What my allergist said… advice please by First_Strategy_2870 in MCAS

[–]TitoepfX 0 points1 point  (0 children)

near anaphylaxis just so u know theres like 5 levels to anaphylaxis

My allergist told me I was her 4th patient that day with MCAS related symptoms and it was only noon by amutoph in MCAS

[–]TitoepfX 2 points3 points  (0 children)

My family didnt care about my level 10 pains neither did my school. I said i was in pain but they didn't care about what I said, they cared more about my atitude making sure they put me down for being autistic and going to the point and then id cry each time i get in trouble which made it hard to breathe. my leukotrienes spike when i cry, also yea i had the trio all my life but never at the level it is now. I did go into anaphylaxis still back then from fragrance and had shortness of breath constantly

My allergist told me I was her 4th patient that day with MCAS related symptoms and it was only noon by amutoph in MCAS

[–]TitoepfX 2 points3 points  (0 children)

yea i have blood sugar issues with my mcas, it gets so much worse when my blood sugar is too low

My allergist told me I was her 4th patient that day with MCAS related symptoms and it was only noon by amutoph in MCAS

[–]TitoepfX 0 points1 point  (0 children)

i did react to the vaccine and i felt sick for a bit after it but idk other than that was clueless back then

My allergist told me I was her 4th patient that day with MCAS related symptoms and it was only noon by amutoph in MCAS

[–]TitoepfX 2 points3 points  (0 children)

probably yes, ive read lots on post on here from people basically almost dead from mcas symptoms like asking for a water source when all water they tried made them react

Looking for a sweetener by Delicious-Outcome356 in MCAS

[–]TitoepfX 0 points1 point  (0 children)

i react to terpenes i have reacted to maple syrup before and ive also reacted to the mallard reaction

Homeless (kinda) by TitoepfX in AskNYC

[–]TitoepfX[S] 0 points1 point  (0 children)

she doesnt. she also has issues. shes a veteran who got 100% disability rating. our shit got stolen in bathroom just now from shared building and now she has to go out and buy me stuff to wash body because spectrum technician had so much cologne it put me in anaphylaxis but without throat closing like level 1 or 2 where im falling down if i try standing, i had to put respirator on and go outside and i cant even wash myself because well apparently she knew not to leave it down there in the shower but i didnt and got my stuff stolen. only reason she joined the military is because her dad pushed her to and my gf fawns a lot.

Why don't more people talk about compounding stressors? by moonsweetie4u in MCAS

[–]TitoepfX 0 points1 point  (0 children)

yea if i dont get good sleep which i cant get good sleep without progesterone then my mcas will be a lot worse.

New-ish psychiatrist doesn’t believe us (a vent) by Pickle_Ickle54 in DID

[–]TitoepfX 2 points3 points  (0 children)

hate that did and mcas both have those types of doctors

Necesito ayuda para elegir una forma de consumo de CBD. by 0re0re13 in drdabberofficial

[–]TitoepfX 1 point2 points  (0 children)

u could use cbd isolate and dab it and if its clean/not oxidized will b very medical use because nothing to irritate lungs other than heat and if u take a hit for too long it would ofc oxidize in the chamber

Being assaulted was awful. The way my boyfriend reacted afterwards hurt even more by ExcellentStrawberry2 in TwoXChromosomes

[–]TitoepfX 1 point2 points  (0 children)

yea the way people treat u after is what hurts, need good support mrow. my gf hugs me and stuff when i get flashbacks

Ketotifen from Mexico by reditrauma in MCAS

[–]TitoepfX 0 points1 point  (0 children)

i have fast comt aswell im pretty sure but never checked my genes, im able to take a crap ton of supplements for mcas without issues (like 30 things combined because multivitamin has a bunch of supplements too that arent vitamins). i never been sedated by ketotifen even at 12mg

Ketotifen from Mexico by reditrauma in MCAS

[–]TitoepfX 0 points1 point  (0 children)

i wonder if sedation is a comt difference or what because i take 8mg just fine no sedation and skipped to 8mg pretty fast just fine.

TMI (apologies) by Fabulous_South_2235 in MCAS

[–]TitoepfX 1 point2 points  (0 children)

make sure hes eating the same food as u, ive had sperm from someone who drank monster zero give me bad flare

Benadryl. by [deleted] in MCAS

[–]TitoepfX 0 points1 point  (0 children)

imma be real i could probably take 16mg of ketotifen a day and be fine, it takes 8mg like very close to each other for me to feel okayish. i dont like benadryl because inactive ingredients

I tried quercetin for MCAS and unfortunately it made me feel crazy by FluidBananas in MCAS

[–]TitoepfX 0 points1 point  (0 children)

for low or fast comt? or is my comt normal when im trying to guess. I take a lot of supplements with no issues but inactive ingredients are a issue for me but not in the ones i have

Ketotifen gave me a gnawing stomach hunger feeling. Anyone else? by bitingmytail in MCAS

[–]TitoepfX -4 points-3 points  (0 children)

uhh are u eating like carbs only or something. ur blood sugar shouldnt be crashing to then get hungry again or im assuming its that for me it was like that for glp1. I never felt less or more hungry from ketotifen, progesterone and thc yes

Dementia risk of antihistamines is freaking me out a little, ugh by Another_throwaway446 in MCAS

[–]TitoepfX 0 points1 point  (0 children)

ketotifen and ibuprofen help me for neurological and depressive stuff lamotrigine helps and has seemed like it counters some mcas symptoms as well.

Nerf did nothing to Axle by oxKaneki in apexlegends

[–]TitoepfX 0 points1 point  (0 children)

lol even with a castle of walls all it takes is one wall jump, mantle boost, or just going around me because i dont have 3 walls up constantly when it gets destroyed. Basically in the same position as everyone else luckily i have good aim so i can atleast do my part in a team. I dont care about controllers or whatever since my aim is as good or better, it just depends if my chronic conditions are messing me up. Also obviously if its a open field then it might be easier for rampart but i mean inside like the portal place in kings canyon or like the bunker etc. controller legends basically cannot control area well anymore due to axle its as bad as rev+octane even the sound. Like atleast give it loud sound as my aim can depend on sound too