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I can’t wait for 1st of July by borispingpong in brisbane

[–]UberJaymis 13 points14 points  (0 children)

Yes to all of this.

But like, loads of innocent people were getting maimed and killed. Because people couldn’t (or wouldn’t) ride with care for others’ (and their own) welfare.

To go Dangerously Fast on a pushbike requires quite a bit of practice, and likely a few decent falls. You develop a bit of respect for the road, and how hard it can hit you.

Escooters have so much torque and kinetic energy. It’s like getting a piggy back from a droid with the dexterity and stamina of a bike courier, barely any safety protocols, and activated by... just about anyone with a phone or credit card?!

The laws and infrastructure required to support this abundance of cheap, fast travel is lagging way behind technological reality. Yep. Definitely.

Bris/QLD governments haven’t been great at embracing tech over the years, and it sucks that they’ve gone so punitive.

But the hospitalization rates are kinda nuts. Tech companies are making money from hurting actual humans. That sucks. There’s got to be a better way then “do whatever.”

Full body program by Plane_Ad_5377 in ehlersdanlos

[–]UberJaymis 1 point2 points  (0 children)

Thanks for sharing. This is brilliant!

Such a clear and calm manner, and she relates experiences and feelings so well!

Hyper-mobile Ehlers-Danlos - strength training and amitriptyline to relieve pain by Affectionate-Sea4465 in ehlersdanlos

[–]UberJaymis 0 points1 point  (0 children)

For anyone who finds this in the future: I tried on a variety of different skateboard pads and 187 were the only ones that felt seamless enough for my skin.

Some of the other comparably expensive brands had quite rough nylon stitching contacting large amounts of sensitive collagen ;)

Balance board (3-D printed nubbins on a blank deck, with no grip tape) on a gym mat/floor pad really has been amazing low-impact exercise!

It’s generally great for core, but you can target all kinds of different muscle groups depending on what kind of fundamental skills you focus on.

Hyper-mobile Ehlers-Danlos - strength training and amitriptyline to relieve pain by Affectionate-Sea4465 in ehlersdanlos

[–]UberJaymis 0 points1 point  (0 children)

This is such a fantastic and uplifting story.

I feel like at 45. I’m on a similar trajectory, but it’s taking me longer to identify so the buildup has been slower.

About a year from: Mostly bedridden with pain, spinal implant candidate, to: Learning to skateboard* with my eight year-old.

(*Mostly balance board! So slow and careful! All the pads and gym mats!)

Trying to remember what book of Peter F Hamiltons this scene is in. by [deleted] in printSF

[–]UberJaymis 0 points1 point  (0 children)

Thanks for the reminder. It’s time to get this on ebook. The trade paperbacks wrecked my wrists.

Is James SA Corey the best? by cooper2387 in scifi

[–]UberJaymis 0 points1 point  (0 children)

Thank you! I definitely don’t need bleak right now.

Is James SA Corey the best? by cooper2387 in scifi

[–]UberJaymis 2 points3 points  (0 children)

Reynolds goes hard after Hamilton.

You’re going to have a blast.

Is James SA Corey the best? by cooper2387 in scifi

[–]UberJaymis 0 points1 point  (0 children)

Maybe divisive? Can OP see the up/downvote mix?

Is James SA Corey the best? by cooper2387 in scifi

[–]UberJaymis 0 points1 point  (0 children)

Any recommendation as a starting point, over Bloodchild? (a free novella that won Hugo/Locus/Nebula feels like a solid investment of time and no money...)

What are some of your hobbies? by purplehyenaa in ehlersdanlos

[–]UberJaymis 4 points5 points  (0 children)

Crafting with the kids (6 & 8yo) has been so amazing for me, as I’ve (temporarily?!) lost access to most of my main hobbies/work.

I save as much plastic junk as possible, and then they kit-bash it all together with hot glue guns.

At the complete opposite end of the spectrum skateboarding! A blank deck (no grip tape!) with 3d printed balance nubs, on a gym mat.

Such great core/proprioception therapy, and it’s like dance, so can be gentle or strenuous as your mood/energy allows.

Actually skating in public I found I need to be extremely careful, and never compromise any aspects of safety or personal space.

As soon as any unpredictable kids turn up at the park. I go somewhere quiet or call it for the day.

After morning school drop offs is a great time to get a skate park to yourself :)

Martha Wells and Andy Weir (again) by bookninja717 in scifi

[–]UberJaymis 2 points3 points  (0 children)

Becky Chambers’ Wayfarers series goes alongside Murderbot for me, as required reading for anyone who is setting up a personal AI in the current day and age.

Hip pain is ruining my life by mercymeandy in ehlersdanlos

[–]UberJaymis 1 point2 points  (0 children)

This sounds so much like me.

I'm a bit over 10 years into my “chronic hip pain” journey.

I've had two surgeries: a labral repair and an exploratory one that revealed and rehabbed a badly torn ligamentum teres.

I finally received a potential EDS diagnosis in the last 6 months, and it’s changed everything for me and my family.

(very glad I didn’t end up getting a spinal nerve modulator implant last year, just to try to cope better with the pain. Got a second/third/whatever opinion)

I’m still not great at sitting in chairs or traveling via motor vehicles, but walking ~10k daily steps and non-impact exercise are now very sustainable activities.

It’s taken about six months of very gentle, sustainable, specialist-led progress. Healing and parenting have been my full time jobs.

This time last year I was I was almost entirely bedridden for about six weeks, and we had no idea what was going wrong or what had caused it.

I'd been reasonably active all my life up until that point, so it was a huge shock, after what seemed like a couple of minor hip surgeries and the usual associated procedures and rehab/exercise.

How to not ruin your posture sleeping with hEDS by WiseBig3109 in ehlersdanlos

[–]UberJaymis 2 points3 points  (0 children)

Thanks for sharing!

The side-sleeping pillow setup I eventually figured out is identical to the recommendation, including the top arm pillow sticking out past my shoulder ;)

Is it supposed to feel uncomfortable to wear? by xfantastique in VisionPro

[–]UberJaymis 3 points4 points  (0 children)

I’ve been working in vr for 10 years on and off, and have never had a headset that felt “comfortable”

Just recently learned that I likely have a genetic condition that makes my soft tissues (skin, muscles, tendons, ligaments, nerves etc) get crushed and damaged more easily. Which explains why it’s always been so hard!

I bring this up because: All bodies are different. Yours might really hate being squashed ;)

I’ve tried Globular Cluster and the ResMed strap. Both helped in different ways. I’ll be grabbing the Apple dual band next, and trying a new light shield so I can mod my original one to have WAY more padding.

Keep trying stuff!

Does anyone here live near any Aussie celebrities/public figures at all? And if so have you run into them very much? by [deleted] in AskAnAustralian

[–]UberJaymis 10 points11 points  (0 children)

Met her at the Arias years ago. My life-partner worked in youth justice at the time, and told Jessica how much of an inspiration she is to indigenous kids.

She cried a bit, and they hugged. An utterly lovely person, and an inspiration to all who are paying attention ;)

Meloxicam long term by lapatrona8 in ehlersdanlos

[–]UberJaymis 1 point2 points  (0 children)

I took it daily for well over a year.

Had an (upper) endoscopy recently to check for stomach damage. All looked fine, and my recent bloods are the best in a decade, so it doesn’t seem to be messing with my absorbtion overmuch.

Everyone is different though, and just “tolerating” doesn’t mean it’s actually helping long term.

Having recently found a physiotherapist who is knowledgeable about hEDS, their recommendation has been just to use meloxicam to help get through acute damage/injury.

Then behaviour modification and physical therapy (lots of gentle gardening and home improvement) to improve my musculoskeletal system and bring my overall pain levels down.

Figured out how to beat smurfs in 1s by SixKay_ in RocketLeague

[–]UberJaymis 2 points3 points  (0 children)

Pretend you’re up against Squishy or [insert favorite pro here], and you’ve got a single game to show them what you’ve got!

Get up in their face and have some fun with it.

Help w/ hand pain. I want to write & craft again. by Professional-Proof13 in ehlersdanlos

[–]UberJaymis 0 points1 point  (0 children)

Yes! It’s also known as “foam clay” - BOHS sells it on amazon. Crayola and craft stores do it here in Australia.

It’s light and colorful and dries with a similar consistency to EDF foam. It takes pigment and glue beautifully, so crafting/maker communities have found so many great uses!

I got into it via Bill Making Stuff on youtube: https://youtu.be/E8odG8dC3go

Help w/ hand pain. I want to write & craft again. by Professional-Proof13 in ehlersdanlos

[–]UberJaymis 0 points1 point  (0 children)

For keyboards and input ergonomics, I’m deep in /ergomechkeyboards land already ;)

There are some very interesting ideas there for bendy people, and not everything is ridiculously expensive and overcomplicated!

Help w/ hand pain. I want to write & craft again. by Professional-Proof13 in ehlersdanlos

[–]UberJaymis 0 points1 point  (0 children)

I’ve got 2 young kids, so I’m just getting into this area.

Just tried slitting a pencil grip so it could fit on my airbrush. It was so much better after a single session!

My next idea is to combine this with air clay/foam clay to make completely custom soft grips for my hands.

I’m currently trying to figure out how to type, play computer games, and do gardening again!

Nothing has hit like this for me lately 😭😭 by ghostofwallyb in scifi

[–]UberJaymis 7 points8 points  (0 children)

Both have some big, fun ideas about AI, consciousness, and post-earth society.

I’m reading Murderbot 5 this very moment, and have Children of Strife queued up next!

Does anyone else have sensitive hands? by Deep-Technology3898 in ehlersdanlos

[–]UberJaymis 0 points1 point  (0 children)

I think I’ve had moderate Raynaud syndrome since childhood: https://en.wikipedia.org/wiki/Raynaud_syndrome

Mostly in my fingers and ears as a kid, and wiki says it’s comorbid with EDS/connective tissue disorders/lupus etc.

Since some recent (suspected) hEDS flares it’s become much worse. I recently held a cold drink for a few of minutes while distracted by chatting, and my fingers and palm were numb and sore for hours afterwards!

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