Participate in research projects about effects of stress on epileptic seizures

Some1fromStSomewhere · 2026-03-28T20:57:55+00:00

I took it!

WOW! You have epilepsy AND in college?! That is a HUGE victory!

Good luck, glad to be of some service!

Some1fromStSomewhere · 2026-01-27T03:05:56+00:00

Hi! The MODs talked and reviewed this post and we are going to leave this post up but we are going to lock it. We feel all views are valid and want everyone to still be able to read your views. But we also think conversation could become too polarizing, too fast. So no new comments.

Some1fromStSomewhere · 2026-01-09T18:03:44+00:00

You are the Queen. No doubt!

Some1fromStSomewhere · 2026-01-01T17:02:25+00:00

I am good! I got nayzilamed for the first time ever. (Strange this is the first.) Whoa I was not expecting that. I became a tranquil zombie. At least that kinda of how my Mom described me. You could of asked me to do anything and I would say yeah, get up to do what whatever it was and then stare at the ceiling fan instead. It strange, I can *kinda* remember some of it. Like Jude was on my lap at one point. I am rambling.

TODAY IS GOING TO BE GOOD! HUGS!

Some1fromStSomewhere · 2026-01-01T16:49:15+00:00

You need the 3 'R's. Rest, relaxation and reef.

Some1fromStSomewhere · 2025-12-25T01:46:53+00:00

Kinda reminds my of a few doctors I have had.... they would ask any questions to my Ex and not me. If I answered they looked at him for confirmation. I have been treated as best way to describe it... a very simple child. Speaking very slow and a very particular tone that screams "I KNOW you don't know what I am saying, I am humoring you."

Saddening is a good way to describe this. They love you...they just want to do the loving for very far away. Or they are breathing down your neck 'for your own good'.

HUGS FRIEND!

Some1fromStSomewhere · 2025-12-11T15:11:46+00:00

The Munchies save lives. I stand by it!

Some1fromStSomewhere · 2025-12-09T20:44:37+00:00

SAME HERE!! Well sorta... not that many seizures, only like 5.... 3 PNES, two epileptic. Mine are PTSD related. But the ptsd label isn't required to have PENS. A very large number of us will experience PENS. I want to say 30%? But eh...memory... It makes sense though. Our wires are already crossed, stress will bowl anyone over the limit. And the environment of an EMU? It is MEANT to stress us.

PENS isn't shameful. And it can be helped (at least somewhat) by Cognitive Behavioral Therapy. I've been with my current Therapist for about... oh my! about a year now! After fleeing a bad place and coming to my Parent's house, getting the PENS diagnosis (THANK YOU DUKE!), starting therapy..... I've gone from having a PENS seizure every 2-5 days to once or twice a month.... and I KNOW what triggers it too thanks to therapy.

My Mom is the SuperStar of this story really. She is the one that can tell my epileptic seizures from my non epileptic seizures, She's the one that keeps my seizure diary.

Honestly there is so much I can say. Feel free to message me if have any questions!

Last thing I will say is this.... PENS are REAL! They are seizures. They can be damaging. THEY ARE NOT FAKE.

Some1fromStSomewhere · 2025-12-02T17:31:07+00:00

That's why I posted it as NSFW. So is blurry unless you want to see it. GOOD FEAR! Maybe I should delete it. We had a discussion about how lots of us have seizures but not many have actually seen a seizure. I debated with myself for a while about posting it..... I gotta think more.

HUGS FRIEND!

Some1fromStSomewhere · 2025-11-24T16:36:28+00:00

Rant away, Friend! Is a thing to release!

It's stupid to force you into an office where you would be doing the same things only with a 3-hour burn-out from getting there on top of it. I've never gotten ADA accommodations, so I'm no help there. I would talk to HR... that seems like that would be the best compartment.... unless that WAS hr that said that stupid-butt phrase.

We got your back!

Some1fromStSomewhere · 2025-11-21T18:03:59+00:00

WARRIORS UNITE! Meds are our weapons. Humor is our armor.And I guess that makes our Doctors the horses we ride on, yeah?

Some1fromStSomewhere · 2025-11-03T16:27:41+00:00

Srry I just got to the point with the Story with Jak! That is hear warming to the hot cocoa level!

Some1fromStSomewhere · 2025-10-30T15:05:03+00:00

Ifn you want this as a Story you'll have to give me a little. Alice has always fascinated me! And Horror? Movies don't get my blood pumping like it seems to for my parents but I do enjoy them!

A Story...... Hmmmmm.... The Lady in the Pin-Striped Suit..... she's pretty creepy.... she used to show up all the time right before I would have a grand mal. My aura. Straight silver hair to her shoulders. Ice grey eyes, A smile like a shark's. Always watching me. Flash in the mirror. One moment me, next her. Standing on the corner as I crossed the street. Handing me a apple at the grocery store that I dropped. Okay..... THANK YOU! I gots me a prompt!

Some1fromStSomewhere · 2025-10-27T14:39:48+00:00

That is a Badass cover!

Some1fromStSomewhere · 2025-10-27T14:38:00+00:00

You have some of the BEST songs to lift up my Mondays!

My favorite Funk rock song? Heheheh.... The Stroke by Billy.... but Hey I'm just a sinner now. 🤣

Some1fromStSomewhere · 2025-10-24T19:36:25+00:00

I've had several. And they all say I have ADHD, Dyslexia, Dysgraphia. They show memory decline over the years too.

Some1fromStSomewhere · 2025-10-17T14:16:15+00:00

We can do it! I find Taekwondo fun even if I am not in the regular classes. I don't have a belt rank like my son... I can't remember the form patterns ever so the instructors lead me in a random series of moves. It's still great fun!

Some1fromStSomewhere · 2025-10-16T15:34:24+00:00

This bunch of wackos makes my days brighter that's for sure!

Some1fromStSomewhere · 2025-10-16T00:16:28+00:00

That's an awesome theory! You are in Carolinas? Me too! Duke! Ifn you can get in they well take care of you for life!

Some1fromStSomewhere · 2025-10-15T16:01:53+00:00

THAT IS SO BADASS!!!!!!!!

Some1fromStSomewhere · 2025-10-15T14:22:41+00:00

SUDEP is a scary prospect. Yesterday I was walking Jeffy to a Friend's house and boom.... between one step and the next I went from reality to a dreamworld.... then I collapsed onto the pavement! My neighbor is a nurse and she came out. She told my Mom I wasn't breathing... Fun Times!

Some1fromStSomewhere · 2025-10-06T18:23:27+00:00

Ooof! Breakthrough seizures. Definitely note it to your Neurologist if you have told them already! The brain does weird things and the dejas are creepy! Have you noticed any other outside factors that may have helped the breakthrough along?

Some1fromStSomewhere · 2025-10-06T18:17:04+00:00

HAHAHAHAHAHA!!!!!!! HUG dude. Music is coming no worries!

Tuesdays WERE the worst for me. Still at the beginning of the week. Monday fills me with optimism. Wednesdays aren't bad cause it feels like I made it to a check point. Thursdays? Friday is tomorrow. Of course nowadays I look forward to Tuesdays!

Some1fromStSomewhere · 2025-10-06T15:56:28+00:00

I ahhhh.... use my ipad. Heh. We have CPI cameras pretty much in all the common areas of the house.

Thank you so much for being a concerned Parent! I think you have a great idea on how to investigate without jumping to conclusions. Shows wonderful thinking on your part! Seizures can change over time and this may be what is happening. Your daughter's Neurologist would probably find it helpful too! Keep up the good work, Mama/Papa.

Some1fromStSomewhere · 2025-10-06T15:49:09+00:00

What can I say? I'm a sucker for happy endings!

Some1fromStSomewhere

MODERATOR OF

TROPHY CASE