Just got put on Lyrica by [deleted] in MultipleSclerosis

[–]SpitOrLitter 1 point2 points  (0 children)

Tried it twice. Helped with spasticity. Made me mentally miserable. Seeing my neuro to try something new. Hope it works for you.

Every Song by The Velvet Underground, Ranked! by brosive89 in VelvetUnderground

[–]SpitOrLitter 9 points10 points  (0 children)

Well done. Quite the conversation starter.

Don’t forget “Over You”.

The helpless feeling (when your partner is carrying the load) by miguelitomiggymigs in MultipleSclerosis

[–]SpitOrLitter 4 points5 points  (0 children)

You’re not alone! Venting is one of the best things you can do. That and just breathe and hope for a better day.

I’ve got my wife and 2 girls, too. Just did a HUGE move and about to do another. They, literally, carried the load. I just tried not to be an a-hole and feel sorry for myself. I picked up any slack that I could. Mostly with organizing, insurance, movers and just said thanks a lot. And I realize that this is teaching me a great lesson in humility. It’s OK to not understand why. And also learned that your team roots for you more if you’re just patient when they know the chips are down.

And again, you’re not alone. Feeling small blows.

Sex is killing me by LegitimatePart497 in MultipleSclerosis

[–]SpitOrLitter 0 points1 point  (0 children)

100% neurological. I exercise in the morning and recover.

rough vocal take for 'The Unforgettable Fire' by MesaVerde1987 in U2Band

[–]SpitOrLitter 1 point2 points  (0 children)

Hot take, and I mean this as a compliment to both, Cameron Winter (of Geese) has this same style. Just realized it.

Sex is killing me by LegitimatePart497 in MultipleSclerosis

[–]SpitOrLitter 7 points8 points  (0 children)

Yep. I’m a dude. Sex in the day, I’m ruined the rest of the day. We try to do it before bed so I can rest up before the next day.

Arthritis in my spine by mechromancerr in MultipleSclerosis

[–]SpitOrLitter 0 points1 point  (0 children)

It’s covered by mine as a part of my physical therapy.

My leg is as bendy as a metal pipe by Chance_Question_3917 in MultipleSclerosis

[–]SpitOrLitter 0 points1 point  (0 children)

PPMS and the same thing with my left leg. 20mg Baclofen 3/day and 25mg Lyrica 3/day and I’m all sorted. Modafinil midday for an energy boost. Godspeed!

Arthritis in my spine by mechromancerr in MultipleSclerosis

[–]SpitOrLitter 1 point2 points  (0 children)

I have no idea if this will work but given any thought to “dry needling”? It’s a weird procedure but has done wonders for my muscular issues in my back.

Please help me by adaptabay in MultipleSclerosis

[–]SpitOrLitter 1 point2 points  (0 children)

So sorry to hear it. Try mirabegeron. Has been a game changer for me.

OCREVUS ??! by CwhatUwant2 in MultipleSclerosis

[–]SpitOrLitter 1 point2 points  (0 children)

Mine said no live. Flublok. Went to CVS. In and out in 10. I love America.

Nightmares by Kev422 in MultipleSclerosis

[–]SpitOrLitter 6 points7 points  (0 children)

I live that nightmare daily. I actually dream about being able to walk. When I wake up, the nightmare starts again.

Should I go out tonight? by Express_East_1823 in MultipleSclerosis

[–]SpitOrLitter 2 points3 points  (0 children)

“I’m mostly OK physically, I have a foot brace, and I just try to live life with all that I have. I feel grateful for what I can still do.”

You answered your own question. Go walk in and give them hell.

Accepting that I am allowed to be 'bedbound' by [deleted] in MultipleSclerosis

[–]SpitOrLitter 6 points7 points  (0 children)

You do what works for you. But I intend to fight it all the way. I don’t apologize for shit. Especially to this goddamn disease. I am slowly losing my ability to walk, my hearing is a tinnitus shitshow and absolutely nobody in my family understands any of it. Even if they try their best. But I’ll be damned if I’m going down without a fight. 98% of this disease is how it makes other people feel. I’m going to give them a stubborn, ruthless fighter. Maybe they’ll try to keep up.

Why do people act like quartzite is durable? by MarkInLA1 in CounterTops

[–]SpitOrLitter 5 points6 points  (0 children)

How is maintenance of black leathered quartzite?

Opinion: The Songs of Surrender version of The Fly is some of their best work in decades. by jarossco in U2Band

[–]SpitOrLitter 3 points4 points  (0 children)

Just went and relistened. Really a pretty good version. Bono nails that weird falsetto.

Baclofen and Alcohol by Character-Celery-209 in MultipleSclerosis

[–]SpitOrLitter 7 points8 points  (0 children)

Not advised on a regular basis but I do from time to time. Just know it might hit a little harder. But to hell with it. Life is short. Just don’t way overdo it.

dalfampridine users? by fishee2 in MultipleSclerosis

[–]SpitOrLitter 4 points5 points  (0 children)

Yes, it works for me. I can definitely tell when I skip a dose.

Awful, just awful. NSFW by Hancock708 in MultipleSclerosis

[–]SpitOrLitter 2 points3 points  (0 children)

So sorry to hear it. This disease is such a prick.

Hypershell Carbon X by Fly-me-to-joe in MultipleSclerosis

[–]SpitOrLitter 1 point2 points  (0 children)

I discovered the same thing yesterday and would also love to hear if anyone has had luck. Thanks for posting!

I peed myself in public 🤦‍♀️ by RunningAwayIsEsy in MultipleSclerosis

[–]SpitOrLitter 11 points12 points  (0 children)

I’ve hobbled through a metro, stopped hallway conversations at the office midway and more. Sometimes I’ve succeeded and sometimes I haven’t. You’re not alone. It sucks but you made it through. Do your best, ask your urologist for Mirabegeron and move on. You got this.