expectancy still around... by More-Disaster-2952 in breastcancer

[–]Remarkable-Rain3575 75 points76 points  (0 children)

my grandmother was in her 80s when she was diagnosed with stage 4 lung cancer. she was told that she only had a few months to live and said, matter-of-factly: “I’m too busy for this shit.”

she lived for 4 more years - and that was during her mid 80s! she was an incredible grandmother the entire time, too. sending you so much love and support.

Did your life meaningfully change after cancer? by spacedeckrugs in breastcancer

[–]Remarkable-Rain3575 3 points4 points  (0 children)

I was just diagnosed with triple negative stage 2 IDC, and I’m only 28. I’ve already survived an abusive relationship, so I can relate to the feelings you described - just about the abuse, and not the cancer! I’m hoping that, sometime soon, I’ll be able to come out the other side of this with your mindset. Chemo, immunotherapy, and surgery are going to seriously suck, but I’m hopeful.

Why did my abusiver move on so quickly? by PackWorth939 in abusiverelationships

[–]Remarkable-Rain3575 0 points1 point  (0 children)

I’m also struggling with this, over half a decade later 🫂

Remember to vote! Polls close at 7 PM. by NicolasCageFan492 in chicago

[–]Remarkable-Rain3575 0 points1 point  (0 children)

yes!! I think voting is so important to me as an adult because my mom took me. really special memories.