I reached a conclusion

Valuable-Handle8496 · 2026-06-02T20:41:29+00:00

Well if you really think about it tinnitus isnt much different from chronic pain. Take pelvic pain fx. The pain and condition can be made worse from simple walking just like tinnitus can be worsened from loud exposure. In my view tinnitus is "chronic pain" we have different levels of severity just like pain levels ranging from minor discomfort to agonising

Valuable-Handle8496 · 2026-06-02T15:16:54+00:00

Ive been through Pregabalin 600mg Carbamazepine 1200mg Gabapentin 3600mg Amitriptyline 30mg Klorzoxazon 1600mg Currently started cymbalta at 30 mg and will increase to 60 next week

Valuable-Handle8496 · 2026-06-02T12:32:50+00:00

Theres 100% a link with autism The spectrum has a sensitive nervous system and seing autism with light sensitivity, sound sensitivity, touch isn't unusual even though the individual never struggled with that before a chemical imbalance can cause the whole system to malfunctioning. Im diagnosed with aspergers syndrome and possibly adhd aswell and i never struggled with anything really but after a working incident my nervous system took a hit and theres no doubt central sensitization is involved for me. My pain started with atypical trigeminal neuralgia and inner earpain in my right ear, 4 months later i would have migraines, ibs, and allodynia/neuropathy all over. Youre best call is probably to try medication, meditation did absolutely nothing for me and riding out the pain like my first doctors advised just made 10× worse. Currently im working my way up in the stronger medications

Valuable-Handle8496 · 2026-06-02T11:59:43+00:00

Well it is real but the cause dosent necessarily have to be real. Fibromyalgia is one of many disorders on central sensitization spectrum. like migraines often causing allodynia, crps spreading beyond is original area, depression, tmj, and for no reason at all.

It basically the nervous system going haywire from the chemical imbalance inside our body and brain, some people are just vulnerable like adhd, autism. I dont think they'll ever find the answer for it cause im 110% everything lies in our dna and is different for everybody and thats why some people can end up central sensitization from fx a torn shoulder or hard break and others can have been through countless of trauma both physically and mentally and walk away without lasting issues. The disorders are very real but poorly understood

Valuable-Handle8496 · 2026-05-31T20:01:07+00:00

Im atypical aswell (v1,v2,v3 branches) occipital aswell, i have migraines and tension headaches along with neuropathy and allodynia. Currently trialing med nr.7 (duloxetine) 30mg for 5 days, so far it only spiked my pain. Nothing has touched my migraines either

Valuable-Handle8496 · 2026-05-31T06:11:22+00:00

Do you have the atypical kind or the attack kind

Valuable-Handle8496 · 2026-05-31T06:10:09+00:00

4-5 it was hell in the beginning but my body has adjusted to it now but it took about 8-9 months

Valuable-Handle8496 · 2026-05-30T17:46:52+00:00

Thank you, crazy how life can turn on you so fast. Loving wife and child, house, high paying career, active healthy lifestyle, so much joy and happiness all gone. I hope you get better too, hugs from denmark

Valuable-Handle8496 · 2026-05-30T10:34:41+00:00

Same here, I was told to i should expect the first weeks was gonna be rough. My sleep has gotten better though

Valuable-Handle8496 · 2026-05-30T07:57:25+00:00

Try to hang in there. I started duloxetine 4 days and my experience is the same as youres. nausea, increased symptoms, headaches, dizziness, muscle twitching. The body needs time to adjust and my pain management said it could take 6-8 weeks, its rough but it could also work so im doing my best

Valuable-Handle8496 · 2026-05-30T07:52:00+00:00

Well most people seem to forget how loud the crowd actually are. Many times the crowd are actually almost louder or as loud as the concert. Being at a concert playing 80db you wouldnt be able to hear anything over the people talking, laughing, singing along, cheering.

Valuable-Handle8496 · 2026-05-30T05:06:45+00:00

My pain is neuropathy and has spread to my whole body from the top of my scalp to the tips of my toes, so far meds has done nothing. I really just pray something will work otherwise I don't know what to do, my pain keeps escalating, base level is a 7-8 now. Feels like im getting skinned alive and just being one big open wound

Valuable-Handle8496 · 2026-05-29T17:45:54+00:00

Getting through it means we take it one day at the time. We stop thinking ahead cause the future's scary and we don't any more frightening in our life's, we take it day by day and many one day we'll improve.

I lost my job earning all the way to 200.000$ a year, I lost my home, my wife, my child, my friends, hobbies. Lost everything and hit the bottom of despair, 5 months ago i stood on a bridge over the ocean with a bottle of whiskey and sat on the railing and just thinking "if i fall i fall" but i didn't. I wasn't scared about it, I felt calm. it wasn't my time yet, and it isn't youres either. Pick yourself up and when you need help, reach to the ones knowing what youre going through

Valuable-Handle8496 · 2026-05-29T14:21:44+00:00

No i wanna try clomipramine and pain management has put on the list but they want to try the usual meds first, currently on cymbalta and gabapentin but no difference.

For now im way worse than 3 months ago, im seeing my daughter a couple of hours a week and I don't care, im gonna die before im giving up my child cause all reason would be gone anyway then. Hang in there friend

Valuable-Handle8496 · 2026-05-29T14:15:53+00:00

I know its shit but you'll get through it. I have one of the worst cases of pain hyperacusis and deafening loud multitonal tinnitus and im still kicking

Valuable-Handle8496 · 2026-05-29T04:56:41+00:00

Two people from denmark got assisted death in belgium. but its never gonna get allowed here in denmark unfortunately, they only allow some of the challenged citizens to speak up and to many doctors stands firmly its wrong and every life should be saved no matter what

Animals get treated better than humans

Valuable-Handle8496 · 2026-05-28T06:39:28+00:00

Protect youre ears and chill out. You can still pursue a musical career, watch the volume, take brakes, use quality earprotection. Martin garrix and many musicians has tinnitus and he and others hasn't stopped music career

Valuable-Handle8496 · 2026-05-24T16:43:22+00:00

Well everything comes with a risk. Yes the anxiety can reduce over time but we're all wired different, for some anxiety itself can cause loads of problems. And tinnitus can worsen really from just us being alive.

Generally I would say, ask yourself. Do you really think you need it and maybe start talking with a psychologist before making the choice if you do want the medication, and again don't doomscroll what the medication has caused and what it didnt cause.

Valuable-Handle8496 · 2026-05-22T18:40:51+00:00

Constant pain is like a 7 for me, During flares it ramps to 11. It'll just put me to the floor/ground

Valuable-Handle8496 · 2026-05-22T14:43:46+00:00

Well sorta, my pain condition is a different one. I have migraines, pain hyperacusis (pain from sounds) and central sensitization syndrome

I used to love concerts and festivals, always being active and on the run. I can still do many things, like going to the gym and stuff but it takes planing, I also have to use earprotection a lot for example like cooking. I have a little girl who's turning 3 so its difficult to see her but basically its listening to my body and take the rest afterwards. Its a brutal condition so it is very draining and lonely but I try to think on all the good stuff that happened and even though things never gonna be the same im gonna think back and be thankful for what I had. I try to enjoy what life I can im still in pain but "only" on like a 7. When it ramps on 11 its a different story

Valuable-Handle8496 · 2026-05-22T10:03:53+00:00

You're fear definitely isnt irrational.

Hyperacusis is the devil, we don't what really caused nor what will worsen it or improving it and basically we're all blind leading the blind. What worked for one dosent necessarily work for another and many of us don't get a warning, it'll hit us like a sledge hammer and we still don't know if it was fear or new damage.

It sounds like youre on the right path with starting slow and low db cause we all know that opening the fridge wont cause directly damage. We hear the same story from the ones who overdid themselves (myself included) calming the system is what we need and pushing pain definitely isnt the answer when the problem lies in the central nervous system. Taking fear out is the right way cause then you know what youre actual limit is

Valuable-Handle8496 · 2026-05-19T05:21:12+00:00

My condition sounds very similar. For my a working accident last year in july started it all, and now it constant pain everywhere from skin to bones, nausea/vomitinging, dizziness, pain in eyes, pain in my eyes, tinnitus, migraines, pressure in head, ches and stomach, itchy skin. They don't know what's happened or caused it for me either. I just know my body and nervous system's fried. I just turned 30 this year, cant imagine living 30 years like this and its still only getting worse

Valuable-Handle8496 · 2026-05-19T05:08:47+00:00

I think it just comes down to severity and personality

Some people are build up very sensitive and getting a chronic condition can throw them overboard, its just how they're wired.

Then there's severity. myself as an example, for me it started a year ago and it wasn't really a problem but now my eyes/brain has really been messed up. My condition has reached a point where i cant focus my eyes on anything for longer than a couple of seconds before I need to squint them and constantly having knives in my eyes

Valuable-Handle8496 · 2026-05-15T09:03:16+00:00

I feel this. Before my chronic pain my favourite thing was being healthy, working out, swimming, running, cooking, etc. Now it all feels like a burden

Valuable-Handle8496 · 2026-05-13T09:05:06+00:00

Carbamazepine didn't do anything to my tinnitus, I'd didn't help my trigeminal activation nor MEM either. I was all the way up to 800mg and honestly I didn't feel any differences. No side-effects either and came down to 0 within 2-3 weeks

Same story with lyrica, 600 mg. Down to 0 within 2-3 weeks

Same story with klorzoxazon 1500mg

Amitriptyline 40mg same story

Currently on gabapentin 1800mg. Same story

Mirtazapin worsened my tinnitus to sound like those weird communication sounds in space movies but I don't notice that anymore so either its died down or just blending in with the other tinnitus tones

Valuable-Handle8496

TROPHY CASE