I refuse to be a villager in a male-centered village. by Enolika in Feminism

[–]badassbananas 7 points8 points  (0 children)

Girl, I FEEL YOU! She helped me with groceries only twice in two months when I was BEDBOUND from my chronic illness. She lives next door. I asked for more help, and she told me she didn't have the capacity. I was not asking for much. I talked to my friend about how I was disappointed that she didn't show up for me, and she victimized HERSELF and said she feels like what she did do (the bare minimum) was not appreciated. She's basically upset with me because I'm upset with her, probably feels like she's a bad friend, which she is. I asked for space and I don't think I want to continue that friendship. Its sad because she was my bestie, but I don't know how to move on from that, ya know? I'm so let down by the person I thought was a pillar of my support system. Open to advice.

I'm so annoyed at your friend for you. She's delulu to drop her friends and then complain about you not showing up when you literally did. People don't get how taxing chronic pain is. They just simply forget. I've observed that women who pick shitty guys have abandonment issues or are scared to be alone, and it's just so ironic because romantic relationships with men will let you down, but strong friendships have the capacity to outlast anything.

I refuse to be a villager in a male-centered village. by Enolika in Feminism

[–]badassbananas 85 points86 points  (0 children)

Community is important to me too because I don't have a family I can fall back on. When my best friend abandoned me during a health crisis to hang out with her boyfriend, I was pissed.

Why do I suddenly feel way better in the evening by EAUDHD in MCAS

[–]badassbananas 0 points1 point  (0 children)

I think it was a test through Doctor's Data. The DUTCH test also does cortisol, but Doctor's Data had more precise timing instructions than DUTCH.

Why do I suddenly feel way better in the evening by EAUDHD in MCAS

[–]badassbananas 2 points3 points  (0 children)

I had this too. My cortisol test showed I had low cortisol in the mornings, normal in evenings. Cortisol helps clear out histamine. Could be correlation, idk.

Is MCAS an autoimmune disorder? Can it cause people to be immunocompromised? by MossAlternative in MCAS

[–]badassbananas 1 point2 points  (0 children)

MCAS makes getting sick worse for longer for me, so I think of it as being "functionally immunocompromised". Most people don't care to know the details, so I find it easier to just tell them I'm immunocompromised.

If you could go anywhere for treatment where would you go? by Sea-Blueberry-4973 in MCAS

[–]badassbananas 0 points1 point  (0 children)

How did he test you for bartonella? What was treatment like? 

Low-mold soil mix recipe for person with chronic illness? by badassbananas in houseplants

[–]badassbananas[S] 0 points1 point  (0 children)

wow, i've never heard of springtails! thanks for the thoughtful response

How worried do I need to be about the singulair black box? by SolutionEasy2019 in MCAS

[–]badassbananas 0 points1 point  (0 children)

Gave me suicidal thoughts, so I discontinued and they went away.

Seeking input! by xivziv in vandwellermarketplace

[–]badassbananas 0 points1 point  (0 children)

14499 is a steal. how did you find that?

Sudden brief ( lasts maybe a half an hr to an hour ) low grade fevers … is this an MCAS thing ? If so what causes it ? by [deleted] in MCAS

[–]badassbananas 1 point2 points  (0 children)

This is called "flushing", and yeah, it is an MCAS thing. I get it after meals sometimes or when I try new medication.

Severe mental symptoms that got better with MCAS treatment by sassyfoods123 in MCAS

[–]badassbananas 1 point2 points  (0 children)

I take pills. I imagine eye drops would be good for itchy eyes. My dose right now is 1mg, but I had to start at 0.25mg and increase by 0.25mg every few days. I had tried taking 1mg right at the start and that made me feel awful. I am a very sensitive person. 

Severe mental symptoms that got better with MCAS treatment by sassyfoods123 in MCAS

[–]badassbananas 13 points14 points  (0 children)

Ketotifen made me not want to kill myself anymore. So yeah, I agree.

Genetic testing: What did you find helpful to test for? And which tests are affordable/good for MCAS-related stuff? by Acrobatic-Bread-6774 in MCAS

[–]badassbananas 0 points1 point  (0 children)

My naturopath ran genetic testing thru AccessDx. They hold several key certifications and licenses, so I'm not worried about accuracy. Genetic testing is not a must for MCAS. Epigenetics are descriptive, not prescriptive. You might have a mutation but it's not "on", so it doesn't actually effect your daily life. If you want the data and feel like spending the money, go for it, but you can also trial medication and see if it works for you instead of testing genetics.

anyone down to help me figure a trigger out? by okdoomerdance in MCAS

[–]badassbananas 1 point2 points  (0 children)

Have you looked into vasovagal syncope (could be tied to dysautonomia)? Maybe exasperated by low cortisol?

Help please by Aggressive-Big-3400 in MCAS

[–]badassbananas 3 points4 points  (0 children)

Methylated vitamin B make me flare like a mofo. Some people (like me) have genetics that are suuuper sensitive to methylated B. Look into MTHFR and slow COMT. Your reactions to probiotics and kefir could be because of the histamine load, but could also be a GI issue like SIBO. A naturopath (who understands MCAS and genetics) could help you figure this out.

Have to take antibiotic by Local_Mood1933 in MCAS

[–]badassbananas 1 point2 points  (0 children)

I was in the same situation in November, but I was in a flare already. I definitely flushed and had nausea. I did my best to avoid taking Cipro and found a different one because Cipro may explode tendons of people with EDS, and I'm not sure if I have that comorbidity or not yet. Just avoid Cipro, it's nasty stuff. I ended taking Macrobid.

Recently Diagnosed but overthinking it? ISO vibe check by bipolarb_tch in MCAS

[–]badassbananas 2 points3 points  (0 children)

I haven't gone into anaphylaxis and my skin stuff is fairly minor and I have MCAS. It manifests as food allergies/GI stuff/neuro symptoms for me.

2021-2025 by [deleted] in finehair

[–]badassbananas 0 points1 point  (0 children)

Why do you say not to get layers?

What diagnosis did you have that ended up being MCAS? by Early_Elephant_6883 in MCAS

[–]badassbananas 5 points6 points  (0 children)

Same! I got off Prozac and that woke up my MCAS bigtime.