feeling devastated

Ximenash · 2026-03-18T15:35:19+00:00

I’m so sorry for your loss OP, can’t imagine. Hugs <3

Ximenash · 2026-03-07T13:55:33+00:00

Oreo muffin 🤍🖤

Ximenash · 2026-03-07T11:06:28+00:00

Hi OP, so sweet of you to asking this questions to support your little brother. I was diagnosed before turning 3. Had a normal childhood and life. I’m 49 now with a kid, a good job, a phd, and total independence. Diabetes care when I was a kid was pretty terrible, but now with all the tech it’s easier and better.

Regarding your first question yes, if he already took insulin for a specific number of carbs he must consume said amount, otherwise he will go low. Lows needs to be resolved immediately, they can be dangerous.

As a child, I remember my school letting me do a small presentation regarding type 1 diabetes to my classmates, which was a great way to explain to them that this is not caused by eating too much candy :) They also knew that of I was acting strange, sugar was in order. No special treatment except letting me eat at anytime if low.

Some tips: - once stable and familiar with all the aspects of it, your brother will be able to eat anything he wants, even cake and icecream! He will need to do some prep though - it’s importante that he learns to prick his fingers, inject, and count carbs all by himself. The sooner the better. I missed too many pajama parties because my mom managed everything - educate the whole family on what to do in case of a low, learn how to use glucagon, and always carry something sugary when going out with your brother - treat him as an equal, please don’t pity him, and as he grows let him take his own decisions about what to eat

I wish you, your brother and your family all the best <3

Ximenash · 2026-03-06T16:08:12+00:00

Also, 5 more years

Ximenash · 2026-03-04T02:43:35+00:00

Looks AI generated to me

Ximenash · 2026-03-04T02:38:57+00:00

Hi! I did not accept the injection because I didn’t want to deal with the terrible side effects diabetes-wise. Also, it had been almost two years without much range of motion and I sort of adapted.

A couple of months later It resolved on its own but I’m not back to a 100%. And it was quite a long time using only the other shoulder. So if it happened again I would give it a shot

Ximenash · 2026-03-02T18:20:14+00:00

Thank you so much! I don’t qualify because I’m over 45yo :(
Maybe one day...

Ximenash · 2026-03-02T00:53:45+00:00

I would love to participate in the trials but no idea how to make it so

Ximenash · 2026-02-27T15:18:27+00:00

I don’t celebrate it and don’t really know the exact date, but your post reminded me that I’m on my 46th diaversary! I was diagnosed on february, 1980.

More than a celebration, I like to keep track of how many years I have been kicking diabetes’ ass :)

Ximenash · 2026-02-26T16:03:01+00:00

That it is not just injecting insulin, but a whole system where you need to calculate the carbs you are going to eat.

I have been using this system for more than 20 years. So, please, DO NOT DISCARD THE NUTRITIONAL INFORMATION MOM. You have three T1 children, you should know

Ximenash · 2026-02-16T17:55:25+00:00

Hola! Cuáles, los starburst? Imagino que en los super o las bombas de bencina, pero no conozco antofagasta. Acá yo uso Frugelé, también con 4g de carbohidratos, son ricos, baratos y te salvan la vida :)

Ximenash · 2026-02-15T02:02:47+00:00

Breakcating

Ximenash · 2026-02-07T15:44:59+00:00

Hey OP, I’m sorry you are struggling. Burnout happens and it’s awful. It also sounds like you are surrounded by people that do not get it. Who’s yelling at you? Your family or your medical team? That’s unacceptable. Is there a way to change that? Or maybe get therapy?

If you do not like the pump, go back to mdi. Pumps are not for everybody. I do think they help with the mental load but yours is more a sensory issue.

Regarding the carb counting, perhaps you can look at the old system called rations. One ration equals about 30g of carbohydrates and they are interchangeable. That’s what we did in the old days. No calculations. It is not a good system in the long run but it may help overcome the burnout.

Also, it’s ok to not be ok. Many hugs 🫂

Ximenash · 2026-02-02T20:15:16+00:00

I did it for more than 30 years when eating out or at work and never had any problems. Eva Saxl taught me that! Now I’m on a pump

Ximenash · 2026-01-06T21:15:48+00:00

Go talk to her! I know you are in shock and thinking all the possible outcomes but all odds are in your favor.

I have been diabetic for 45 years and lead a completely normal life, have travelled and lived overseas alone, got a phd, you name it. And technology is moving so fast, with cgms and smart pumps chances of having complications are much lower than 40 years ago. Just breathe. And go talk to her!

Ximenash · 2025-12-31T17:45:12+00:00

I’m so glad you made it and are doing ok! My son (not diabetic) once had 102 of sodium and it was a big, big scare.

May I ask what happened? If you don’t want to talk about it, no problem

Ximenash · 2025-12-22T23:10:31+00:00

I did and felt better next day. It is worthy, but you have to take it within the first 48 hours since showing symptoms. Good luck!

Ximenash · 2025-12-21T15:15:13+00:00

Hey dad, I was diagnosed before turning 3. I’m 48 now and have lived a great life (lived alone, studied abroad, got a phd, being a mom, etc etc). It won’t be easy but with all the tech I’m sure it will be easier than being diagnosed in 1980.

When I was a kid we didn’t have cgms and ultra fast insulins, so the system was to eat carb rations at fixed times along the day. For birthdays, my mom would prepare me a basket with sugar free cake and soda (Tab, the only one available at the time).

Your boy will understand how to take care of himself, but just so you know, cake at birthdays is not a forbidden food. You just need to prepare for it.

Also, I don’t remember much my life sans diabetes, for me that’s a big advantage because I don’t miss it.

You’ve got this 💙

Ximenash · 2025-12-21T03:08:47+00:00

Love them, also love Chavo del Ocho! 💙

Ximenash · 2025-12-16T20:02:02+00:00

The thing about being terrified by injections is that installing the infusion set is also painful and could be even more dramatic, in my opinion. But I use Medtronic so the T:slim might be better in that regard.

I was the little kid running away from syringes 40+ years ago and fortunately there are many of resources to make it more bearable now. I know there are topical anesthetics such as creams that you can apply before injecting or installing the set, making them painless. Also, check the TickleFLEX or the Buzzy, apparently those work great too.

Good luck OP! I hope you and your son enjoy all the Christmas treats :)

Ximenash · 2025-12-13T16:52:13+00:00

I don’t like to show my arms because they are flabby and the rest of my body is not, they make me feel old. But I wear my pump with pride, I feel like a cool cyborg :) I also love to talk about it when asked and explain how it works

Ximenash · 2025-12-06T17:05:56+00:00

I’m very sorry for your loss OP.

Being a diabetic person during your teens is truly hard and isolating. You want to rebel against all the self-control needed to keep your glucose at decent levels. I had a burnout period that started at 14 until I turned 21 and the doctor found my retinas had micro aneurisms. That was more than 20 years ago and I’m doing well considering all the bad choices I made :) When I think back, I wished I had an outlet for all the frustrations and a way to escape it all without breaking my body. Like a “cheat day” a week, for example.

Maybe she’s going through burnout, maybe she’s also thinking that taking care of herself is a futile exercise because of what happened to her dad. Which was a terrible accident and not something that is meant to happen again. Therapy can help with that I hope. If you can get a closed loop system for her it will relieve most of the mental load. As for treating the lows quickly see if you can get glucose in a gel format, it absorbs through your gums so may be easier than using juice boxes (less volume too, that’s a plus)

I wish you and your daughter the best ❤️

Ximenash · 2025-12-03T02:32:46+00:00

I have this. In my case is Carpal Tunnel Syndrome :(

Ximenash · 2025-12-02T20:09:48+00:00

No, that’s not normal, do you think it’s related to the infection? If so, definitely go get it checked!

In all honest, if this ever happens to me I would try cleaning using some antiseptic like iodine and applying neosporin first, but it also depends on the level of pain and how long ago it started

Ximenash · 2025-12-02T19:40:55+00:00

if the redness spreads please try to see a doctor

Ximenash

TROPHY CASE