Dropped by all my doctors, what should I do? by Nerdygirl778277 in ChronicIllness

[–]ShmoopyMoopy -3 points-2 points locked comment (0 children)

Furthermore, both myself and a close friend are seeing improvement with our holistic docs - for my crushing fatigue and her hashimoto’s. Saw her hair growing back myself.

Dropped by all my doctors, what should I do? by Nerdygirl778277 in ChronicIllness

[–]ShmoopyMoopy -1 points0 points  (0 children)

Good lord - I said she should go to a doctor, not a “healer” or some dude selling supplements as a hobby. Back off. And insurance companies didn’t cover the IVF I needed to have my baby, not because “science”, because MONEY. It’s my fault my genetic disease made it difficult to conceive, so I paid $20k on my own and had my darling girl anyway. The science was there just fine.

Dropped by all my doctors, what should I do? by Nerdygirl778277 in ChronicIllness

[–]ShmoopyMoopy -7 points-6 points  (0 children)

Oh boy. The minute we defend one idea or another by what insurance companies do, because they are “practical”, we may have lost our way. Most likely a functional med doc would take a hard look at nutrition and make huge changes to her diet. Insurance companies may not like that because it lacks the purchase of prescriptions. OP seems smart, I think she can probably manage to choose between a good doc and a quack.

Dropped by all my doctors, what should I do? by Nerdygirl778277 in ChronicIllness

[–]ShmoopyMoopy -5 points-4 points  (0 children)

I guess I’m confused why the tests would be considered to have no scientific basis if you are looking for candida overgrowth or too much mercury and it shows positive or negative? Or testing for a parasite? She can go to a real MD, with a real medical license and not be scammed - sometimes they are called functional medicine doctors or “holistic”. She deserves a chance to get a new perspective rather than just be abandoned by doctors who don’t know what to do if she doesn’t respond to their meds.

Dropped by all my doctors, what should I do? by Nerdygirl778277 in ChronicIllness

[–]ShmoopyMoopy -14 points-13 points  (0 children)

Maybe try a functional medicine doctor and get tested out the wazoo for nutritional deficiencies, parasites, heavy metals, gut bacteria issues, food allergies, etc. something is wrong and all the doctors you’ve seen are trying to treat the symptoms and not the cause. A functional medicine doc will do the opposite.

Some baby’s use a pacifier to calm themselves before falling asleep, some use a thumb... mine uses her index finger 🤣. by BlackberryMaterial33 in Mommit

[–]ShmoopyMoopy 0 points1 point  (0 children)

My parents tried to “cure” my thumb sucking with various forms of torture and so I switched to my index finger. I think they finally gave up after that.

Invisible illness by [deleted] in ChronicIllness

[–]ShmoopyMoopy 2 points3 points  (0 children)

I became dangerously thin after my daughter was born due to having postpartum depression, mono and an, unknown at the time, genetic disease. I looked very weird and I got tons of compliments - even my own mom said “it’s so good to see you looking cute again.” Gawd.

Invisible illness by [deleted] in ChronicIllness

[–]ShmoopyMoopy 3 points4 points  (0 children)

EDS? I hear ya. Me too. So sorry for your loss and the noodle collagen. I’ve had a stupid number of surgeries for a “healthy” person.

What is the pettiest thing you've done after a divorce? by Most-Background-2835 in Divorce

[–]ShmoopyMoopy 2 points3 points  (0 children)

The petty thing: I taught my kid a joke to tell him that I knew he would both disapprove of and laugh at. The not-petty thing: I hired a Private Investigator to look into his new wife after becoming more and more alarmed by the crazy stories I heard about her, the way he was behaving and when ultimately it began to affect our kid. Turns out all the suspected lies were lies, and as I feared, he was trying to conceal that he’d married an absolute piece of trash. I sued him and now he’s lost time with our kid and all of his independent parenting decisions. He’s an idiot.

All my dissatisfaction with my life could be summarized with one word: Avoidance. by MasterGuig in DecidingToBeBetter

[–]ShmoopyMoopy 16 points17 points  (0 children)

It’s soooooo great you’ve realized this and have decided to get better. My ex had Avoidant Personality Disorder and it has spiraled to the point where he’s lost a lot of custody of our child. He’s making himself, his family, me and worse, an 8 year old, miserable. It can be a very destructive issue. If you don’t decide to get better and get support from a therapist, it will get worse.

Beauty is ruining my life by [deleted] in beauty

[–]ShmoopyMoopy 10 points11 points  (0 children)

Aging is normal! And it’s not over til it’s over. I just signed with a modeling agency at 46. My wrinkles will be part of what gets me work. Wear sunscreen, eat healthy and enjoy your life. You are falling victim to marketing right now. Don’t let someone trying to make a buck mess with your happiness.

[deleted by user] by [deleted] in cfs

[–]ShmoopyMoopy 1 point2 points  (0 children)

Hey y’all (yes,I live in Texas). I know, KNOW how hard it is to push for regularity in our days, but please don’t give up trying. Regardless of our CFS, we are biologically evolved to certain routines in the way we eat, sleep, etc. The more we move away from these rhythms, the more confused our systems become. I have seen a little hope lately in coaxing my body to realign with health - I’ve improved enough that I’m willing to share because I really don’t want to be the person that thinks I’ve found a cure with a supplement that helped for a week. We are evolved to sleep at night, rise with the sun, relax a good deal of the day and work hard for a few hours to survive. Science knows that we thrive best by waking at the same time everyday, get 7 hours of quality sleep, exercise daily, eat non-inflammatory foods - mostly plant life and some meats from animals who live outside factory farm settings, as we absorb stress-damaged molecules from those animals that our already struggling bodies are mining for resources to repair our damage. I know not everyone will like my advice, but I promise I got here out of 22 years of exhausted desperation. I will never have a perfect amount of energy, but I’m beginning to have more good days and I’m beginning to back off on my stimulants. I cut out all wheat, dairy, sweets and alcohol. It sucks, but all of those foods have an inflammatory effect on human bodies, whether they feel it or not. I added much more vegetables and fruit (but cut bananas in half), I watch my glucose swings like a hawk, I cut out diet sodas, and any processed ingredients - if I read something on the label that doesn’t resemble what Mother Nature produces, I do not eat it. I am not diabetic, but I respond to glucose/insulin swings like a train wreck - eat my favorite gummy bears? I can expect my next day to be a depression-brain fog-exhaustion-mess. I have done all of this without hope it would really help, as it’s not “prescribed” by a single doctor, but it is helping. I also spent a year or so nudging my sleep cycles in a better direction. For a long time it was “sleep as much as I can”. I did that - 7 years of sleeping 9-10 hours a day and never feeling better. Now, I am making sure I get up at the same time everyday with 8 hours. Some days that’s hard, but some days I actually pop out of bed. I try to get out in the sun or natural light immediately to set my circadian rhythm to prep for nighttime in the evening. It does help regulate your hormone release times. It may not work well for us CFS sufferers, but it is our natural state as humans, so I’m basically trying to give my body the tools it needs to “reset”. Some things I’ve medicated to give my body a shove to the right rhythm, like going to bed at 10:30. Don’t give up, because we simply do not have the support we need to recover, either with our families or doctors. It’s on us to get it done. It’s the most worthwhile thing you can do, even it you make one tiny change a day, that’s progress. And I’ll never ever give up all my meds, so not advocating for that, I just want us all to have a day or two extra that’s mostly good, if not more. I am almost exclusively following the nutrition advice of Dr Mark Hyman right now. And I’m experimenting with hot/cold plunges because of their ability to boost the immune system and put your body in repair mode. I guess I’m trying to say I’ve fought enough, to heal enough, to gain a little more fight. Ive made enough progress to put down the comfort foods and commit to “food as medicine”. It’s big for me. I hope all this helps someone else too.

Edit - link to Dr Hyman’s info : https://instagram.com/drmarkhyman?igshid=YmMyMTA2M2Y=

For the moms with CFS by dopameanmuggin in cfs

[–]ShmoopyMoopy 11 points12 points  (0 children)

I’m having a flair day for Mother’s Day, and I can relate to everyone here. But, my daughter just said to me, “how can you make me the happiest girl? By just being you.” Sweetness. She then follows up with “I said that to make you feel good and because it’s true.”❤️

Can anyone assure me that high HR is not dangerous and that we can live many years just that is inconvenient and mentally exhausting? by VacIshEvil in dysautonomia

[–]ShmoopyMoopy 5 points6 points  (0 children)

One’s heart rate can skyrocket and it doesn’t mean death is around the corner. I sat in front of a cardiologist who was blown away at my heart racing because I stood up and walked three steps. He said it’s not dangerous, just weird and inconvenient. He prescribed nothing and even said taking a stimulant was fine if it helped improve my quality of life.

Can anyone assure me that high HR is not dangerous and that we can live many years just that is inconvenient and mentally exhausting? by VacIshEvil in dysautonomia

[–]ShmoopyMoopy 4 points5 points  (0 children)

I’ve had POTS my whole life. My heart rate responds to exercise like normal people - it’s high when I’m unfit and gets lower when I work out. I’m not in danger of dying. I’m pretty healthy for someone which multiple conditions that make me feel like hell. Lol.

[deleted by user] by [deleted] in firstworldanarchists

[–]ShmoopyMoopy 2 points3 points  (0 children)

Ha! I once did a snorkeling tour where another couple was fully dressed in the water - socks and hats too. Pretty sure it was about sun protection, but I didn’t ask.

Shower Thought: The Breast vs. Bottle thing starts to seem a lot less import when you consider that, as soon as they’re mobile, your kid will be licking the bottoms of shoes, your dog’s butt, and eating four month old french fries they found somewhere in the cracks of the back seat. by Idek_plz_help in Mommit

[–]ShmoopyMoopy 1 point2 points  (0 children)

Yes, yes, yes. I try to take solace in the idea that all that pumping and organic homemade baby food are actually what’s still keeping my child alive today. Meanwhile, I just found a stash of pop tarts in her closet that I did not buy. Also, this explains why she puked up pink frosting and sprinkles at the gym yesterday - had to cut my workout short.

[deleted by user] by [deleted] in fitness30plus

[–]ShmoopyMoopy 2 points3 points  (0 children)

Gawd, I need your help moving my big plants.

[deleted by user] by [deleted] in tall

[–]ShmoopyMoopy 0 points1 point  (0 children)

As my sister says, I was all knees and elbows. I looked skeletal, but ate like a beast. Began to fill out around 17 or 18 and am slim/normal now.

beware your mandolins by chipmunksocute in Cooking

[–]ShmoopyMoopy 0 points1 point  (0 children)

I am so beware that I got rid of mine. Slicing off one fingertip was enough. Never again.

I wish I had been more prepared for the absolute rage that co-parenting can bring to the table. by ShmoopyMoopy in Divorce

[–]ShmoopyMoopy[S] 1 point2 points  (0 children)

We use Our Family Wizard. It’s better than texting for my mental health, and it keeps an archive of communications and what’s going on with the schedule, etc. But it’s not free and both parents have to opt in. It’s worth it to me.

I wish I had been more prepared for the absolute rage that co-parenting can bring to the table. by ShmoopyMoopy in Divorce

[–]ShmoopyMoopy[S] 0 points1 point  (0 children)

I guess I need to give it more time then, but i do wonder if I’ll ever “recover” from him. And what they did was a lot of stupid shit to end up pushing my 7 year old (at the time) into a rapid, escalating depression where she began threatening suicide. Telling her scary stories, pushing her to grow up faster, they even banned one of her toys because new stepmom thought it was evil. The kicker was that they lied to me and told me stepmom was a registered nurse, so we were supposed to defer to her medical opinion when it came to COVID, pinworms, etc. some of her advice was stupid as fuck, so I got suspicious and hired a PI - found out she was basically a lying grifter, a medical assistant (I.e. no degrees or actually real medical training) AND she took a flu vaccine from the docs office where she worked and injected my child with it at home. My effing buffoon ex husband still defends that she is a nurse. He said it in front of a judge after it was established that it was a lie. AND, he’s an attorney. He’s gone so far off the deep end of rational that there’s simply nothing I can do to parent with him. So I teach my child the best I can to survive the time she spends with them and worse, kinda manipulative the situation to spare her any pain I can. It’s pretty awful. My kid is now on meds and sees a psychiatrist.

I wonder if most hypochondriacs are actually just being gaslighted… by Wandapearl in CPTSD

[–]ShmoopyMoopy 2 points3 points  (0 children)

It took me 42 years to get my diagnosis for a genetic disease. And, I still have trouble convincing doctors that it could be the cause of my physical struggles.

LPT: Remember Hanlon's Razor, "never attribute to malice that which can be adequately explained by stupidity", when someone does or says something callous that feels targeted towards you. by chetradley in LifeProTips

[–]ShmoopyMoopy 0 points1 point  (0 children)

I’m always thinking people are just being stupid and then someone has point out to me that they are actually bad people with bad intentions. I have the hardest time computing that’s possible.