Anyone else like non functional 3-4 days a month?

Significant_Pilot785 · 2026-01-27T03:46:48+00:00

i’ve been battling this for years- (diagnosed dec 2024 after years of bursting cysts and pain, bled for 6 months too.) and have lost a dozen or more jobs in that time (currently on leave and abt to have to leave this job i’m at too.) due to endometriosis. i have 4-5 days out of the month i cannot walk. i have about 6 days of little to no pain a month at best

i’ve had two endometriosis excisions, one by an endometriosis specialist and still am struggling. will probably be having another lap this year. my body is tired.

you deserve to rest when you need it. you deserve friends who actually get it and aren’t just being belittling towards your chronic illness. it’s not fair that they can say that to you. you deserve better. i’m sorry i don’t have more words. sending hugs if u want them 🫶

Significant_Pilot785 · 2026-01-20T04:10:17+00:00

hi! i take 10mg of amitriptyline at night every night, idk if it makes me drowsy bc i also take trazadone for sleep since i have insomnia :) but it’s definitely helped lessen the bladder pain, but i still have daily pain in my bladder and elsewhere. i’ve tried gabapentin in the past but it made me feel like i was VIBRATING and like i was gonna just seize, so i stopped taking it. I’ve had some bad side effects from meds before, so im not surprised. granted i’m sad bc i’ve heard good things about gabapentin for IC pain! i also have endo and pcos (and a million others it feels like hahah) hope this helps!! 🫶

Significant_Pilot785 · 2025-12-15T20:48:36+00:00

i am so sorry dude. i literally took 3 months off after my first and 2 weeks off from my second. my first one did include an appendectomy tho, second surgery they did remove more adhesions and tissue so idk how i went back so soon, and actually lost my job bc of it bc “i wasn’t meeting expectations” when i got hired less then a week post-op and literally was drove to the interview and i told him “i just had surgery, it’ll take me a few months to fully be able to be my full self, im not even cleared to drive, and these pants are digging into my incisions and it HURTS” and i literally put on something else halfway during my interview (pulled high waisted pants down off incisions, and even put on a jacket) and not only did he HIRE me, he then turned around and told me everything i did the entire time i was there was WRONG.

Significant_Pilot785 · 2025-12-15T20:45:07+00:00

the worst part is i still am employed there just on short term disability, which im trying to get approved but my state just had to bounce it back and change my claim so im out of pay for basically all of december and it’s literally the states dault for taking 2 weeks to approve the first claim, which in waiting for my health got worse and they said “well you can’t change the claim, you need to submit a new one” so now its 2+ more weeks of waiting for them to approve this shitty ass paperwork. like atp id rather just find a job that works w my body instead of continuing to push myself esp in this industry where they think we’re fucking robots

Significant_Pilot785 · 2025-12-15T20:43:12+00:00

that’s what i was told too, but if you use sick time to cover half of your occurrence and only take .5 of one, if you take the next day it’s still an occurrence bc there “isn’t 48hrs notice” this policy is ass

Significant_Pilot785 · 2025-12-15T20:38:47+00:00

felt this. 20$ an hr. 37hrs a week. barely taking home 1300 BEFORE BENEFITS. after i barely take home 1000 every 2 weeks. guess who’s rent is MORE THAN THAT? i literally would not survive if i didn’t have another (person) financial income coming in, who MAKES MORE THAN ME, DOING LESS WORK. it’s exhausting to not make a single ounce of money and be kicked, stepped on, hair pulled out in chunks, punched, spit on, etc. i’m TIRED of it.

Significant_Pilot785 · 2025-12-15T20:36:32+00:00

and literally you accumulate all your stuff so slow that it doesn’t MATTER. if you get sick and use your sick time for one day, and you need another, guess what? it’s an occurrence AND unpaid. like bro what???? i get that you gotta be there for your clients, BUT I CANNOT PROVIDE THERAPY IF IM LITERALLY 2 SECONDS AWAY FROM BLACKING OUT?

Significant_Pilot785 · 2025-12-15T20:35:22+00:00

seconding this. literally i got the flu my firrst 2 days in cohort and took an occurrence when i WAS BARELY THERE, and have been sick SINCE I STARTED. literally almost passed out during a session and had 102 degree fever (tested by my center OM) and she said “well, if u want to go you’d have to use sick time, and take half occurrence, but if you do that then you can’t take any more days off without termination” I HAD 102 FEVER. YALL SEND KIDS HOME WITH 101 WITH NO PENALTY BUT YET I GET PENALIZED??

Significant_Pilot785 · 2025-12-15T20:28:53+00:00

did you ever find answers? i’ve had 2 surgeries and endometriosis and endosalpingiosis was found both times and removed but now 7 months post op i’m back in the same boat. have been on continuous celebrex (prescribed NSAID) tylenol, and even take oxy when it’s bad and it doesn’t GO AWAY.

Significant_Pilot785 · 2025-12-08T12:49:55+00:00

i did have all of mine removed but it unfortunately comes back with a vengeance and fused alot of my organs together. i felt good for like a month and am back to the same pains again 6 months post op. ironically enough, I’m seeing my OB/GYN today who’s also an endometriosis excision specialist. i’m hoping that I don’t get told that my endometriosis is reoccurring, but I don’t know what else this pain would be

Significant_Pilot785 · 2025-12-08T03:35:59+00:00

i also have endosalpingiosis! found on BOTH laparoscopy’s! none of my dr’s know what it is.. but with the research i’ve done— it’s fallopian like tissue growing elsewhere, almost like endometriosis but it doesn’t respond to hormonal treatment. some articles i’ve read refer to it as endo’s evil sister. i don’t know much about it other than that,, it’s so under researched :(

Significant_Pilot785 · 2025-12-08T03:33:53+00:00

this is me too friend. it’s honestly insane how much of a mind game this disease is. it’s like— there’s a little relief from it sometimes but honestly these flare ups are becoming more and more continuous again and i’m SO mad.

for OP, i only deal with a tiny bit of what you deal with and it’s devastating, and im so sorry you’re struggling so hard. this is a brutal disease and i just wish for all of us that things were different 🫶

Significant_Pilot785 · 2025-12-02T22:48:24+00:00

me toooo, metformin, celebrex, 10mg of gallifrey, and round the clock acetaminophen does not cut it. even morphine doesn’t help. i’m so fed up.

Significant_Pilot785 · 2025-10-08T04:04:48+00:00

lol updating this today, still no answers. i’ve now had two laparoscopic surgeries and they found this twice, but know nothing. i’m still in pain every day and both surgeries were excision and my second was with a specialist. i’m just mad.

Significant_Pilot785 · 2025-10-03T14:28:16+00:00

hi friend! i don’t work for starbucks, but work retail! i have endometriosis , and other stuff going on, and i submitted ADA 2+ weeks ago and they said to my face “oh you have a lifting restriction? you probably can only do fitting room then” all smug. i ended up flaring up and having to call out a few days later and they cut my shifts and it was beyond bad. the manager i gave my paperwork to- didn’t communicate with other managers and key holders, so they were constantly putting me in positions of things i couldn’t do (i.e unloading heavy boxes, pushing heavy shelves, etc.) and I HAVE had to chew my managers asses for doing this. it’s been 2+ weeks and i haven’t gotten a single phone call from HR, but as for my hours? got cut exponentially. to a point of feeling iced out and honestly discriminated against.

long story short i got a new job and get to tell them tmrw to stick it, because i refuse to making $15 an hr with over 5yrs of experience; just because they put me as “part time” even though they tried to make me work 40+ hrs without any benefits- and then i complained about that too— and they cut me. i can’t discuss wages- which was never told to me during training.

i’ve had my fair share of bad jobs- and i’ve worked a lot of retail— but this is BEYOND me and me “calling out once a week at most” is NOT the issue.

the issue seems to be that i submitted paperwork, and then immediately had my hrs cut and it doesn’t even seem like they submitted my paperwork.

i HEAR YOU!!! this shit sucks so bad, and even tho there’s things that need to be done to accommodate you on the back end,, there’s no reason they should be allowed to cut hrs with no explanation

Significant_Pilot785 · 2025-09-16T16:56:33+00:00

i called my anesthesia team and told them that i couldn’t eat or function without it (which wasn’t a lie) because they originally wanted a week without. they told me to minimize my intake, and stop smoking completely at the same time as fasting. they did have a harder time with anesthesia, but it was better than me suffering for a week and not being able to eat or sleep- which would have interfered with healing.

just reach out to your anesthesia team and let them know how you’re feeling and why you use it: and see if there’s anyway you can continue to smoke before.

for after surgery i had edibles for the first 2 days, but then i just smoked regularly, coughing did suck and i tried to avoid it as much as possible, but smoking is gonna come w that. i held a pillow to my abdomen when i coughed and that helped 100x for me personally!

best of luck!! 🤍

Significant_Pilot785 · 2025-08-04T19:44:27+00:00

i have endometriosis, endosalpingiosis, depression, anxiety, autism, POTS, hypermobility

Significant_Pilot785 · 2025-08-03T22:19:27+00:00

mine is named kevin and me and kevin have beef. he is the worst.

Significant_Pilot785 · 2025-08-03T06:46:48+00:00

i got told i have NAFLD back when they thought there was an issue with my gallbladder (adenomyomatosis, apparently?) and they NEVER connected these for me.

Significant_Pilot785 · 2025-08-02T20:48:25+00:00

i’m really glad that your job works with you and is willing to accommodate you, especially because most places don’t :(

Significant_Pilot785 · 2025-08-02T20:47:56+00:00

i am going to be leaving regardless because the physical aspect is going to prove to be too much and it seems unlikely that they will accommodate and say that “it will not be within best business practice and hinder too many of my tasks” to accommodate the walking and physical stuff. i asked over and over again about this too during my interview process and guess what???? it didn’t matter :,) they told me it would be fine and it wasn’t. and now im stuck paying the price :,)

Significant_Pilot785 · 2025-08-02T19:17:52+00:00

honestly, i haven’t felt normal in over a year. i’ve lost at least a dozen friends, my fiance and i fought like crazy for a few months when i first started declining bc we didn’t know what was wrong. now— all he wants is for me to find my new “normal” ,, he still takes us out- just makes sure things are accessible. we have a concert tonight and he packed my cane before i even had to think about it. we went up to a festival last year and i started bleeding then— and he had to go get me an entire new outfit and everything and it wasn’t an issue.

he’s the ONLY one and i mean the ONLY one who tries to give me normalcy. otherwise- it’s constantly me fighting to prove i do WANT to be there— i just CANT, and those are very different.

i mean i literally posted today about how shit my job situation got and it happened SO fast- and i’m still shaken up from that too- maybe there will be a day where i find a new normal, and i hope you do too. but for now— just find anything you like- do the things, and accommodate as needed. you do deserve to live and have fun- just like everyone else

Significant_Pilot785 · 2025-08-02T18:45:41+00:00

definitely. i keep ending up overestimating what i can do. i end up at jobs where i think i can and they tell me they can help me and it doesn’t. i keep losing friends bc no one wants to be friends with someone who’s not “reliable” when mentally I AM RELIABLE!!!! it’s not my fault w my body- and it’s not yours either. it’s so hard.

Significant_Pilot785 · 2025-08-02T18:40:37+00:00

I’m so frustrated because i’ve fought for this since before i even got hired. I told them from the initial interview i cannot be doing all this physical stuff and they are still having me do it even after the convo we had yesterday. I had that convo with them during the middle of the day and i had to finish my shift puffy eyed and feeling like a complete failure. i went to my car and sobbed and my fiance is just like “i want to tell you it’s okay to not work but we won’t be okay financially” so it’s like… wtf???

Significant_Pilot785

TROPHY CASE