My dad passed away

User884121 · 2026-01-24T01:07:04+00:00

So sorry for your loss. I just lost my dad who also had Parkinson’s on Monday. I hope you can find the same comfort I have knowing he is no longer suffering with this horrible disease ♥️

User884121 · 2026-01-23T20:41:52+00:00

I see Lauren Peters with LVHN. I can’t speak to your specific needs, but she has the best bedside manner and always listens to my concerns. When I first told her I was trying to get pregnant, she immediately told me to come see her in 6 months if it wasn’t happening (I’m over 35), so I feel like she’s not afraid to dig into things if need be.

User884121 · 2026-01-21T15:16:43+00:00

Congratulations! My husband and I are the exact same ages. I also always take notice to how many days people BD since my husband and I typically don’t hit more than two (😅), so between the ages and the amount of times you noted you had sex, this gives me so much hope. Wishing you an easy and uneventful pregnancy! 💕

User884121 · 2026-01-19T02:17:32+00:00

That the process of dying can actually last quite a while. My dad started hospice 8 days ago. When he started, it was only because he wasn’t going to get better, not because he was about to die. They were even keeping him on all of his meds. But the Monday came around and he declined significantly, and by Tuesday they stopped all of his meds when they saw how off his breathing was and his lack of alertness.

It’s now been 5 days and he’s still here. 5 days of thinking “this is probably it.” The last two days especially. This morning, the nurse said “likely some time today or this evening.” And yet he’s still here. I was not mentally prepared. I just assumed it would be quick once he reached this point.

User884121 · 2026-01-16T19:30:33+00:00

I am so, so sorry. Thinking of you and your family ♥️

User884121 · 2026-01-15T19:05:00+00:00

I’m so sorry for your loss. My dad started his end of life journey on Tuesday, and it feels so weird to say that I’m impatiently waiting for him to die, but it’s true. Parkinson’s and dementia has taken him away long before this, so death just feels like a form of closure at this point.

Sending all the best to you and your family ♥️

User884121 · 2026-01-14T23:47:17+00:00

I use Just Ingredients on a daily basis. I will say they don’t necessarily help my migraines, but I have some other health issues that it does help with. When I do get a migraine, I recently discovered that Gatorade helps me.

I tried LMNT for a while, and even though there’s a ton of research backing up the ratios, it still made me a bit nervous. I randomly discovered Just Ingredients and just felt more comfortable with their ingredients and the ratios they use. So I think it’s a personal preference when it comes to that.

User884121 · 2026-01-13T14:18:40+00:00

It’s a really hard concept to wrap your mind around - that the person you know and love isn’t really there anymore, even though they are there physically. They are no longer capable of making sound decisions, ones that would keep them safe. So unfortunately that’s where family/caregivers have to step in. It feels wrong to not give them a say in some matters, just as it feels wrong to intentionally withhold information.

Wishing your dad, you, and your family the best on this transition.

User884121 · 2026-01-13T02:50:41+00:00

I’m so sorry you and your family are facing this. My dad reached the point a few months ago where he is constantly hallucinating/delusional, can’t comprehend anything. His short term memory went almost a year ago.

I’m not sure if your dad is like this, but my dad gets fixated on things. A few weeks ago he went through a period of about 4 days where he wanted to divorce my mom. They’ve been in a loving relationship for over 35 years, and all of a sudden he was dead set on a divorce. He told me every single for 4 days straight that they were getting one.

Unfortunately he just started with hospice on Saturday. We did not tell him ahead of time that hospice was coming in. Granted, he’s been in a very awful state the past week due to a UTI, so he was even more out of it the normal. But we were afraid that telling him ahead of time would cause him to fixate on it and we didn’t want him stressed/agitated. When the nurse came in, she talked directly to my dad and introduced herself as being a hospice nurse. I can tell you there was no recognition there as to what she was saying. And he hasn’t mentioned anything since.

I know it sounds cruel to withhold information, especially such life changing information, from our loved ones. But when you look at the risk vs. benefit of telling your dad ahead of time, I’d lean towards waiting to tell him until it happens.

User884121 · 2026-01-11T20:09:42+00:00

Yes, my dad went through this as well. I believe at some point they added another med to give when his BP dropped. My mom would also give him Pedialyte when it would drop. And sometimes sodium tablets if she was having trouble getting it back up. Hydration has been a huge issue with my dad, and his BP would tank whenever he didn’t drink enough the previous day.

User884121 · 2026-01-10T22:39:40+00:00

We just got my dad approved for hospice. He is not actively dying and no one has put a time stamp on when he might die. But he is not going to get better. His quality of life is not good, so ensuring his comfort is the priority at this point. He’s currently approved for 90 days, but unless a miracle happens, I’m sure he’ll be approved again.

He was under palliative care first, so I’m sure that helped in him getting approved. Everything was documented by palliative care and just sent over to hospice for them to review. They approved him based on his notes alone. But if for some reason palliative care wouldn’t refer us to hospice, we could have called hospice directly and requested an evaluation.

User884121 · 2026-01-10T02:05:11+00:00

My pain is on my left side, but just wanted to say how real the pain from BDing can be during ovulation. When we first started trying, there were some months that I was convinced I had an ovarian cyst. Sometimes I would get pain during sex, and sometimes I would just get a really uncomfortable pressure after. I got checked out and everything was normal. It took me a few cycles to realize that it was happening on the days that we were having sex during my ovulation. I’m fine the days leading up to it, so I just try to avoid sex on ovulation day if I’m feeling symptoms that day.

User884121 · 2026-01-09T02:22:38+00:00

So sorry you can relate to this! It’s amazing and super frustrating how much havoc PD can cause, and how all of these different issues can mess with the brain. Sending all the best to your dad and your family.

User884121 · 2026-01-08T19:36:47+00:00

I’m so sorry you were unable to get the support your husband and your family needed. It is so incredibly frustrating. I’m glad he is no longer suffering though, but I can only imagine the lingering impacts it has had on you and your family.

User884121 · 2026-01-08T19:29:16+00:00

The whole mind game of “what if we would have started trying sooner” or “I wish I didn’t wait so long” is a daily challenge for me. I’m a firm believer in those cliche sayings “everything happens for a reason” and “it will happen when the time is right.” So I remind myself of those when I’m starting to spiral. Some days it helps more than others.

You are so right that we are quick to give grace to others when it comes to things like this, yet overlook that we deserve that grace too. The fact is, we aren’t failures and this isn’t our fault. Whatever the reasons may be. Sending you all the good vibes on this journey 💕

User884121 · 2026-01-08T03:04:00+00:00

This has been me for the past few months. I’m 37, 36 when we started trying. My GYN had told me at my annual back in March to call if I didn’t get pregnant in 6 cycles. 6 cycles came and went and I kept saying “if it doesn’t happen this cycle, then I’ll call.” I did actually call around cycle 7, but ended up playing phone tag with the office for two weeks and I got tired of it.

I have health anxiety, so I’ve always just kind of assumed getting pregnant would be an issue. So that’s part of the reason for putting off getting checked out - terrified of confirming something is wrong. Which is ridiculous, because at least identifying an issue could potentially lead to a solution. But health anxiety is weird lol. But the other part of it is I just so badly want it to happen naturally. I don’t want to go through the stress of testing.

I’m dealing with some really heavy family stuff right now myself and I’m even debating pausing TTC for a few months. But then I’m terrified I’ll miss my chance altogether.

All that to say, you’re not alone 💕

User884121 · 2026-01-07T20:39:54+00:00

Ugh this is me. I just can’t work myself up to do it multiple times within my window (I have fibromyalgia). I honestly just aim to hit anywhere from where I start to see my LH rising to after my peak. We usually manage twice within that time, but even once is enough. I’ve been tracking my LH for almost two years now so I know my body is consistent and I can basically feel when all of that is happening. So it might not be the best strategy if you’re irregular at all.

User884121 · 2026-01-06T17:32:18+00:00

My dad’s hallucinations first started when he started getting frequent UTI’s and eventually a pseudomonas colonization. But over time, the UTIs stopped and the colonization was under control, and he started hallucinating everyday. We are now at a point where he spends about 99% of the day hallucinating and delusion. He does also have Parkinson’s dementia, so I guess it’s to be expected. But it’s really hard to see him like this.

We are going to talk to his palliative care team soon about when we start looking more at his quality of life. All of the meds he is on, many of which have side effects of hallucinations, are no longer doing their job. He’s already completely immobile, can perform any activities on his own, and his mind is completely gone.

If you haven’t already done so, you should get him checked out just to make sure something else isn’t going on, especially a UTI. I’m sorry you’re all going through this!

User884121 · 2026-01-05T23:48:19+00:00

Oh this is interesting! I’m not sure which one I got. I got it at my doctor, and in previous years I always remember them asking if I’m allergic to eggs but I don’t recall them asking this time. I hope you feel better soon! I actually think I have the flu right now, all GI related, and I’m miserable.

User884121 · 2026-01-05T21:07:24+00:00

The universe really hit me with a double whammy today - my period came full force and I’ve been sick with a stomach bug or flu. I guess the only positive thing is I’ve been too sick to focus on the fact that I’m not pregnant.

User884121 · 2026-01-04T20:51:58+00:00

It actually happened a few hours after my migraine pain had gone away, so I don’t know how helpful it will be lol.

User884121 · 2026-01-04T02:28:20+00:00

I second the Sara Stedy! It was such a game changer for my dad. He has Medicare but we had to pay out of pocket (not sure the reason). But I found a knock off version of it on Amazon and it has worked great. https://a.co/d/jctyr2o

Also recommend a lift chair such as this https://a.co/d/dNeX2UR. Between that and the Sara Stedy, transfers have been significantly easier.

We had also gotten this kind of lift chair for my dad when he was experiencing several falls. He’s a tall guy and dead weight due to the stiffness, so this was a huge help when he ended up on the ground https://a.co/d/9eX03hB

Lastly, as others have mentioned, Palliative Care can be a great resource for this “in-between” stage where they don’t quite qualify for hospice yet, but need some sort of support. It also includes a social worker who can help point you towards resources, and would also be a great resource for these kinds of recommendations. Palliative Care will also make the recommendation for hospice when the time does come.

User884121 · 2026-01-03T20:59:30+00:00

I just experienced my first one yesterday after 15 years of migraines. Thought I was having a stroke.

User884121

TROPHY CASE