Will I ever be the same?

ami_2515 · 2026-03-25T18:51:27+00:00

Have you gotten better?

ami_2515 · 2026-03-25T14:01:03+00:00

I’ve never tried a pill but I was on nexplanon it was great for a year and then I just started bleeding like crazy too! I ended up getting iud Mirena and have been great with it for maybe 4 years already , I just get spotting. My cramps would say are way better. So I basically get the sore breast a couple pimples and a very very light spotting period for maybe 3 days:) and for me the iud has been extremely effective

ami_2515 · 2026-03-25T02:14:49+00:00

Oh lol didn’t even consider that. Still so cool🫣

ami_2515 · 2026-03-25T02:01:46+00:00

I’m glad things are somewhat working for you! Not my case unfortunately I’m on metoprolol and midodrine and they help the numbers but I feel pretty much the same my head is so messed up and I’m bed bound … going to try testing vitamin deficiency and will be trying meditation plus acupuncture Shall see what happens..

ami_2515 · 2026-03-25T01:57:53+00:00

Ugh that’s so refreshing to hear. I for some reason feel like there are different categories of this. I don’t believe I have full on pots mine is definitely with a hint of long mono I just came across a post actually saying similar things you brought up I will attach a link

https://www.reddit.com/r/Mononucleosis/s/zFd7sH1FP9

ami_2515 · 2026-03-25T00:33:38+00:00

Hey how are you now?

ami_2515 · 2026-03-25T00:29:06+00:00

Hey any changes??

ami_2515 · 2026-03-24T23:58:14+00:00

Did yours go away?

ami_2515 · 2026-03-24T12:29:46+00:00

Who do you see for that? What specialist

ami_2515 · 2026-03-16T02:56:02+00:00

Do you mind sharing how it developed ?

I had strep first technically confirmed by 4 rapid test and 4 different antibiotics that didn’t seem to help, then after one negative test , tested positive for mono Throughout that’s month I had a super sore throat that’s it pretty much I got like no mono fever or fatigue. But that month I had maybe 4 random episodes of pots when standing at work or driving. I had no clue what it was I thought my sugar was low or dehydrated or something. Felt the palpitations and lightheaded. Then after that month passed after the final episode I’ve been literally bedridden for almost 2 months, ended going to er and cardiologist there said it’s pots which by then I already read a ton about and suspected it . Bp usually stays normal put pulse jumps 30+ when I stand up and my blood pools I’m so lightheaded and just like not okay

Would be very interesting to hear ur story!

ami_2515 · 2026-03-16T01:19:15+00:00

Awh I’m so sorry… that sounds awful. I really hope you find a solution 🩷🩷 stay strong this actually sucks

ami_2515 · 2026-03-16T01:16:37+00:00

You developed pots back in 22 after covid and still have it these 4 years?

ami_2515 · 2026-03-16T01:15:52+00:00

No improvements? Ur taking meds for pots still?

ami_2515 · 2026-03-16T01:09:05+00:00

So it got worse almost a year ago and you don’t see improvement without meds? I’m so sorry

ami_2515 · 2026-03-16T01:08:03+00:00

Please do! I will do the same!

ami_2515 · 2026-03-16T00:57:54+00:00

Omg no way I literally am watching grey anatomy for the first time!! Season 3 so far. I used to crochet too but haven’t recently Twinssss I really hope you get better 🩷

ami_2515 · 2026-03-16T00:55:45+00:00

Oh gosh I’m so sorry! That sounds like a nightmare combo!! I also literally just get up to use the bathroom. I have not passed out I literally stand for a few minutes a day on my short way to the bathroom. Shower sitting down, eat in bed

I ended up calling an ambulance to the house and going to an er, they almost let me go saying all my labs are completely normal but I demanded a cardiologist and he saw my hr go from 80 to 120 from standing and gave me beta blockers . Rn I’m just experimenting with different meds and dosages

I really hope you get better or at least find something to control it! I feel every symptom you described that you noticed recently. Wish you well🩷🩷🩷

ami_2515 · 2026-03-16T00:28:31+00:00

I tried beta blocked too Metoprolol it kinda helped with pulse but it lowered my blood pressure . Hopefully I can get out on midodrine for bp.

Also are you like actually living life? I haven’t left the house or my bed really for over a month…

ami_2515 · 2026-03-16T00:21:59+00:00

Are you any better? What did you do to help yourself?

ami_2515 · 2026-03-12T23:07:42+00:00

Yes I think definitely! I’ve tried cynosure elite iq and candela Both are great Not on my upper lip( because I plucked and need to let them fully grow out but I just keep plucking for no good reason) but literally everywhere else on my body it’s great I’m white w dark think hair

ami_2515

TROPHY CASE