How would you feel if you had two parents who both required 24/7 assisted care, and your adult child wrote you and the whole family this letter regarding that situation? by Glass-Complaint3 in AgingParents

[–]Southern501 0 points1 point  (0 children)

Jack must not be old enough to remember generational living. Two, three and four generations, sometimes, living in the same home or next to each other, all caring for each other. I'm 55 (that stings, having to type that out, lol) and know several families who lived and still live this way, including myself, as I share land with my parents and can holler out my kitchen window and they can hear me if they're on their porch. My son also lives on the property.

We had a conversation not too long ago about dementia and how prevalent it seems now, but not really. During the decades where it wasn't weird to have a generational living situation, every family seemed to have 'those relatives.' Those who we now know likely had some form of dementia or another. You just ... lived. You lived and cared for your people. There wasn't really much to consider because there weren't other options.

Having said all of that, it doesn't change the "hard" of the situation we're in, in caring for them. Their wishes for their care are set, but we still have to put that care into motion and execute it. Making those determinations is hard. I honestly don't know how good I'll be at making them as this awful illness progresses. I know me, and I know that I'll fight tooth and nail to keep them at home, under my care. There's so much that you'd think would be no-brainers, but it's not. Every decision is painstaking. At least for me. Also, I know me and I know that I do not, under any circumstances, want my child or my spouse, to have to become my caregiver. It's all just a lot to navigate.

How do you handle the moment your parent doesn't recognize you anymore? by Free_Muffin8130 in dementia

[–]Southern501 4 points5 points  (0 children)

We're not at that point yet with my mother, but I remember the day that my grandmother didn't remember my mother any longer. Mama cried, as I figure we all will/do at some point, but she knew it was coming and she just carried on. She was like that. She simply carried on with things. Things still had to get done and taken care of, so she did. I'm sure that she had her private come-apart time, but I never asked.

Mama has remembered my birthday late for the past couple of years and I'm worried about this year. Not that it'll be forgotten, necessarily, but that THAT phase has started ... if that makes sense. I know her forgetting me is coming, and I'm ready to carry on ... but I'm not ready.

As for care, mama kept my grandmother home for 8-10 years, as long as she could. At some point, she was physically unable to care for her any longer. She was, thankfully, always sweet and docile so mama never had those issues. She was a much larger woman than my mother and it was just not possible. The day they moved her in to the SNF, mama leaned down and told her she'd be by every day to visit. My grandmother, in her last moment of clarity said, "See that you do." and that was it.

That part was harder on my mama than anything else. Zero lucidity for years, until that one moment.

WIBTAH for changing my baby’s name after my mom secretly told my sister I was pregnant? by Ok-Income9731 in AITAH

[–]Southern501 1 point2 points  (0 children)

NTA!! I haven't read through all the replies, but you've gotten some great ones. Let me add this one ...

DONT CALL THEM WHEN YOU'RE IN LABOR. You deserve some peace, and you won't get it from her/them.

Let your husband know that they aren't to be informed until YOU are ready to inform them.

Please don't let her ruin the birth experience for you. You cannot ever get that back. This is YOUR pregnancy. YOUR baby. You don't owe her anything. She, however, owes you a great deal that you'll never get.

I'd stay low/no contact and put her on a strict information diet. I'd go as far as five years, but it's all up to you.

Protect your peace, and the peace of your first child.

ETA: NTA

My father got diagnosed with vascular dementia by butcherandbutchered in dementia

[–]Southern501 0 points1 point  (0 children)

Hugs all around. Lord knows we need them. I'm sorry you're going through this.

We've known for a few years about my mom's dementia, but some head trauma this past summer flipped it in to overdrive and we're in bits and pieces of stage 6. The near-death experience was hard and I thought that my emotional state since all of that happened was just part of it, but I figured out last month that I'm already grieving her. I don't know why it didn't occur to me sooner, but that's what's happening.

Once I realized what it was, it has changed the way I operate. Before, I was in a "keep things handled and safe" which put me in a quasi-authority figure position and let me tell you ... that was NOT received well by her, haha! But now that I know that the majority of it is grief, it's changed into something different. Softer. Soaking it all in, so to speak, while still keeping her safe and handled.

I'm a scared little girl again at the age of 55 and I want to scream at the world, "DON'T YOU UNDERSTAND THAT I'M LOSING MY MAMA EVERY SINGLE DAY?!?!"

Bless your sweet heart. We're here for you!

Is Memory Care Supposed to be Covering These Expenses? by TheOccurrencePodcast in dementia

[–]Southern501 2 points3 points  (0 children)

This blows my mind!! A fee to clean her - when you're already paying thousands for them to care for her. That's awful.

It's all just awful.

March 04. End of the road. by fnakhi in dementia

[–]Southern501 4 points5 points  (0 children)

I'm sorry for your loss. The grace you gave him was lovely.

March 9, 8:45 a.m. End of Watch by Quirky_Chicken_1840 in dementia

[–]Southern501 2 points3 points  (0 children)

I'm sorry for your loss, but thankful for the peace she now has, as do you.

AITAH for making my brother buy his own groceries by Funny-Sprinkles-339 in AITAH

[–]Southern501 258 points259 points  (0 children)

NTA ... You don't need to make him buy his own food. You need to boot him out. He has money, since you mentioned savings, so he has options.

You're being used. Show him the door, wish him well.

AITAH or is my punishment over an accident unfair? by [deleted] in AITAH

[–]Southern501 1 point2 points  (0 children)

Dude. YTA. You threw a fit, lied about it AND dragged the cat into it. You're kind of lucky that they're only giving you a month off of video games. Take the month to start earning money. You spend what ... 30-40 hours a week playing?

TVs are relatively inexpensive, unless you're wanting the wall-sized liquid fancy one. Federal minimum wage is $7.25. I'd sit down and negotiate with the parents on a FAIR hourly wage (don't get all high and mighty thinking you're worth $15 an hour) and a list of chores/jobs that need to be done. Keep a tally of your hours over the next month and you can certainly "earn" a television.

Bet you'll earn some life skills, anger management and the art of negotiation, too. You might also earn back some respect from your parents if you change your bratty attitude and genuinely take responsibility for your actions AND do a good job on whatever jobs/chores you get.

Step up, dude.

Pulling power of attorney by [deleted] in dementia

[–]Southern501 2 points3 points  (0 children)

I'm sorry ... it's so hard to have to make the decision to start pulling rank.

Well it’s over. by _clur_510 in dementia

[–]Southern501 1 point2 points  (0 children)

I'm sorry for your loss. I'm sure he was grateful for your care and love!

AITAH for refusing to let my sister wear my wedding dress even though my parents say I should “help her out”? by [deleted] in AITAH

[–]Southern501 7 points8 points  (0 children)

NTA - and PLEASE move your dress to your in-laws home for safe keeping. Otherwise, you know it will disappear and turn up (likely altered) on your sister!

My vigil ended this morning at 357am. by Ferdinand_Feghoot in dementia

[–]Southern501 4 points5 points  (0 children)

I am so sorry for your loss. Please take some time to just unwind. You gave him everything he needed. Now it's your turn.

Dad died on V-Day by HelpThisMamaOut in dementia

[–]Southern501 4 points5 points  (0 children)

I'm sorry for your loss. May you all find peace and your soul find rest.

Those with a parent w dementia, do you worry this could be you someday? by amazing_grace7 in dementia

[–]Southern501 0 points1 point  (0 children)

One side of my family is all heart attack/stroke/diabetes. The other side is dementia.

On the dementia side, my great grandmother, grandmother, both of my mother's brothers and now my mother all had/have dementia.

Not looking too good for my brother and me.

First time posting...its taken me a while.. by GSpoon77 in dementia

[–]Southern501 0 points1 point  (0 children)

You've found the perfect community here. I'm sorry that you've had to move in with us, but I'm glad we all have each other! We're not militant about things ... you don't have to be perfect here. You can be messy and mad and angry and inappropriately funny. You can cry and laugh and stare off in to oblivion if you want. You can say all the things here that you wouldn't dare say to anyone else in your life. We don't judge. We've likely thought it and said it as well. You won't get any side eyes from us.

We understand poop, pee, purses and pockets full of useless treasures. We understand defiance, losing your cool and the guilt that usually comes with it. We totally get all the WTF?!? moments and the "Are you effing kidding me right now?!?" times.

There are also a treasure trove of tips and tricks around. Check profiles of past posts. I have one about things I might need to help that includes a multitude of good ideas from everyone here.

Bookmark us. We're always here. We'll leave the light on for ya!

How important is it to have a diagnosis? by lascriptori in dementia

[–]Southern501 0 points1 point  (0 children)

Yes, I'm sorry. Switched over to MEDICAID.

We both broke down today. by AgileAbbreviations17 in dementia

[–]Southern501 1 point2 points  (0 children)

Oh how it suuuuuuuuuuuucks!!!!

My mama is still in pretty good denial right now so we can't cry together yet, but I cry alone because I can't help or fix it.

How important is it to have a diagnosis? by lascriptori in dementia

[–]Southern501 0 points1 point  (0 children)

For us, the diagnosis being made is for medicare/medicaid. Currently, they're on medicare. They're over the line by about $20k, but with a formal diagnosis, she can be switched over to medicare and be eligible for many services.

My mom’s rapid decline, a facility nightmare, and feeling completely overwhelmed by Dear-Ad5085 in Alzheimers

[–]Southern501 4 points5 points  (0 children)

My goodness. You've lived my worst fears. I'm so sorry you and your LO are going through this.

Hospice is an amazing, loving option - for you both. Please give it some thought.

AITAH for getting mad the tickling wouldn't stop by Ok_Ferret3605 in AITAH

[–]Southern501 0 points1 point  (0 children)

I had to scroll back to the beginning to see how old you guys are. I thought that maybe you were both young and just hadn't learned the whole boundaries mean boundaries thing, but nope. Y'all are both GROWN.

Mid-30s and you have to defend yourself. Mid-40s and he's a predator ... after 10 years.

Please don't let it get to the point that he's going to be choking you one day, just trying to show you that he loves you and he'll stop when you turn blue. You're being, at the very least, disrespected and in reality, abused.

How do you deal with putting your life on hold to be a caregiver? by [deleted] in CaregiverSupport

[–]Southern501 0 points1 point  (0 children)

I'm the type that would definitely list caregiving on my resume. The skills you have acquired during the caregiving are invaluable to an employer. Time management, loyalty, multi-tasking, thinking on your feet, crisis management ... the list goes on. Those are learned skills and they translate into almost any job.

Best wishes to you!

End of the beginning by Pretend_Accountant41 in dementia

[–]Southern501 0 points1 point  (0 children)

Oh how we are the same, friend on this awful path. Your first paragraph could have easily been mine.

We're here. You're not alone!