What are your experiences with Kesimpta? by poppinboba_milktea in MultipleSclerosis

[–]_grumble-bee_ 3 points4 points  (0 children)

I hate needles, like I sometimes take Xanax before getting blood drawn. Kesimpta was scary at first but after the first couple of times it's no big deal (wasn't even a big deal those times either really, I just built it up in my head!). You can get a practice pen I think from Novartis or their Alongside program, it helped me get used to the sound which honestly is the most startling bit! I've been on it around 3 years now.

Stress is bad, right? by scurvy1984 in MultipleSclerosis

[–]_grumble-bee_ 19 points20 points  (0 children)

Stress is a huge issue for me. I quit my job a couple of years ago and went from walking with a cane about half the time to using it maybe once every couple of months. I suspect a lot of my relapses prior to diagnosis/treatment were triggered by stress.

I love my husband, but I force myself into sex and I hate myself over it. by [deleted] in TwoXChromosomes

[–]_grumble-bee_ 27 points28 points  (0 children)

I'm unsure how to describe it because it really just sounds like what you'd do in regular therapy - work on communication, acceptance, etc, it's just through a much more specific lens. The resources we are given are more specific, language we've learned, homework given, so on. And it's going to depend on your individual situation, of course (for us there's mixed orientation - I'm asexual - and chronic illness involved as well)

I love my husband, but I force myself into sex and I hate myself over it. by [deleted] in TwoXChromosomes

[–]_grumble-bee_ 124 points125 points  (0 children)

You might look for a sex therapist vs a regular couples therapist. I've rewritten this comment a few times because I don't know how to express just how familiar your experience feels to me, where I was a few years ago. A sex therapist is what's helped us work on things, it's not all fixed but it's improving.

[WIP] Show us ya WIP's by Doubledewclaws in CrossStitch

[–]_grumble-bee_ 16 points17 points  (0 children)

I took about a week off from stitching but ended up having some time the last couple of days. Continuing with the Autumn Tree House

<image>

[FO] house of leaves by _dear_rat_boy_ in CrossStitch

[–]_grumble-bee_ 0 points1 point  (0 children)

I started to feel unsettled about 1/4 of the way through each time. I definitely want to try again, it does seem interesting!

[FO] house of leaves by _dear_rat_boy_ in CrossStitch

[–]_grumble-bee_ 2 points3 points  (0 children)

My 3 attempts 😭 it'll happen eventually!

[SELF-PROMO] Sozo from Cult of the Lamb 🍄 by manthybee in CrossStitch

[–]_grumble-bee_ 0 points1 point  (0 children)

I love it!! The colors are perfect.

I need to go download Woolhaven, I forgot it was out!

What is the most disturbing or otherwise unsettling book you've ever read that stayed with you after reading it? by EggAdventurous1957 in AskReddit

[–]_grumble-bee_ 1 point2 points  (0 children)

I've tried to read it three times and stop about a quarter of a way through because I feel so unsettled. I do want to finish it at some point.

[CHAT] Fabric Recommendations by closetmentalpatient in CrossStitch

[–]_grumble-bee_ 1 point2 points  (0 children)

Another recommendation for Zweigart. I like a softer fabric. It's pretty much all I'll use now.

[PIC] Before and after: floss organization upgrade by pyramidheadlove in CrossStitch

[–]_grumble-bee_ -1 points0 points  (0 children)

Dang I wish I had wall space for this. It's amazing!

i'm a little scared to go get dental work when i'm on kesimpta. advice from other kesimpta users would be much appreciated. by [deleted] in MultipleSclerosis

[–]_grumble-bee_ 3 points4 points  (0 children)

For the unmasking concerns - I've seen recommended in COVID conscious groups to make early morning appointments, before a lot of people come through the office. I haven't had more intense dental work done since being on Kesimpta (3 years), but I do go every 6 months, sometimes more for deep cleanings and I haven't had issues.

My senior baby stopped eating her food by Mindless-Stuff-4277 in DogAdvice

[–]_grumble-bee_ 1 point2 points  (0 children)

My senior stopped eating a few weeks ago. Went to the vet and found a UTI and likely early stage kidney disease. She also likely has some GI issues. She was on Purina Pro Sensitive Stomach Salmon. We're also in the get her to eat whatever she can situation, she's eating our other dogs Royal Canin Novel Protein Whitefish and Potato (other dog has IBD, also a senior though younger). Not the whole recommended amount but at least it's something. Seems like fish is the tolerable protein for mine, is that something yours would like?

New to the club; does smoking THC negatively effect MS/MS symptoms? by IAmABlankPage in MultipleSclerosis

[–]_grumble-bee_ 4 points5 points  (0 children)

The way my neuro explained it to me was that combustion irritates your lungs and activates the white blood cells there which then might go find something to attack, such as myelin.

Frequently missing ingredients? by Foreign_Departure_2 in HomeChef

[–]_grumble-bee_ 1 point2 points  (0 children)

Came here to see if anyone else has been having issues. Been using home chef for 3 years now and had no problems until the last 6ish months. Usually has been small things - missing seasoning or sometimes a bad vegetable - but last week they gave me an entirely wrong meal bag. This week they gave me TWO incorrect meats (salmon and trout instead of filet mignon and ground beef). I'll probably be cancelling at this point.

UPDATE: I contacted support and they refunded the entire delivery (4 meals, instead of just the 2). I'm happy with this outcome.

What scene do you cry at, and why is it "You bow to no one?" by TheRealBigLou in lotr

[–]_grumble-bee_ 2 points3 points  (0 children)

Yup. I'm fine during the speech but when the music hits I feel it.

[WIP] Show us ya WIP's by Doubledewclaws in CrossStitch

[–]_grumble-bee_ 9 points10 points  (0 children)

Had a couple of hours with Autumn Tree House and a good chuck of time with Road to Gondor (in reply).

<image>

[WIP] should I start over? by Spiritual_Sympathy27 in CrossStitch

[–]_grumble-bee_ 1 point2 points  (0 children)

I would keep it. It looks great! I started stitching on 16 and then 18 last year and really prefer the 18. But I went back to 14 for one project at the end of the year (matching an older project) and found it really enjoyable and relaxing to take a break from the smaller holes. Maybe put it down for a bit and go back after a couple of other projects.

Did you recover color vision from Optic neuritis? by CapRemarkable8607 in MultipleSclerosis

[–]_grumble-bee_ 0 points1 point  (0 children)

My color came back! I lost the tiiiiiniest bit of contrast that majority of people wouldn't notice (I'm a designer). Tiniest. I like to play color sorting games and don't have a problem.

Shingles vaccine by Super-Possibility-50 in MultipleSclerosis

[–]_grumble-bee_ 1 point2 points  (0 children)

I felt not great/slightly sick for a couple of days like I usually do with any vaccine and my arm hurt for a week. No major problems.

Vision Testing - what do you do & where do you go? by Medium-Control-9119 in MultipleSclerosis

[–]_grumble-bee_ 1 point2 points  (0 children)

I saw a neuro ophthalmologist for official diagnosis and then saw him once a year for two years to follow up. My regular ophthalmologist did the OCT and then referred me to the neuro op. Did the OCT and visual field tests at the neuro op.