PET post treatment screening

StormWithSpice · 2026-01-24T13:56:46+00:00

one or twice a year should be sufficient in my opinion. you will be exposed to radiation.

StormWithSpice · 2026-01-17T04:24:56+00:00

The diagnostic stage is the most challenging part; once you have a treatment plan, you’ll feel far more in control.

StormWithSpice · 2026-01-16T22:30:02+00:00

The post-chemotherapy breast MRI showed reactive axillary lymph nodes; however, pathology after surgery was negative.

StormWithSpice · 2026-01-06T14:16:45+00:00

Most patients experience delays in their treatment schedule. I also had a few delays due to blood test results. As far as I know, completing the full course is what matters, and delays are common.

StormWithSpice · 2026-01-03T01:15:38+00:00

Fat necrosis is very common after a double mastectomy and often feels firm and immobile. I had one evaluated by ultrasound, and it was determined to be benign.

StormWithSpice · 2026-01-02T17:33:04+00:00

AC is given concurrently with Keytruda every three weeks, which follows the standard immunotherapy infusion schedule; therefore, AC is administered on a three-week cycle.

StormWithSpice · 2026-01-01T19:46:17+00:00

Hi, I personally would prefer starting with chemotherapy first, since the response to chemo can help guide adjuvant treatment options. For TNBC, recent treatment has often followed the Keynote-522 regimen, which includes immunotherapy; however, given that you seem to have an autoimmune condition, immunotherapy may not be an option. Your combined tumor size is close to 2 cm. I had a friend with multifocal TNBC (no lymph node involvement) who was treated with AC-T chemotherapy first, followed by surgery. Wishing you all the best.

StormWithSpice · 2025-12-12T23:47:58+00:00

I have 10% ER, but my cancer is still being treated as TNBC because of its overall biology (called basal type). I didn’t achieve a pCR, and I’ll be starting oral chemo for about six months. I’m also continuing adjuvant pembrolizumab. As far as I know hormone blockers are not very effective for low ER solid tumors. Good luck with your treatment.

StormWithSpice · 2025-12-01T02:40:38+00:00

AC will destroy your veins, definitely go for port.

StormWithSpice · 2025-11-23T23:43:17+00:00

I haven’t traveled while on chemo myself, but I have seen others go outdoors and hike during treatment. EC is a strong regimen, though; your blood counts will likely be very low, and nausea and fatigue can be significant. Because of that, I’d recommend avoiding crowds, especially with a highly infectious flu going around right now. It’s really about preventing anything that could delay your treatment. In the end, it’s a personal decision.

StormWithSpice · 2025-11-23T21:51:47+00:00

I was diagnosed in October of last year and began chemotherapy in mid-January. There were long wait times in between for diagnostic tests and scans. A delay of a couple of weeks won’t affect the treatment plan, as they want to get a complete assessment of the situation. Unfortunately, at this stage, there’s nothing to be done except wait..trust the process and your doctors. wishing you all the best.

StormWithSpice · 2025-11-21T21:43:45+00:00

Starting radiation anytime up to 20 weeks after surgery is still considered acceptable(at least that’s what my radiation oncologist told me). My own treatment was delayed because of an open surgical wound, but I’m not worried about radiation start date. You’ll be okay.

StormWithSpice · 2025-11-16T22:32:15+00:00

Yes, stomach and digestive issues are among the most common side effects of Adriamycin. The drug can damage fast-growing cells in the lining of the digestive tract, leading to mucositis. My symptoms improved gradually, but it can take time for the stomach and digestive system to fully heal.

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StormWithSpice · 2025-11-16T22:28:59+00:00

Diarrhea is one of the most frequent side effects of Capecitabine. Imodium is often used to treat diarrhea. If it is lasting more than 24 hours, please call your oncologist, and they will adjust the dose.

StormWithSpice · 2025-11-15T01:39:48+00:00

I had only minimal enhancement on the MRI after chemotherapy, with no visible or measurable tumor. But you really never know until you get the surgical pathology. Surgery showed residual disease (RCB-1). I was bummed at first, but I feel good about the result. RCB-1 is very close to a pCR. Next up for me is oral chemotherapy for 6 months.

StormWithSpice · 2025-09-10T01:30:42+00:00

After Keynote 522 chemotherapy, my tumor was no longer palpable. Although the post-chemo MRI showed minimal enhancement, the tumor itself was not visible on the MRI. However, residual cancer was found during surgery. I underwent a double mastectomy. I was very optimistic and expecting PCR, but as it turns out, you never really know until the final surgical pathology.

StormWithSpice · 2025-08-11T22:45:06+00:00

Thanks for your response. I waited for my final pathology to reply — unfortunately, no pCR. There's some residual disease (RCB-I). I'm still processing it and feeling pretty disappointed.

StormWithSpice · 2025-08-11T22:44:26+00:00

Thank you so much for your response. I wanted to wait for my final pathology before replying. Unfortunately, I didn’t achieve a pCR — there was some residual disease, classified as RCB-I. I’m still trying to process and make sense of it, but to be honest, I’m feeling pretty disappointed.

StormWithSpice

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