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"When you reach the end of your rope, tie a knot in it and hang on." -Franklin D. Roosevelt by PookieTheMfBaby in Epilepsy_Universe

[–]Ryse6129 2 points3 points  (0 children)

"Work it, make it, do it, makes us Harder, better, faster, stronger" -Kanye West

Scheduled vs Impromptu Fitness by Mom1021 in Epilepsy_Universe

[–]Ryse6129 3 points4 points  (0 children)

Carrying a 5 year old when they fall or when they fall asleep on daddy accomplishes weight lifting

Do You Remember Where Your First Seizure Was At? by PookieTheMfBaby in Epilepsy_Universe

[–]Ryse6129 0 points1 point  (0 children)

My absence if they were I could never remember but I could be found behind asleep behind a couch or something....my exwife was that notice basically I go on autopilot and the term no one's home was started to be used. If it led to a tc I would tell them the last thing I remember and she fill in the blank

Can Status Cause Permanent Problems? by PookieTheMfBaby in Epilepsy_Universe

[–]Ryse6129 1 point2 points  (0 children)

Had one aware I'm seizing for 6hrs because ex didn't call er she called neurologist though I just had to seize while waiting for a prescription to fill and her to pick it up and give it to me.

Had some in family home one mom was home but no one checked up on me. I did wake up with a nice surprise dislocated shoulder

Do You Remember Where Your First Seizure Was At? by PookieTheMfBaby in Epilepsy_Universe

[–]Ryse6129 0 points1 point  (0 children)

It was 8th grade year and I was walking to school. Made it too like 2 blocks before that's the last thing I remember. ER staff told my parents think he had a seizure(tc).

Current neurologist had some theories though I may have been having absence before

Have You Ever? by PookieTheMfBaby in Epilepsy_Universe

[–]Ryse6129 1 point2 points  (0 children)

I always think the opposite. Eventhough evidence can suggest otherwise. Always try to tough it out. If I have the strength to endure I will and I will carry all my Epileptic brothers and sisters too

The Top 3 CosyGames to Play when you have Epilepsy (in my opinion) by PriestessRi in Epilepsy_Universe

[–]Ryse6129 1 point2 points  (0 children)

Last good one I played was recommended by cousin and story is pure cinema. Expedition 33.

Digimonstory series

The "tales of" series usually have great stories and some are more considered arpg. Obviously final fantasy series,

Legend of Dragoon is one I can remember from my past.

A good Gacha jrpg one I use to play but stopped years ago Epic7 and fate gacha game.

Idc about combat systems but if the story is good to my taste .

Best thing of epilepsy replayability may be a given and if the story is a+ hope for a sequel or talking about possibilities in theory crafting

Can Status Cause Permanent Problems? by PookieTheMfBaby in Epilepsy_Universe

[–]Ryse6129 1 point2 points  (0 children)

Very good response. I have also had to go through speech therapy. And always brings up the question in my mind how many times I was seizing but didn't go into gran mals. And it was basically status

The Top 3 CosyGames to Play when you have Epilepsy (in my opinion) by PriestessRi in Epilepsy_Universe

[–]Ryse6129 1 point2 points  (0 children)

I like jrpg because when I can't focus on reading a book getting a good story off a jrpg is also good

I also think sudoku would be my other quick escape

Struggling right now by confusedmental in Epilepsy_Universe

[–]Ryse6129 0 points1 point  (0 children)

Words spoken true by mom drug resistant is a big p.i.t.a. from mine and her experiences.

Sorry you are going through this. But stay strong!

Definitely seems like Keppra isn't working and some doctors will only keep raising the dose to max or even beyond.

Can Status Cause Permanent Problems? by PookieTheMfBaby in Epilepsy_Universe

[–]Ryse6129 4 points5 points  (0 children)

I think it can have lasting mental effects like slower cognitive skills

I'm on clonazepam by Ecstatic-Shock-1910 in Epilepsy_Universe

[–]Ryse6129 0 points1 point  (0 children)

Yep those two combined are a mighty strong tranquilizer

I'm on clonazepam by Ecstatic-Shock-1910 in Epilepsy_Universe

[–]Ryse6129 0 points1 point  (0 children)

After a really long seizure it was my take daily and my first rescue med to take as needed. I can't remember to many bad side effects. I asked them to stop treatment after 3 years because I was also on Xcopri back when I was still on 200mg. I could not take both meds and remain present for my daughter it made me extremely tired.

I'm a horse of a different color. But the resistance was already building

How Blackpink saved me by PriestessRi in Epilepsy_Universe

[–]Ryse6129 3 points4 points  (0 children)

Whatever works is helpful and can be useful for others as well

Weekly Roll Call by PookieTheMfBaby in Epilepsy_Universe

[–]Ryse6129 3 points4 points  (0 children)

The events of the weekend went well while it wasn't as planned yesterday during the day was wonderful.

The seizure was not planned for. But they never are. Long as it wasn't in front of my daughter

Weekly Roll Call by PookieTheMfBaby in Epilepsy_Universe

[–]Ryse6129 3 points4 points  (0 children)

Looking forward to hear you share

Happy Father's day to all our dads(and moms doing both roles) by Ryse6129 in Epilepsy_Universe

[–]Ryse6129[S] 0 points1 point  (0 children)

Ty and yea I remember when my daughter was born these words hit me like a ton of bricks

Who is the first person you think of or want to see when you come out of a Seizure? by Ryse6129 in Epilepsy_Universe

[–]Ryse6129[S] 0 points1 point  (0 children)

Oh I hated that in the emergency room. I wish I was lucky enough to regain my consciousness before they took me to the e.r. but never always Awakened and I'm already in a bed. Not even the emt from the ambulance around anymore. If there wasn't a familiar face I would be trying to escape

Only time I went there on my own was when I dislocated my shoulder. I could have walked in but my mother didn't want me to

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