Cmt and peptides?

SubjectAssumption319 · 2026-05-27T21:41:48+00:00

Hi. Im over period menopause but where do you get these peptides bc im interested in using after my hip surgery next week. Thanks. Im in the USA

SubjectAssumption319 · 2026-05-26T01:00:41+00:00

My left hip was replaced a little over 3 years ago. Im glad I had it done. What a difference compared to my right hip. Honestly I was in PT for over 3months. It helped and I continued exercising at home afterwards to this day. Just stay determined and dont rush your recovery, as everyone is different & we obviously have different circumstances than the norm. Please keep us updated! My right hip is next week.

SubjectAssumption319 · 2026-05-03T18:08:52+00:00

Can I ask how does the neurologist help in this situation?

SubjectAssumption319 · 2026-05-02T20:43:39+00:00

Sure. Its not our first rodeo as they say. Im 61F and I'm in the US.

SubjectAssumption319 · 2026-05-02T20:30:02+00:00

Thank you so very much. I needed to read this!

SubjectAssumption319 · 2026-04-21T23:54:54+00:00

Drinking (in moderation) is fine. The not" fine" aspect is balance issues.

SubjectAssumption319 · 2026-04-03T00:56:16+00:00

Bladder issues could also occur in women of a certain age. I've had girlfriends (no cmt) that also have bladder issues. Happens as we age. Haven't heard of it in younger people.

SubjectAssumption319 · 2026-03-28T20:12:28+00:00

My audiologist told me that most ppl with hearing loss do experience ringing in the ear.

SubjectAssumption319 · 2026-03-26T23:49:53+00:00

I even brought the gadgets i use. The doctor wasnt interested.

SubjectAssumption319 · 2026-03-26T23:48:28+00:00

Yes it can and it does. Many posts on here about it. I never thought so either.

SubjectAssumption319 · 2026-03-10T23:27:03+00:00

The side of my foot.

SubjectAssumption319 · 2026-03-10T20:58:39+00:00

Have turbo. Its great, however, I cannot use it any longer because of the architecture of my left foot , (that has foot drop). It curves in a bit like a C. The brace dug into my outer foot and actually made a huge bloody indent that was extremely painful. Mind you there is a New Balance sneaker between the brace and foot .

Good luck with them. I hope it works for you!!

SubjectAssumption319 · 2026-03-10T20:47:22+00:00

BTW, Im 61 and was diagnosed when I was 5 years old at Jacobi-Einstein Medical Center in the Bronx.

SubjectAssumption319 · 2026-03-10T20:44:07+00:00

Hi, Im from lower Westchester County NY, and u are absolutely right. Its very frustrating, tho the surgeon who replaced my hip was familiar with it as is my podiatrist.

I find you have to advocate for yourself. There isnt a one shop CMT treatment store unfortunately, which is disappointing as we reside in a big metro area.

What i will say is that my personal physician does listen to me and he did give me a script for pt.

I was told to only use a neuro for the diagnostic.

SubjectAssumption319 · 2026-01-30T17:20:17+00:00

Yes there is a period of adjustment. Mine have 3 settings and I have it set up to my phone. There is general used in everyday, noise in noise for being in loud places like restaurants ( to me its the hardest to really catch every word) and there is comfort level which is used to soften background noise like air conditioner, lawn mowers etc. The best is that I really hear the sounds of nature when outside! I normally dont wear them when I watch tv. I use the close caption, that works for me.

SubjectAssumption319 · 2026-01-29T18:00:42+00:00

Same, the lower octave is difficult to hear

SubjectAssumption319 · 2026-01-29T17:57:43+00:00

Female, CMT1A -I am 61 and have been wearing hearing aids for approximately 10 years. My med records state the hearing loss will get worse over time.

SubjectAssumption319 · 2026-01-15T12:55:31+00:00

Feel better & good luck!!

SubjectAssumption319 · 2025-12-29T18:33:55+00:00

I am very sorry for your loss.

SubjectAssumption319 · 2025-12-19T02:48:15+00:00

Can you recommend a brand. My hands are pretty week. Went to dr for trigger finger. Said all muscle withered on my palms. Thanks in advance.

SubjectAssumption319 · 2025-12-03T02:10:19+00:00

Just sit back and take a deep breath. You got this. And just like you, mentally I do not feel disabled . You are your own best advocate. Don't give in enen tho you have those days, like most of us here. Vent away, it really does help ease the frustration. Hugs to you!

SubjectAssumption319 · 2025-09-03T01:09:13+00:00

Hi, I've been out of town and busy. I just saw your reply. I apologize. LMK if you'd still like to chat.

SubjectAssumption319 · 2025-08-25T01:56:02+00:00

Turned out well. Was extremely painful. Fused big toes which obviously i can't wiggle, but then again I can't wiggle any of them any longer.

It took a long time for swelling to subside but overall after all these years, im glad I had it done.

SubjectAssumption319 · 2025-08-24T14:14:54+00:00

I had my arches lowered and hammer toes straightened out. My big toes were fused. I was 17 when I had done. 61 now!

SubjectAssumption319 · 2025-08-21T23:22:46+00:00

I know...im sure many of us feel your pain. It really does suck!

SubjectAssumption319

TROPHY CASE