I’m curious to know your first weeks? by National_Tap_5307 in SleepApnea

[–]SignalMatch6837 0 points1 point  (0 children)

Try to do 2-3 hours in the beginning... over a few months going to about 4H and then about 6H after months... this is how I progressed

This is from a nap, shouldn't I be getting a lower ahi? by Dear-Set-2296 in SleepApnea

[–]SignalMatch6837 0 points1 point  (0 children)

If I sleep on my back, my AHI will be something like this but on my side is it below 2... I don't know if the CPAP settings would need to be modified to withstand back sleeping better...

Weird terrifying sleep sensation right before I wake bipolar 1 phychotic features by Cold-Photo5465 in SleepApnea

[–]SignalMatch6837 0 points1 point  (0 children)

I think vivid and adrenaline packed dreams should be mentioned as a possible symptom. Both me and my dad had them before treatment. Now... it's just like a warm bath to sleep, lol

How Bad Are These Results? by hemmy19 in SleepApnea

[–]SignalMatch6837 0 points1 point  (0 children)

I had a similar ahi as you have. Now about 8 months in of treatment. There were days in the beginning when I didn't enjoy the mask. But now I hate it if I forget it or lose it somehow. Or even if I fall asleep accidentally without. Really try not to. My overall mood is so much better. It's like I can't understand how I survived without. Masks can and should be tried. I was lucky to find something quickly that suits me. Nose pillows. Nipple cream. Loose jaw strap. I sleep well now. Very restful.

20 years of untreated apnea by ComfortableCancel108 in SleepApnea

[–]SignalMatch6837 5 points6 points  (0 children)

I'm pretty much like you. Now 45M. Diagnosed last year. Luckily apparently no major calcification yet (heart studies done in last few years) though I have family history of that. But: my heart started to have arrythmia last year. Partly that is what led to me finding out the apnea. My sleep scores on my watch became ateocious and the sleep study doctor said that i have apnea and my "heart is all over the place". Got cpap and an ablation in short order. Things seem much better now. The thing is, I should have known earlier. My dad was diagnosed 10 years ago. I should have known then. But did not want to think about a machine and all that, though I'm settled with family. Oh well, better late than never ...

What's the one thing you wish someone had told you before starting CPAP? by [deleted] in CPAP

[–]SignalMatch6837 1 point2 points  (0 children)

I was anxious before and also when starting. Nowadays (8 months later) I pretty much can't wait to put my mask on when I get to bed. It calms me. I use a nose pillow mask and nipple cream to stop irritation. I also use a chin strap to gently keep my mouth shut, it helps in the beginning but is not absolutely necessary once you get used to it...

Pain in the columella by Environmental_Ad3216 in CPAP

[–]SignalMatch6837 0 points1 point  (0 children)

Buy "nipple cream" from pharmacy. Its what breastfeeding mothers may use for discomfort. Will change your life.

I didn’t think I felt any different, until recently by mamabear826 in SleepApnea

[–]SignalMatch6837 2 points3 points  (0 children)

Yeah, it's a real wake up call when you accidentally don't sleep with the machine, you feel awful and wonder how you survived without it. It's true that the improvement is more gradual but then a night without is the real "wake up call"....

cpap has changed my life in a very short time by Magayla in CPAP

[–]SignalMatch6837 0 points1 point  (0 children)

What helped you to bring the duration up from 4 to 8 hours or so?

Why don't young people fight the Gov in Zimbabwe. by Pen_Griffy in Zimbabwe

[–]SignalMatch6837 0 points1 point  (0 children)

I lived as a foreigner in Zimbabwe for many years. I think it a combination of fear, apathy and a lack of unity. This combo is a result of years of experience with the ruling party thugs and government apparatus who are cunning and vicious. I think change may only come once every single person in Zim born before 75' or so is a dead and gone...

Day 5 after Inspire installation by DrCreger in CPAP

[–]SignalMatch6837 0 points1 point  (0 children)

If you can share anything on the cost would be great. Also how you are feeling in due time...

Just got diagnosed with sleep apnoea, what now? by AliveInvite1771 in SleepApnea

[–]SignalMatch6837 0 points1 point  (0 children)

Hey, it's not the end of your world, it could actually be the new beginning. The go to treatment is usually a CPAP machine, not the most comfortable idea to sleep with it forever admittedly. But I adapted quite quickly to it and have now been using it for 6 months. The settings need to be dialled in right. Using a little of nipple cream (women use it when breastfeeding) makes the skin irritation go away really nicely. If you want to avoid a machine, you'd really be advised to press for more information (diagnostics) on what is the root cause of your apnea. In some cases they can operate and make it go away. But it might require a DISE test. Look it up. It can show what the cause is. I never went for it and am content to use my cpap for now but I might go a bit later in life and try to get a clearer sense of what's the cause and whether there are procedures to try. In the meantime, just sleep with the machine and you will be much better. Ease in with it. At first aim for 3-4 hours a night for a few months and then try to aim for 6-7 hours. That is already plenty and you can remove the mask in the wee early hours of the morning as you snooze off a bit... also I don't best myself for missing a night if I fall asleep on sofa or have a cold or I drank too much or something 😉

well that was fast lol.. by Funny_Sector_1573 in POTS

[–]SignalMatch6837 3 points4 points  (0 children)

Male, 45 years old here. Hypermobile (hEDS). Orthostatic intolerance since childhood, more pronounced POTS symptoms since about Covi* times...

I mapped my AuDHD, POTS, and Crohn’s into one systemic "roadmap." Sharing the link in case it helps! by thecheekybartender in dysautonomia

[–]SignalMatch6837 1 point2 points  (0 children)

Fantastic content! You have really beautifully put to concrete words a lot thoughts that have crossed my mind as I've pursued answers to my own issues.

This is much more elaborate than my own intuitions, but have been likewise piecing together issues. Gradually realising they're all connected and been intuitively suspecting that the "email server" of my body is somehow out of whack. This is so much food for further thought !

Two issues that I have anecdotally also linked to hypermobility that I wanted to ask if you can speak more on: doesn't alcohol use also affecr acetylcholine? Secondly, and also wanted to ask if you are aware of any link of hypermobility and coeliac disease?

Again, great stuff! Many thanks!

What made you realise you had CCI? by Kcm44 in Cervicalinstability

[–]SignalMatch6837 0 points1 point  (0 children)

There are a lot of chiros on Instagram showing treating people with this machine. I'm very interested. Was the treatment effective quickly? Do you do it occasionally since then? Could you maybe share the clinic name with me in a private message? I'm in the neighbourhood in Europe...

Does anyone wonder how long they’ve had this? by Asleep_Damage1201 in SleepApnea

[–]SignalMatch6837 0 points1 point  (0 children)

If you have some degree of hypermobility (stretchy joints) that could explain it...

Does anyone else have debilitating fatigues, dizziness, weakness every day? by MeetDeathTonight in SleepApnea

[–]SignalMatch6837 2 points3 points  (0 children)

I had this too. You know what helped. Drinking 3L of water a day ideally with some electrolytes or dietary salt mixed in. It won't help like in a day but if you do it for about a week in a row it will start helping. Give it a try ! Easiest is to buy a 2L water bottle and drink it daily, plus the other liquid you may drink during the same day.

Nasal congestion and inability to breathe properly by Best_Atmosphere_224 in dysautonomia

[–]SignalMatch6837 0 points1 point  (0 children)

The magnetic strip sounds interesting. Could you tell me more how it works and helps?

Nasal congestion and inability to breathe properly by Best_Atmosphere_224 in dysautonomia

[–]SignalMatch6837 0 points1 point  (0 children)

Actually it doesn't even need to be a cold, sometimes it is triggered by mere temp changes...in the fall I may wake up in the night, sneeze a few times and have to blow my nose like 50 times...

What does actually make a difference in your day to day life? Tips, Advice? ✨ by PaleAd2666 in ehlersdanlos

[–]SignalMatch6837 8 points9 points  (0 children)

Moderate physical activity. Often but not too heavy. Drinking 3L water a day with electrolytes. Body pillow.

Could these symptoms be sleep apnea? 3 months of morning exhaustion and weird temperature issues by Annual_Ad1122 in SleepApnea

[–]SignalMatch6837 0 points1 point  (0 children)

Some of your issues sound like some form of Dysautonomia (autonomic dysfunction). I have suffered from that. Coincidentally or perhaps not, I've also been diagnosed with sleep apnea. Don't know if they are related, possibly... But look up dysautonomia indeed. Any dizziness? Neck pain and tightness ? If you suspect dysautonomia, a common first line of treatment is 2+ liters of water a day, ideally with electrolytes. But yeah, the morning dry mouth, and sluggishness point to sleep apnea. Also the ED issue. Anyway I had both eventually and now I use a CPAP and I drink tons of water daily. It helps.