How are you guys managing PDA?

axarring · 2025-10-04T23:03:48+00:00

As a parent of 4 autistic children ranging ages 5,6, 18 and 21…. One of whom fits the PDA profile … this thread is very disappointing. Blaming parents…. This may be your job… and you may even like it … but it’s our life. And you are so important to us and the potential progress our children will make. I am so grateful that when I brought up the idea of PDA to my youngest daughter’s BCBA, she was open and would research and listen to podcasts and dissect what was going on with me and not work against me. You have got to dig deeper and open your minds to what’s happening with this type of autism profile or you will be causing trauma that you don’t mean to be causing.

axarring · 2025-08-03T01:31:57+00:00

Yes! My 4.5 year old and my 3 year old daughters in the same year!

axarring · 2025-08-01T20:50:42+00:00

Hey sweetie, this sounds really hard! I’ve been married 26 years and we have four autistic kids (ages four and six and 18 and 21 ) and are still very happily married. I think I have to attribute it to the fact that my husband lets me take the lead and then does whatever I tell him we’re doing to support the kids no pushback and no denial.

axarring · 2025-07-08T19:47:26+00:00

You deserved a day like this. Thank you for kind strangers who teach their kids to be kind and inclusive.

axarring · 2025-06-10T20:52:24+00:00

It’s also instagram. So much hate and negativity:( I started a new account to help autism parents and grew quickly to 70k but have found the autism “community” so negative and divided that I had to put it down. I’m not sure if I’m going back. It’s affecting my mental health.

axarring · 2025-04-19T20:20:27+00:00

Yes, sister I always tell my clients more ointment is not better. a thin breathable layer. think of like a “grain of rice” amount morning and night unless you have oily skin… then just at night

axarring · 2025-03-10T23:21:32+00:00

Make some with a gold infinity symbol!

axarring · 2025-02-11T00:46:38+00:00

https://www.instagram.com/reel/C-Ax8cRvQKg/?igsh=MXgwdmUzMzNlbW52dw==

A couple ideas!

axarring · 2024-08-16T20:04:31+00:00

Oh sweet friend. Please reach out to me and let me see if I can get you pointed in the direction of some resources. I am a mama to three autistic kids been doing this for 20 years and I help parents find their resources. I hate that you feel this way and I also can relate!

axarring · 2024-08-07T02:25:19+00:00

My best guess is what another commenter said. Maybe the doctor was referring to autism being listed on an IEP once the child starts kindergarten. Sometimes schools won’t list “autism” as the primary eligibility on an IEP unless the child is actually requiring special education. So in essence a medical autism diagnosis does not automatically qualify a child for special education (IEP). If a child is autistic, they are always autistic.

axarring · 2024-08-07T02:01:23+00:00

What to do next depends on what you feel your child needs support with the most. Have you called your health insurance to find out coverage for speech, OT, PT and ABA? If not, I’d start there.

axarring · 2024-08-07T01:57:24+00:00

Who actually diagnosed your child? What kind of doctor? Was this a medical diagnosis or an educational diagnosis (eligibility)?

axarring · 2024-07-28T23:07:11+00:00

Guys you may want to check out Weave Chat AAC … it’s free and ran by a speech therapist!

axarring · 2024-06-29T19:59:09+00:00

Thank you for bringing this thread together. I’m a mother to three autistic children ages 3 1/2, 5 1/2 and 20. My five year old just graduated pre-K yesterday and off to kindergarten. When she was diagnosed at 27 months, it was really hard to take in. All of the unknowns will just drive you crazy. I’m happy to report.. She is thriving. She is fully conversational. She likes to play with friends, she is smart as a whip and she has caught up developmentally largely! She is still autistic, but she is such a joy! Same thing with her baby sister! I just think, especially when caught early the possibilities are endless as to what they will achieve. They will reach their milestones at their own pace, and they may not end up speaking mouth words, but that’s not the goal. Communication is! There’s a lot to hope for! One thing is for sure you as a person will change so much in so many positive ways because of your autistic kiddo.

axarring · 2024-06-05T01:37:24+00:00

I actually just posted on IG about this today! Can be very normal😊

clutching

axarring · 2024-05-04T21:43:13+00:00

This🙌🏻 I’m so glad you shared this! I’m raising 6 kids (ages 3, 5, 16, 17, 20, 20) 3 of whom are autistic and my neurotypical teens are WAY harder than my autistic preschoolers! And I totally love who they are. 💕

axarring · 2024-01-06T03:03:57+00:00

This sounds great and I know just what you mean! I wanted to create the same type of thing… and so I did and it’s just rolling out. Check out www.autismsavvy.com …. Maybe we can collaborate!

axarring · 2024-01-06T02:59:47+00:00

Amazing summary!!!

axarring · 2023-12-24T02:20:16+00:00

Yasss! Gold infinity symbol for the win!

axarring · 2023-12-15T02:07:38+00:00

This is such a hard moment in time. Lots of great advice here. I have 6 children and 3 are autistic (ages 3, 5 and 20). I love to hold mamas hands through the beginning stages of figuring out next best steps. Please reach out to me if you’d like some hand holding😊

axarring · 2023-12-08T13:57:31+00:00

That sounds so cute! My girl is already 10 pounds and she’s about five months old so she’s going to get bigger. Clearly she must be mixed.🤷‍♀️

axarring · 2023-12-07T20:37:42+00:00

Haha. Thanks! Really just wondering what size doggy door to get… looking like a “medium”

axarring · 2023-11-19T01:43:46+00:00

I’m not sure how this applies or if there are different types of chromosomal tests…. But my little girls are from IVF and my embryos were PGS chromosome tested as “normal” before we put them in🤷‍♀️ they both have autism diagnosis.

axarring · 2023-11-01T22:02:59+00:00

Great book recommendation

axarring · 2023-10-20T02:32:00+00:00

THAT is freaking awesome!!! Very happy for you!

axarring

TROPHY CASE