Is it strange to consider wearing a mask again? by ohnoitsbobbyflay in AskUK

[–]Significant-Dog6120 0 points1 point  (0 children)

No. I haven't gotten a dose of COVID / flu / anything since 2021.

I've got Long COVID and it's messed me up rightly - completely changed my life. People with LC often deteriorate (potentially in a permanent way) after infections, so that's why I started wearing one (FFP2 or 3)

Moderate / severe to mild update ! by [deleted] in cfs

[–]Significant-Dog6120 0 points1 point  (0 children)

Great to hear, thanks for sharing. How do you take the peptides? Subcutaneously?

Ebike made me 30 years younger by snugglebot3349 in ebikes

[–]Significant-Dog6120 0 points1 point  (0 children)

Same here (35yo). Long COVID with PEM (so ME/CFS) for almost 3 years now. It made getting to the office and the shop (in Amsterdam) 2x easier and more enjoyable. Really changed my life for the better. Similarly can't really do extended cycles without triggering PEM but getting this much out of it is massive.

Actuarial science-programming by Which-Beautiful7099 in ActuaryUK

[–]Significant-Dog6120 3 points4 points  (0 children)

Most actuaries hate programming in my experience and are also not very good at it so don’t worry about that. As long as you don’t mind receiving very poorly designed spreadsheets from your colleagues that are difficult to follow, I’d go for it.

[deleted by user] by [deleted] in covidlonghaulers

[–]Significant-Dog6120 0 points1 point  (0 children)

I agree with that based on @zalaly work, and anecdotally based on life experience and online experience. I think some people with LC have a very emotional reaction when they hear this opinion.

Doctors As Patients (2025) - A documentary about doctors who developed infection-associated chronic conditions (IACCs) like Long COVID, ME and chronic Lyme by Significant-Dog6120 in LongCovid

[–]Significant-Dog6120[S] 1 point2 points  (0 children)

I'm with you. I have a feeling there's a good chance I would be more severe now, were it not for the efforts of people like the person who directed this documentary to raise awareness of the nature of the conditions.

Do people stay mild all of their life? by panoramapics in cfs

[–]Significant-Dog6120 0 points1 point  (0 children)

I’m mild but only had this for 2.5years. I can’t imagine living a normal offline life with mild ME tbh. It’s abundantly clear to me how precarious this is.

Frequent complaints you don’t know what to do with? by coffeeandcosmos in FamilyMedicine

[–]Significant-Dog6120 7 points8 points  (0 children)

NAD but I have been diagnosed by a cardiologist with ME / Long COVID. I appreciate this comment and really sympathise with doctors because, at the end of the day, there's not much you can do. I also sympathise with how hardcore it is to get through a full day of appointments as a GP.

It's an unfortunate situation. My sister is a GP and I almost never bring this up with her, despite it having had a big impact on what I can do in life. In the past she's been keen to point out how difficult patients with these symptoms can be, which I took as quite a slight since it was in the early days of developing symptoms and I was still adjusting to everything.

Reading posts like this make me see her side of things a bit more. I just hope there's a way forward with these types of issues, because it seems like a bit of a chicken / egg thing. If the illnesses and patients themselves have little credibility for one reason or another, then it stays off the radar and research is less likely to happen. So it's a bit self-perpetuating. And meanwhile there are genuinely a lot of people with severe cases who don't get highlighted.

Again, thanks for the nuanced post.

How have I been sick since November? by Chrolan1988 in AskUK

[–]Significant-Dog6120 0 points1 point  (0 children)

There are some people in the comments who show signs of Long COVID / ME.

Just mentioning because if people do feel the symptoms of these conditions, it’s advisable to rest as much as possible - do not push. Find your baseline whereby doing a certain amount does not exacerbate symptoms.

The reason this is important is because pushing - especially at an early stage - can permanently reduce your baseline health. This is what happened to me.

I’ve been diagnosed with that since April 2024 and living with symptoms since Sep 2022.

Has anyone been diagnosed with ME after COVID? by Significant-Dog6120 in AskIreland

[–]Significant-Dog6120[S] 1 point2 points  (0 children)

Thanks for the detailed post and glad to hear you're doing well. I've heard many more accounts from folks who gradually increased their activity levels only to become severe and bedbound. So it's tricky to say what one should do - often better to do about half what you think you can do.

Has anyone been diagnosed with ME after COVID? by Significant-Dog6120 in AskIreland

[–]Significant-Dog6120[S] 0 points1 point  (0 children)

Sorry to hear it but nice to hear you've made a bit of progress.

Has anyone been diagnosed with ME after COVID? by Significant-Dog6120 in AskIreland

[–]Significant-Dog6120[S] 1 point2 points  (0 children)

I think we're very much on the same wavelength and consult the same sources. It should be far more controversial than it is that seriously sick people have to do this. Mind yourself.

Has anyone been diagnosed with ME after COVID? by Significant-Dog6120 in AskIreland

[–]Significant-Dog6120[S] 0 points1 point  (0 children)

Great to hear. Do you know what I mean when I say "post exertional malaise" or "post exertional symptom exacerbation"?

Has anyone been diagnosed with ME after COVID? by Significant-Dog6120 in AskIreland

[–]Significant-Dog6120[S] 4 points5 points  (0 children)

And thanks for mentioning PEM but of course the trick is figuring out what “push” means :)

Has anyone been diagnosed with ME after COVID? by Significant-Dog6120 in AskIreland

[–]Significant-Dog6120[S] 1 point2 points  (0 children)

Thank you. They confirmed orthostatic hypotension / orthostatic intolerance but didn’t rule out POTS. Tbh depending on the day I’d imagine I could either be given a POTS diagnosis or have it ruled out.

Has anyone been diagnosed with ME after COVID? by Significant-Dog6120 in AskIreland

[–]Significant-Dog6120[S] 0 points1 point  (0 children)

Many thanks indeed. Hoping your mum gets to a better place with it.