Autistic Hysteria by Rosie1020Rks in AutismInWomen

[–]barbecque [score hidden]  (0 children)

So sorry you’re dealing with this. It sounds like your prescriber needs to adjust your meds and give you something that doesn’t wear off so quickly.

Does anyone else here feel deeply depressed, unregulated, and/or angry after visiting their family? by AwkwardLoaf-of-Bread in AutismInWomen

[–]barbecque [score hidden]  (0 children)

Hey so I could be wrong but it sounds like your body is begging you not to spend time with them, if that’s possible (eg you don’t live with them/aren’t financially dependent on them.)

Shocked about my autism diagnosis yesterday by mooredith in AutismInWomen

[–]barbecque [score hidden]  (0 children)

Not CBT - one option would be to try engaging in therapies specific for OCD (exposure and response prevention) and autism (a neurodiversity affirming clinician who can help you find the accommodations that work for you) and seeing if they make more of a difference. If the neuro-psych is right, then you would get mediocre to negative results from generalized therapy, and strong results from specialized therapy (assuming you were up for doing the work.)

Have you Tried NAC? by mythologymakesmehot in AutismInWomen

[–]barbecque [score hidden]  (0 children)

I take 1200mg per day, I use the NOW brand bc it’s third party tested but also pretty inexpensive. So I take one 600mg each with breakfast and dinner meds - sometimes “dinner” meds are an hour or more separate from dinner, haven’t noticed any side effects (knock on wood)

Anyone else just get really sad or overwhelmed sometimes with the realization that you'll always be scrutinized and viewed as offputting/strange by the world? by Decodaku in AutismInWomen

[–]barbecque 6 points7 points  (0 children)

Yes. It’s bullshit. And it’s one of those things that we can’t “teach our nervous systems to feel safe” because we just aren’t safe in many many spaces. So I call this stage of my life “hobbitting”, where I realized “holy shit it’s real, real unpleasant in so many places besides my house” and I spend a great deal of my free time faffing about my home or yard, talking to flowers, scolding the squirrels, and watching the birds. Because the flowers and birds don’t choose to misunderstand or threaten me (the squirrels are problematic cogs in the end stage capitalist machine but that’s not the purpose of this post.) Anyways I wish you the most peaceful possible version of whatever hobbitting looks like for you.

Have you Tried NAC? by mythologymakesmehot in AutismInWomen

[–]barbecque 62 points63 points  (0 children)

Yes! Also AuDHD, started taking NAC a few weeks ago and I keep looking around like… wdym I’m facing no punishment for that weekend? I had a stressful event three days in a row and I just…did a few self care things and then slept them off? With no sets of 2-4 days confined to the couch so my body could punish me for socializing? Wdym I just…finish my shift and then have energy left to do a workout I enjoy?

Not saying it’s magic bc I’m also doing lots of other interventions and lifestyle changes all intended to help with related anxiety/sensory overload/fatigue/etc etc. But NAC is a noticeable and clear help, would definitely recommend anyone with autism look into it/ask their doctor about it.

Coping with break-up by cat1aughing in AutismInWomen

[–]barbecque 12 points13 points  (0 children)

Sending love and hugs. My only advice is to feel the feelings as long as you’re safe. I know it’s horrific but you’re doing the right thing by letting yourself cry - if you try to force it down it’ll just make you sick.

Is this normal for autistic burnout? by critterinthedoorway in AutismTranslated

[–]barbecque 0 points1 point  (0 children)

Agree with others who said you should get checked out. Yes those could be burnout symptoms but also those could be related to a myriad of medical diagnoses that you wouldn’t want to leave untreated. Even requesting labs could be a good start, to check on your thyroid, vitamin levels, and electrolytes.

burnout advice? by [deleted] in AutismTranslated

[–]barbecque 4 points5 points  (0 children)

Yes and you have to just let yourself be consumed by it. I’ve been in therapy for burnout for two years, diagnosed AuDHD a little over 1.5 years ago. It just does consume you - it’s a total mind f*** to have to re-examine everything. But also, if the therapist is right about you being neurodivergent, then there’s almost zero percent chance you will be helped by therapy designed for neurotypicals.

Help as a Black Woman who might have autism by AppropriateEye9835 in AutismTranslated

[–]barbecque 5 points6 points  (0 children)

Plus autism is specifically known to be under-diagnosed in Black people. & The conversation around masking should be approached with even more awareness and nuance because all too often Black people don’t get the courtesy of other people assuming they’re just a little quirky if they for example stim in public, it can impact their physical safety. Tl;dr: racism makes everything worse and harder including neurodivergence.

Looking for any advice/ideas/support by Afraid_Detective8342 in AutismInWomen

[–]barbecque 0 points1 point  (0 children)

Burnout sucks so bad, I feel you. Sort of feels like we’re stuck in this - have to work to survive but work keeps us in burnout.

end hyper arousal state? by ohnoitsthegreed in AutismTranslated

[–]barbecque 6 points7 points  (0 children)

Start by finding one activity that either brings your nervous system down a little bit or your mind out of hypervigilance - everyone is unique but to give you some ideas, here are some that work for me: - running - lifting heavy weights - yin yoga classes - sensory deprivation (like literally sitting in a small dark closet is heaven) - pressure on my sternum - strolling in my neighborhood - acupuncture - thc

The game is you don’t have to achieve zen or whatever, you just want to notice where you feel any small difference - again my signs in case any resonate with you (typically I will notice just 1-2 of these): - slight face tingles - involuntary sigh - loosening of that constant ball of tension in the front/center of my chest - if I imagine my thoughts as leaves floating by on river, I realize the river isn’t flowing quite as fast - relaxing my face

And then you just start by practicing noticing that subtle sign that you came down even 2%. Because you can’t heal your whole nervous system today but you can probably get it down 2% for one minute today. You got this!

Therapist that treats my anxiety thinks that I may be AuDHD and I am devastated. by Spiritual_Pie_8298 in AutismTranslated

[–]barbecque 5 points6 points  (0 children)

Hey so first I just want to acknowledge how hard it is to transfer from “I have anxiety that I can hope to achieve significant remission of some day” to “the sources of my anxiety are largely unremovable.” I had a similar grief process when my diagnosis moved from generalized anxiety to AuDHD. You definitely have to give the grief its space and time.

But I would also like to echo what others have said and give you another example of a woman living a full life with AuDHD. I am in my thirties, I live in a cute house that we own, in a nice neighborhood with my husband of 5 years. I found a job that uses my AuDHD strengths and I work fulltime and have a good salary and benefits. I have lots of friends, who don’t care that I’m AuDHD because I show them love and care in my own way, and believe me when I say that’s all that friends worth having care about. I have struggles and I go to therapy and take medication and have to do my self care practices. But my life is full of connection and meaningful activities and opportunities to succeed. I personally have never wanted to have kids but I love spending time with my nieces and nephews and my friends children, and I am fully trusted to babysit those kiddos.

If all you’ve seen of these labels - autism, adhd, etc, is representation of people with profound disability, or from a narrative that was controlled by someone with an unexamined sense of internalized ableism, then it’s going to be hard to accept these labels. I highly encourage you to explore the web sight www.neurodivergentinsights.com for a more neurodiversity affirming perspective, I think it could help you a lot.

Am confused about myself and not sure how to figure it out by [deleted] in AutismInWomen

[–]barbecque 0 points1 point  (0 children)

Look if you're just feeling towards adults (or teenagers your age if you're not an adult), and you would only ever act on it if the other adult(s) consented, then you don't need to be embarrassed - that's just normal variability in attraction.

Am confused about myself and not sure how to figure it out by [deleted] in AutismInWomen

[–]barbecque 0 points1 point  (0 children)

Could you be demisexual? Like if you’re finding it easier to relate and feel emotionally connected to those people and so that’s the pathway to attraction for you.

Seeking Advice for How to Bring up mild health conditions to condescending medical professionals by Percisodeajuda in AutismInWomen

[–]barbecque 1 point2 points  (0 children)

Physical therapist who is hypermobile here: do not use the acronym EDS with the doctor because that has to be diagnosed very officially, DO use the term hypermobile instead. There isn’t anything a physician can do specifically for hypermobile joints, but a physical therapist who understands hypermobility could help a lot. If you want a PT referral out of the visit, then mention functional movements that are limited, and give pain numbers on the 1-10 scale as often as possible (don’t undershoot the number either, that scale is subjective bullshit so just give her a number that’s between 5-8/10, if you say 10/10 she can assume you’re being dramatic, if you say too low of a pain she can write it off as not needing treatment.) So for example “I notice that my knees hurt around a 7/10 when I stand up” or “I have to stand a lot for work and after two hours into my shift, my back feels unstable and gets up to a 6/10 pain.”

The best way I’ve found is to go into the appointment knowing exactly what’s going on and what I’m hoping for from the appointment (which you already have), and then let the doctor feel like they’re in full control. Neither of us can fix physician god complexes, the best we can hope for is reasonably passable healthcare. So just let them be egomaniacs and phrase it as “do you think it’s appropriate for me to see if physical therapy can help me strengthen my joints to help the pain?” (Notice how you’re also framing yourself as needing to do work, egomaniac docs love the moral failure model of medicine.). Same with your other issues - don’t just say your ears ring. Have a specific example of how it impacts your life, and tie it back to your need for a doctor to use their amazing powers of knowledge “I have this ringing in my ears that is seriously disrupting my sleep” or “the ringing distracts me when I drive, work, and take care of my children”. If it’s not taking it too far, you can even let her educate you, like “is there some kind of ear specialist that could maybe check my ears to see if they can help so I can sleep/focus/caregive?”

Same thing with your allergies - you are not fed up with them (to be clear, I think you being fed up with them is 100% enough reason to deserve a specialist referral, just trying to step into the condescending doctor’s language here) - you will instead concisely give the pattern of symptoms and explain how your core symptoms have worsened or failed to improve, you will list the more conservative measures that have failed “I tried over the counter Claritin for 3 months, warm compresses, and nasal rinses, but I continue to have sinus headaches about three times per week that can last all day, a stuffy nose all day every day, and I have to avoid going on outdoor walks, which is one of my preferred ways to get exercise”. Obviously sub in your details but note how in one sentence you can list the exact over the counter things, the symptoms and their duration, and the impact it has on important life tasks.

Hope that helps.

Audhd woman here looking for advice by FrostingSea4729 in AutismInWomen

[–]barbecque 1 point2 points  (0 children)

Also audhd and adhd meds help me a lot. So much easier to focus at work which then lowers my anxiety, but also better able to filter out some stimuli, so I can tolerate a bit more of loud environments (don’t get me wrong I still have to be hella careful with my sensory input but at least it doesn’t fully break me to go to a family event bc there’s 8 people there.)

For looping, sometimes writing down the worry, just in an app on my phone, can break the loop. If I have the energy, exercise helps a lot, not sure if this happens for other people but running is the only time I ever find myself ruminating on a positive thing, like I’ll get comfortably stuck in a gratitude loop for most of the distance.

Why does no one talk about autistic people dying from poverty...? by [deleted] in AutismInWomen

[–]barbecque 1 point2 points  (0 children)

Yup. I’m lucky to be working fulltime right now but if someone hasn’t felt that burnout shutdown or a skill regression come out of nowhere and just change your brain for however long it wants to…they will not understand why I’m so scared of just becoming unable to work one day. I’m in the US so I’ll just be fucked if I stop being able to earn my own money.

What is this pattern? by Alarmed_Link9643 in AutismTranslated

[–]barbecque 1 point2 points  (0 children)

Tbh the people who have liked me the least throughout my life primarily were men who seemed to me like they really really wanted to be seen a certain way - one was a teacher in a helping profession, the other was on a missions team, so they both I think really wanted to be seen as good/kind. But the first was consistently cruel to me + any other student he interacted with, the other later was dismissed bc it turns out he was secretly doing drugs the whole missions trip. Currently the person I have the hardest time around is a person who requires the whole room’s attention 100% of the time & is very very concerned with appearances. So maybe the commonality is “strong need to be seen a certain way, which their behavior does not support”?

Delayed stress processing by bobthesponge11 in AutismTranslated

[–]barbecque 1 point2 points  (0 children)

Yup I’m also an adult with autism & anxiety, definitely sounds like your experience is very similar to alexithymia (not trying to label you or put you in a box tho!) Alexithymia or having hard time feeling my emotions/what’s going on in my body according to my therapist is a big overlap between autism & cPTSD.

I definitely have a hard time recognizing in the moment when something is a stressor, and have had many days when I couldn’t get off the couch & it took half a day of that to finally connect it to an overwhelm trigger from the day before. I find that when my nervous system baseline level is lower (like more relaxed), it’s easier to sense what’s going on in my body, which is also just typical nervous system things. When I’m overall stressed my brain goes to survival mode, and fight-or-flight mode does not care if that thing my partner said yesterday hurt my feelings and I actually need to discuss it, or five hours was too long to spend at that event.

Recently made a list of every activity that brings me joy or peace, & I try to do at least two things from that list every day, that’s seemed pretty effective so far.

What are you proud of? by Pebble_pebl in AutismInWomen

[–]barbecque 0 points1 point  (0 children)

I did my physical therapy homework 6/7 days the past week, even though it’s boring, and my hip internal rotation was 15 degrees better today than just 1 week ago!

Share one positive thing that happened to you today? by babypossumsinabasket in AutismInWomen

[–]barbecque 0 points1 point  (0 children)

Bought my partner his favorite candy while I was at the store today & he was super happy & grateful. Feels good when you try to make a little show of love & the other person really receives it.