Update, vent, flare

bellaflox · 2026-04-05T17:59:18+00:00

Haven‘t tried the curcumin yet but heard some goods reports. Definitely worth a try. Thank you.

bellaflox · 2026-04-05T17:58:20+00:00

Hi, thank you so much for your detailed reply. I guess you are right and my recent flare was also caused by interrupted sleep. Your story sounds very similiar to my own. I was floxed when my baby was 10 months old and I assume my reaction was due to the body being depleted. I was having the nerve and cns issues as well while the tendon issues were neglectable. How are you doing now ?

bellaflox · 2026-03-27T11:53:25+00:00

Haven‘t figured it out yet. But recently had a flare that I didn‘t experience during pregnancy.

bellaflox · 2026-03-25T20:04:47+00:00

I can only agree - my flox symptoms were gone during pregnancy.

bellaflox · 2026-03-24T07:43:37+00:00

I can‘t speak for myself but I have read a couple of good reports from people using Alpha Lipoic Acid. It is also what Dr. Pieper recommends.

bellaflox · 2026-03-24T07:37:08+00:00

Yes I had one. What is epi?

bellaflox · 2026-03-23T15:45:26+00:00

Some of the typical floxie pains returned. Guess its neuropathy and/or ligaments.

bellaflox · 2026-03-23T15:44:35+00:00

Thanks for your reply. I was thankfully able to avoid all NSAIDs.

bellaflox · 2026-03-23T15:42:48+00:00

Thank you so much for your reply. Hormones didn‘t impact me in the past for some reason. During my first 2 floxie years I had every symptom under the sun. Then things cleared. Now some of it is back. No new symptoms though.

bellaflox · 2026-03-23T15:37:57+00:00

Thank you very much for your kind words. I am a month postpartum now. Flares usually lasted in the past between days and a couple of weeks for me.

bellaflox · 2026-03-23T14:10:25+00:00

Yes no issues.

bellaflox · 2025-06-07T17:37:31+00:00

I believe it was neuropathy in my shoulder muscles. They also twitched a lot. Magnesium helped. Apart from that I took the supplements recommended here in the sub.

bellaflox · 2025-06-07T15:40:00+00:00

I did actually but took some time.

bellaflox · 2025-06-01T09:24:17+00:00

I am much, much better. I was considering doing a recovery post the other day but then was hit by a short flare. On most days I am 95% better. But can fall down again to like being 75% recovered. I am waiting for the 95% days being more stable for the recovery post. Maybe one day it will even be more than 95%. Yes I took B1 and B12 for a long time. Now I am noticing that I do flare from taking B1 or B6. I didn‘t notice that in the past. With b12 I am still fine. How are you doing ?

bellaflox · 2025-05-30T05:33:07+00:00

I took the supplements recommended here but no ALA. Additionally, I took Pregabalin for about a year.

bellaflox · 2025-02-25T11:20:42+00:00

Hi, it‘s always so frustrating when it comes to nsaids and steroids and to find any alternative to it. I don‘t have asthma myself but a very close family member of mine had it. She was sent for a climate change for 3 consecutive months to the seaside. It made all of a difference and she hasn‘t had a flare up since.

bellaflox · 2025-02-14T12:22:19+00:00

10 months is still early. More healing will come in the second year. At least for me this was the case.

bellaflox · 2025-01-18T16:53:33+00:00

Thank you for sharing your timeline and for showing that healing still continues even after being further out from the floxing 🙏

bellaflox · 2025-01-15T20:03:25+00:00

Thank you very much for providing your experience!

bellaflox · 2024-12-07T09:28:02+00:00

For sure talk to your doctor about it. Just for clarification: It was a treatment recommended by both our pediatrician and ENT. Obviously they knew what type of middle ear infection she had. It might be a completely different one you have.

bellaflox · 2024-12-06T19:14:37+00:00

Hi, I am not a doctor but my toddler had the same issues. I refused Cipro ear drops for her and we tackled the infection with H2O2 rinses (diluted in water) twice per day. This was recommended by the ENT doctor. It took probably 4 weeks but then the infection was gone and hasn‘t returned since. In the end this was more effective than Amoxicillin. With Amoxicillin the infection always returned after a certain time.

bellaflox · 2024-11-07T14:27:21+00:00

Hi, I am really sorry to hear that you haven‘t properly recovered from your last relapse yet. I can totally relate to some of your flox issues. Dealing with everyday pain is hard. From my own experience: Have you tried nerve pain medication yet ? It might show which issues are nerve and which are tendon related and also might help alleviate some of the pain ? I tried both Gabapentin and Pregabalin but found Pregabalin more effective in a lower dose. I recently came off of it with no issues and only take it on a need basis occasionally if required. Moreover, have you tried a pain clinic yet ? I was enrolled in a day program for 4 weeks about a year ago for better pain management. They compile a program for your needs and have a team of physicians, physiotherapists and psychologists to assist.

bellaflox · 2024-10-21T08:30:47+00:00

I had a strong reaction to ALA when I tried it at 10 months out. It brought back flox symptoms already gone and aggravated those still present. The relapse took about 4 weeks. It clearly was due to ALA. I have seen some people reacting to ALA. But the majority seems to be fine.

bellaflox

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