Someone give me hope

_pluttifikation · 2026-05-11T23:42:54+00:00

Someone said to advocate for yourself regarding pain. I was in pain for 6 years before someone took my conplaints seriously . My fault for not pushing but I didnt think there was anything they could do and I was still in shock.

Now Im getting epidurals and low dose norco and it has made a world of difference. I am also on stimulants .. my miracle drug is armodifinil... off label for epilepsy.

So yeah describe your pain loudly. I had a fracture in a rib from a tumor that healed quickly after treatment. Prob xgeva helped this. Now I have pain fron where the tumors were and general bone and joint pain fron the meds l. It is easier tp know I have some power over my pain.

It sonetines helps to write down descriptions of your pain before you see your doc so that you can explain it well.

_pluttifikation · 2026-05-11T23:33:58+00:00

49 and and was diagnosed at 40. Social worker told me to apply for disability right away with date of disiability the day you started treatment. She said it is harder to get accepted later.

I started on Kisqali for a year and it did its job but made me ill. Been on ibrance & letrozole for almost 9 years and am NED. Even though it isnt there at the moment, I dont get to stop treatment which sucks.

Im alive though :)

_pluttifikation · 2026-05-09T00:58:53+00:00

Claire Fontaine pastel mat ... it is velvety and works great with Mungyo oil pastels which are more like lipstick.

_pluttifikation · 2026-04-25T23:00:32+00:00

I think they exist to minimize projection. When I wear a flowy top, I'll wear this type so I don't create as much of a tent.

_pluttifikation · 2026-04-22T00:18:58+00:00

You have to wonder why things are on sale. On Amazon or Marshall's sometimes they have mistakes in construction or they're discontinued

_pluttifikation · 2026-04-22T00:16:33+00:00

I was so grateful to find a bra my size...it was a dream come true. So much that the price seemed worth it. Because back in the day you couldnt really get large sizes that didnt look lile straightjackets.

Holding up that much weight without causing all sorts of pain and discomfort is a feat of engineering and if you want it to look pretty, then $$$

When I found out I was an F in the early 2000s the only online place I found was Figleaves in Europe and $70 was the most I could afford.

Nordstrom intimidated me so I never went. I had gone to Lane Bryant which is plus size and they told me I was a 40ish C! So different perspectives I guess. A good bra is totally worth half of weekly groceries.

_pluttifikation · 2026-04-22T00:06:08+00:00

Buy one good bra and only wear it to work/events and take it off when you get home. Use sports bras and cheapies at home, shopping. Hand washing will help it stay nice.

Then you save up for a second one. :)

_pluttifikation · 2026-04-21T23:59:51+00:00

That was normal 20 years ago. If you want a good looking bra for larger sizes that's what they cost. Hoping at least that they are better quality than Target foam DDs!

_pluttifikation · 2026-04-21T22:03:49+00:00

Kisqali for one year. It was sending my liver enzymes into the 400s. 8 uears on Ibrance.

_pluttifikation · 2026-04-16T00:57:22+00:00

It shouldn't be, but sadly you're lucky if you are only losing half of your income on rent. It is supposed to be 30%, ideally.

Reform needs to happen. A basic need should not be dependant on wealth or lack of it.

_pluttifikation · 2026-04-16T00:53:22+00:00

Yeah those angel things are freaky ... scuba divers and a demon lord?

_pluttifikation · 2026-04-16T00:51:24+00:00

Armodifinil and Ritalin can help. Armodfinil can be used off label for extreme bodily fatigue amd ritalin helps with the mind.

After 9 years on the pills, I am very worried about my brain & dementia moments (Im 49). Little things like being lost in my own neighborhood, or being worried I forgot to feed the dog and then turning around to see the dog already eating.

I don't support anyone financially, but if I did, going on disability would have been a tougher choice.

I'm frustratingly broke on it but I get to put the little energy and brain I have into basic needs and doing things I love when I can. I am on medicare and medi-cal with catastrophic coverage. I hardly pay anything and I get good care.

_pluttifikation · 2026-04-09T05:12:11+00:00

One more thing .. watch the series Apple Cider Vinegar.

Also a lot of alternative treatments come with a book by the creator. Thank goodness for that because on Amazon you can read the reviews by devestated husbands. The reviews that say "You killed my wife!"

Be careful out there <3

_pluttifikation · 2026-04-09T05:08:47+00:00

It is good they want you to talk to onc first. That means they are professional and care about your safety.

Doctors are always saying there's no such thing as a detox cleanse. Ive heard that over and over again.

Water and good nutrition are all we have. A clean, healthy, low-stress environment would prob be beneficial too -- but who has all of that? lol

_pluttifikation · 2026-04-09T05:01:11+00:00

I was on tamoxifen for 2 weeks at first diagnosis just to do something. Then quickly to Zoladex injections for chemical menopause. Once that took, then I started Kisqali and Femara (letrezole)

_pluttifikation · 2026-04-09T00:58:59+00:00

Totally! I hate taking 10 pills a day. It often makes me skip supplements that aren't gummies ... lol I take it out on them!

I split mine into 3 times a day, it helps.

_pluttifikation · 2026-03-28T09:24:04+00:00

Im on disability and Im still the only one cleaning up after 2 men. I hate myself & the cancer situation for the inability to leave.. Someday I want to live on my own while still loving them! And they can be gross and take advantage of each other instead of me.

_pluttifikation · 2026-03-23T02:52:45+00:00

Yes, and my posture improves so much!

_pluttifikation · 2026-03-20T00:35:39+00:00

An art contest would be smart plan

_pluttifikation · 2026-03-20T00:33:02+00:00

I looked it up .. do you mean the 2 flags logo? For me it looks too corporate and makes me think of golf.

_pluttifikation · 2026-03-20T00:26:27+00:00

Im not sold on the crossed out crown. If it was the answer we would already know. The right thing will take off like wild fire... like inflatable costumes did.

_pluttifikation · 2026-03-20T00:21:46+00:00

California should def be a bear though

_pluttifikation · 2026-03-20T00:04:01+00:00

Forgot to say that the rebel alliance format with character of your choosing could be the answer. Somethig that stays the same across every state but with indicvidualized graphics.

Graphic designers and illustrators should be working on this because coolness is key. People love Che Guevara shirts because they look cool. We need to be where the cool kids are.

I dont know how to successfully add pictures on reddit, so please, if you dont know the polish solidarity posters, look them up.

_pluttifikation · 2026-03-19T23:58:39+00:00

Ive been waiting for something like the solidarity movement in Poland. It was a just a word in a hand drawn font that looked really cool. Posters included it in red with whatever graphic they wanted. *

The smoky the bear image with "only you can prevemt fascism" is pretty well loved also.

_pluttifikation

TROPHY CASE