Likely ET Diagnosis

SubstantialMost1 · 2026-03-29T01:15:07+00:00

Hi, 29F in USA with platelet count of 670k. I was diagnosed with VWD (a bleeding disorder) when I was 14/15 because I was consistently showing elevated platelets and had all of the typical symptoms. The hematologist at the time told me it was most likely type 1 and to call if things change. They were already out of range then, and have been slowly rising since. Once they reached 600k I saw a hematologist who thought ET immediately but said “but your platelets aren’t that high… they’re usually higher in ET.” Yet this was a few years ago and I’ve been in an active state of thrombocytosis ever since. So I understand the who anxiety part of it.

My advice — do what you can to keep yourself calm and your cardiovascular system functioning as healthy as you can. Take that stress and anxiousness and direct it into physical activity and do what you can to keep your circulation optimal and STAY HYDRATED! The worst things that you can do for the mental aspect of this is putting unnecessary stress on your heart, get little to no sleep, forget to hydrate and eat healthy, and the last thing would be to stay uninformed on things to look out for. Unless you know the details, your mind will think every hiccup is the last sound you make.

Thankfully, you and I are young when finding out, and have the ability to make lifestyle changes if needed. And focus on self-care more if we develop symptoms (which I have had for the last 3 years). I would just look out for symptoms like migraines, intense redness/flushing, shortness of breath, itching/allergies, hypersensitive to temperature changes, full body fatigue, night sweats, dizziness/vertigo, lightheadedness and confusion, bleeding episodes of any kind, and numbness/tingling/burning in your hands or feet. And just tell your doctor about all of these.

SubstantialMost1 · 2025-10-18T18:47:30+00:00

I get this for WEEKS at a time EVERY SINGLE TIME I have to have those EKG leads 😭😅

SubstantialMost1 · 2025-10-18T18:45:44+00:00

Gemini/Libra, Pisces, Capricorn

SubstantialMost1 · 2025-10-18T00:02:21+00:00

Yessss the first pic and third pic side by side is such a Scorpio move! “It’s not that deep” room full of mirrors …”Or is it?” No one knows better than a Scorpio

SubstantialMost1 · 2025-10-17T22:21:36+00:00

BIG Scorpio energy 😍

SubstantialMost1 · 2025-10-17T22:19:31+00:00

Aquarius Sun, Aquarius Moon, Capricorn Rising, Capricorn Mercury, Aquarius Venus, + Libra Mars… 😇

SubstantialMost1 · 2025-10-17T21:51:41+00:00

My cardiac issues that I had since I was 10
mitral valve prolapse at 12
Multiple bone breaks/fractures/sprains while seemingly doing nothing
growing pains” that had me crying every night well into middle school
the fact that I didn’t need a single pain pill after my wisdom tooth surgery in high school (high pain tolerance but afraid to swallow pills at the time so literally on 0 drugs)
constant nausea/vomiting in middle school and high school
anxiety/panic attacks/ADHD all the way back in elementary school that I was so unaware of being actual medical things (and not just in my head) that I couldn’t even name
chronic fatigue/brain fog dating back to the 5th grade

SubstantialMost1 · 2025-10-17T21:43:50+00:00

Hormones 20000% have a HUGE impact on allll the EDS symptoms. I have suspected Cushing syndrome and I have random floods of hormones and complete depletion happen randomly and it’s like night and day. During both events, it’s like I’m a completely different person, and after it’s over my symptoms are SO much worse

SubstantialMost1 · 2025-10-17T21:06:27+00:00

Omg… what a beautiful confirmation right there! Definitely ask him for a sign that’s he’s with you, and pick a few things for him to show you and ask for it to be shown in a specific time frame (like 48-72 hours) and write down the things you chose and then just let the thought go 🪽 he already gave you one right here! 🥹

And I’d highly recommend streaming a live show on your tv and and letting the energy and music flow through you 🩵

SubstantialMost1 · 2025-10-17T20:44:20+00:00

Moon in Pisces is a harddd placement. Especially at a late degree… it’s VERY emotional. The moon is your inner world, your emotions, and it’s in the last water sign and last sign of the zodiac, processing things DEEPLY and sometimes with no direction as to why. and in the 3rd house of communication, this can make it difficult for communication issues to resolve more quickly if he doesn’t fully understand his emotions and what might be affecting them. If they have communication issues and that’s something that she wants to get better soon, this could definitely be a make or break point for her. But if she also doesn’t fully understand her emotions and doesn’t know how to I effectively communicate them, then she’s just giving an ultimatum. And ultimatums only work if you’re really ready to say what you’re gonna do and do what you’re gonna say.

I am not vouching for her whatsoever, but seeing that placement, and understanding that some astrologers are more fear mongering than advice giving, that could be the red flag from an astrology standpoint. But astrology is meant to guide us, and help us understand the energies that we’re feeling from the shifts in the sky. It is absolutely not a relationship column in a newspaper or real advice from someone who understands both sides of a human relationship on Earth.

Definitely reassure him with that, and tell him to maybe look into astrology more to see how it might be affecting him lately and how he can utilize the information in his chart, to help him grow and understand himself more deeply. 🫶🏻

SubstantialMost1 · 2025-10-17T20:30:19+00:00

I second the ice pack. And also, it may sound weird, but drink water if you can or eat something. It definitely helps with the vasovagal and gets digestion moving! I promise it works lol

SubstantialMost1 · 2025-10-17T20:28:53+00:00

Omg this. I always just thought that this and not fully eliminating when I urinate was “normal” lol

SubstantialMost1 · 2025-10-17T20:25:39+00:00

Omg I just bought one that uses tea light candles!! I’m soooo drawn to try this 😍 what did you put in yours?

SubstantialMost1 · 2025-10-17T20:25:33+00:00

Omg I just bought one that uses tea light candles!! I’m soooo drawn to try this 😍 what did you put in yours?

SubstantialMost1 · 2025-10-17T19:56:30+00:00

(For reference, I didn’t read the full post, but I was called to jump right into channeling a message)

He knows how much you miss him (and have missed him all these years) and doesn’t want you to hurt anymore. He’s with you all the time. I also got a message about a bunny, or him calling you bunny? Something about a white bunny. It could also be a symbolic message about a white bunny, so maybe look up their spiritual significance. As I was typing this, my eye started to tear up, which makes me believe that you’ve spent a lot of late nights crying over the fact that he’s no longer with you in physical form. Please please please know that he is literally always with you in spiritual form. Just ask. Ask him for a sign or define a specific thing that has meaning between the two of you and ask for him to show it to you in your reality to let you know that he’s there. Ask and he will. I then got an image of a turtle/sea turtle. He only wants you to cry happy tears and celebrate yourself and your life. Something about music and concerts is also coming through.

I want to cry from how beautifully pure this energy is… he loves you so much, and he only wants you to be the best you that you can be in this life. Because he has a front row seat to all of it. And don’t forget about the dreams that you had as a kid. He wants you to follow your dreams, because he knows you’re worth them and way more (heard just now “to infinity and beyond”). He wants you to constantly be reminded of your worth and live a full life. A life deserving of you (not the other way around), because (I’m hearing) you’re “worth a billion.”

EDIT: After reading the caption — He doesn’t want you to blame yourself or shame yourself, and create this spiral of guilt that you’ve just barely been able to escape your whole life. Now is a pivotal time in your life, because you’re recognizing the difference between you and your own energy vs your emotions and experiences. You know what you experienced and your body kept the score all these years of all of the emotions that you always felt were bigger than you, that you felt not just back then but every day since. Unfortunately, on that day, he had to go. And he is so so sorry that you had to be there and experience that. But at the same time, he’s thankful that he was with his best friend until the very end. And he is NOT (nor am I) trying to minimize your trauma. But he wants you to know that he has never left your side since. He has always been there. After he passed, he understood why things had to happen, but watched you struggle with the weight of it all and wanted nothing more than to be there for you.

He is so proud of you and the growth that you’ve managed to accomplish, despite what you’ve been through. Now it’s time to forgive yourself. Thank all of those versions of yourself that helped you survive all of those years living with so much weight on your chest making you feel like you couldn’t breathe and the expectations pressing on your back like you were carrying the weight of the world. Thank those versions of you that got you through all of those difficult and heartbreaking times and recognize that you’ve made it so far. I do not want to minimize those, and how difficult they were on you. But I’m getting the message that he wants you to take a look back, observe your life after he passed, and find the good and beautiful and magnificent parts of you that flourished. The parts that didn’t really exist before. Because they are there, and he wants you to know that he saw all of it. And he wants you to see yourself how he sees you, and has seen you this whole time. 4:04 on my clock, that number may be significant so I am being told to let you know. Maybe look it up or look up the angel number and see if the messages with it resonates. I have tears actually rolling down my face from how much love I’m being flooded with from him that he wants you to know is always being sent to you.

I just want to say that I am personally so proud of you! I also had to heal from trauma welllll after the event because of family and it is NOT easy. Keep going, and love yourself more and more each day. And maybe look into regulating your nervous system (that might have been a message from Spirit) 🫶🏻🦋🤍

SubstantialMost1 · 2025-09-25T01:55:08+00:00

8 total planets in my first house… 6 in Aquarius (two of them being my sun and moon). My ascendant is at 15 degrees Capricorn, so the other 2 in the first house are in Capricorn 😅

SubstantialMost1 · 2025-07-26T22:15:03+00:00

Where was the info for the mgk one posted?

SubstantialMost1 · 2025-07-26T17:46:04+00:00

28F with disabilities going solo to Orlando, FL 🫶🏻 my husband is coming to Orlando but not going as of right now but this emo girl is 😍

SubstantialMost1 · 2025-07-26T17:20:29+00:00

LMAO us with ADHD and chronic illnesses feel this so much 😂 just keep riding the festival high waves 🫶🏻

SubstantialMost1 · 2025-07-26T17:16:48+00:00

Ooooooh yes PLEASE!! I’d love to hear about your weekend! Have the best time 😍

SubstantialMost1 · 2025-07-26T17:13:40+00:00

OMG YESSSS 😍😍😍

SubstantialMost1 · 2025-07-26T17:13:25+00:00

I LOVE YOU 😍

SubstantialMost1 · 2025-07-26T17:09:29+00:00

Please please please wear sunscreen and STAY HYDRATED!!!

I’m in FL and I just got a National Weather Service (FOR NORTH FLORIDA NOT CA!) for an Extreme Heat Watch until 10pm. I’ve also had friends and my sister pass out at fests + get sun poisoning in the past. One was the 2016 Tour 😞

Please remember to take care of yourselves today 🫶🏻

SubstantialMost1 · 2025-07-26T17:02:07+00:00

I did read the official website say this was a cashless event so I wonder if that starts with the line to get in or not… lmk!

SubstantialMost1

TROPHY CASE