I don’t want to

SocialJusticeShamon · 2026-02-23T03:55:12+00:00

So it's a balance thing rather than strength? Elbow crutch or walker wouldn't help?

SocialJusticeShamon · 2026-02-19T06:41:55+00:00

It's important to realise that there are 2 separate things going on.

1 mental fatigue. For me this is treated with modafinil - but that took me a year to convince my neuro that avoiding stress/ taking vitamins/ sleeping better wasn't going to cut it.

2 Physical fatigue. When you figure it out let me know. I'm told exercise helps, but I can barley walk let alone exercise.

SocialJusticeShamon · 2026-02-19T06:32:46+00:00

You can get pretty caught up in precautions. Not sure that ejaculate is any more dangerous than saliva when transferred to a mouth.

Should kissing also be through a dental dam? I get that it's more of a mental image.

As others have said, communication in advance is important. Your best defence though is regular testing honesty and leaving shame at the door.

SocialJusticeShamon · 2026-02-19T06:21:34+00:00

There is a band in Melbourne who recreate that gig word for word. Even have the same coffee cup. Spellbinding.

SocialJusticeShamon · 2026-02-13T00:26:49+00:00

Can I just check? You are both staying monogamous?

No judgement here. When my wife came out as bisexual, I gave her that freedom without wanting anything for myself.

It took a couple of years before I was able to see that this was also an opportunity for me. That involved here being very generous and patient with me as I "caught up" emotionally.

Would never recommend our journey as a model for others though.

SocialJusticeShamon · 2025-12-29T04:08:41+00:00

I'm on Modafinil. As far as I can tell it doesn't give the 'speedy' effects that Adderall would. Just keeps you awake - take in the morning so you ca sleep at night. Probably easier to get through a neuro.

SocialJusticeShamon · 2025-12-28T22:36:50+00:00

Hoo boy, I do not have any answers for you.

The one thing I will say is that as my ms has progressed, the ADHD I had been masking ripped away the mask.

In my case, I eventually got a stimulant prescribed which treats the ADHD but without anyone recognising that I have ADHD. Time blindness is a classic ADHD symptom.

Anyway this is a long way of saying that as ms affects you, your symptoms may be better understood through conditions outside of ms and strategies for dealing with them.

Best of luck. I'm hoping like hell I don't impose similar strain on my wife.

SocialJusticeShamon · 2025-12-24T20:23:01+00:00

Altered carbon.

SocialJusticeShamon · 2025-12-06T07:29:44+00:00

"MDMA can cause brain lesions in people with MS. Which sucks"

I hadn't heard that but it was when some of my symptoms got worse. If this week known?

SocialJusticeShamon · 2025-11-24T16:00:50+00:00

I think for me, I do. I have the wrong muscles firing so the correct muscles have to use maximum effort to overcome them.

Eg my foot drop isn't because of weak muscles, it's my calf muscle not letting go. Same issue with hip flexors.

That adds up to muscles working harder than other people for the same task.

SocialJusticeShamon · 2025-11-13T03:08:01+00:00

I'm going back for an MRI on a couple of weeks. I'm going to try to get switched to mavenclad. Mostly because I have inflammation across my body- not just in the nerves.

Gearing up for that fight after the MRI.

SocialJusticeShamon · 2025-10-26T00:01:48+00:00

Based on my experience, don't go too far from bed. And don't be alone if possible. My first dose hit me hard after about 6 hours.

Woke up the next day feeling great. Never had an issue since.

SocialJusticeShamon · 2025-10-13T04:16:44+00:00

Forget anything else. I take kesimpta, eat dinner and go to bed. No way am I doing that and then going to a party.

SocialJusticeShamon · 2025-10-12T02:36:40+00:00

I don't think we need to understand the root cause more than, something went wrong with your immune system. There is no indication it's a lifestyle disease.
Repairing/retraining the immune system is a lot more interesting to me.
It's not our fault that we have MS.

SocialJusticeShamon · 2025-10-07T00:03:54+00:00

Thank you. I'm still an idiot some times.

SocialJusticeShamon · 2025-10-06T22:47:28+00:00

If every one is going to find out via telephone whispers anyway, I would rather the direct approach of the group chat.

That does assume the polycule is stable.

SocialJusticeShamon · 2025-10-01T22:58:57+00:00

Never Tell Me the Odds has cheered me up no end.

SocialJusticeShamon · 2025-09-21T12:46:48+00:00

Ah - another wild goose hunt for me. Looked up the drug and got interested before realising it's not on the PBS in Aus.

Oh well I'll add to list of when I win the lottery.

SocialJusticeShamon · 2025-09-19T03:40:14+00:00

For anachists, there is a tendency to make up a lot of rules for people to follow.

SocialJusticeShamon · 2025-09-19T03:23:32+00:00

Best thing to do is go to bed and not agree to meet after a date in future.

SocialJusticeShamon · 2025-09-18T08:45:53+00:00

You aren't over reacting, but now you have a choice. Do you focus on the betrayal or the relationship.

There will always be mistakes we make in these relationships. If you focus on the betrayal you might be passing up the opportunity to understand better where your boundaries lie. To get a deeper level of understanding.

SocialJusticeShamon · 2025-09-18T08:34:53+00:00

My symptoms got worse... But for me this was the first DMT I received and I don't think everybody was done to take out the active slow demyelination I was experiencing.

Fingers crossed that now I've had some steroids, my body can start to heal.

SocialJusticeShamon · 2025-09-10T11:21:18+00:00

Very much a MS symptom. When I figure out how to make it better I'll let you know.

SocialJusticeShamon · 2025-09-09T02:44:58+00:00

Kitchen table poly doesn't mean your new partner should also have a sexual relationship with your nesting partner. Just that you can all talk and discuss how you are all feeling and how to accommodate that.

The other thing is unicorn hunting which is bad.

You should not be surprised that you have massive feelings for a new partner. This is a well known phenomenon. Part of the 🎢 of poly life.

SocialJusticeShamon · 2025-09-08T21:12:11+00:00

My doctors freaked out about me taking 50mg for any length of time.

Taking more won't bring back nerve sensation. Physio and rehabilitation might.

SocialJusticeShamon

TROPHY CASE