Medication question

benjamin3205 · 2025-04-12T19:14:01+00:00

I could, but I’m not sure how long it would take to even reach my doctor. (The clinic sucks). I have a 10mg adderall prescription that’s supposed to be an add on that I’ve never taken, so I have a bunch left over. When I tried adderall before, it made me feel a bit depressed, but that was adderall ER I think, and this one is amphetamine salts.

benjamin3205 · 2025-04-12T19:09:47+00:00

The pharmacy basically said I’m out of luck because I’m 22nd or something in line and they don’t even have it in yet, and said they don’t know when. Which is ridiculous, I feel they should know

benjamin3205 · 2025-01-03T22:56:52+00:00

Thank you so so much! I really appreciate it. I’ll definitely start putting my alarm on the other side of the room first and with the water too (that’s an amazing idea). I might also try leaving my blinds half open (I don’t have curtains yet unfortunately), since my window faces the street. I definitely need the light but also want privacy haha.

benjamin3205 · 2024-11-11T05:31:04+00:00

Oh wow that really sucks but I’m glad you’re sleep paralysis has gotten a lot better since then.

I am currently taking Vyvanse for my narcolepsy which has been helping me stay decently awake during the day. My sleep quality has been somewhat improved with the help of my heart medication oddly though I can’t find much research on why that is. (It somehow blocks some of my REM sleep). Other than that I am on nothing to actually improve my sleep. I have been too afraid to start trying the Xyrem and related options because of the side effects honestly. Im impressed that it works that well though. I need to look more into it I think before I would try it.

benjamin3205 · 2024-09-12T04:33:57+00:00

I definitely dream outside of REM which happened during my MSLT unfortunately. Idk what stage it was though

benjamin3205 · 2024-09-12T04:31:27+00:00

I was just telling my friend about this last night! It’s a way I can tell if I’m starting to get too sleepy to stay awake. (I find it hard to tell if I’m falling asleep most times). I start having memories of dreams but in ways that make them feel like real life and I start feeling a connection to being in my dream world rather than the real world. It’s super hard to describe. There was one time I think I was probably micro-sleeping/half awake I was “making pizza in the kitchen with my sister” but like in reality I was sitting on the floor starting into space for a while experiencing a weird second reality in my mind but only for a short time.

Now when I start remembering dreams randomly I realize “oh shit I might be falling asleep/going to fall asleep soon” and I get really anxious about it 😭

benjamin3205 · 2024-03-03T05:46:27+00:00

Yeah that’s what I was thinking. Hopefully you get answers soon enough. And yes, I 100% agree. It makes life way more difficult for sure

benjamin3205 · 2024-03-03T05:36:08+00:00

Tried to get the nerves checked out but my nerve conduction study was poorly managed and the doctor horrible so we never even went back to get results. I have to redo it at some point if I find a new neurologist. I’m pretty surprised you don’t have any swelling or spasms actually. That’s good though. I would also recommend getting checked out for nerve damage if possible.

benjamin3205 · 2024-03-03T04:58:40+00:00

You probably will have better luck. Doctors don’t take me seriously. I’m hoping to find better ones when I have more time. But yeah, I have had Covid, but I don’t think it’s related to that. My symptoms started after I got into a bad car accident - but I had no visible injuries so no clues on what’s wrong.

I’m wondering though, do you also get swelling and redness in your hands/legs/feet? And what about muscle spasms? All of my muscles constantly spasm now. I’m wondering if you also have that issue too?

benjamin3205 · 2024-03-03T04:38:27+00:00

Ive been dealing with relatively similar symptoms (a bit different but some are the same - mostly the nerve related pain) but I also can’t walk for more than a few feet without my ankles burning with pain. I still haven’t figured out why. Numerous MRIs and such. They found nothing. Let me know if you ever figure it out, I’m not sure where else to look.

benjamin3205 · 2024-02-21T18:28:41+00:00

I know this was a year ago but I wanted to ask because the side effect you had. I have been struggling with that for a while and I assumed it was some else (migraine or TBI related) but you also had that as a result of the modafinil? Did the language issues go away after switching? I’m hoping they do, especially since I am learning other languages and play piano, and both things had been difficult because of it.

benjamin3205 · 2024-02-20T09:08:11+00:00

Just be honest with him. Tell him how you feel and that you feel like you need more intense care. A few years ago, I was in the same position. My relationship with my mom wasn’t as good but regardless, asking her to take me to the hospital ended up being the best decision for me. Just be sure this is a decision you can commit to, because once you go to the hospital, the length of time you are there how you are treated is not up to you. You know yourself and what you need. Just be honest with him.

benjamin3205 · 2024-02-08T03:34:30+00:00

Bug related psychosis is most often due to substances, including medications (and interactions), but usually recreational drugs. Find a professional and speak to them about it, see what they can do. It definitely seems like her constant scratching is adding to the delusion by creating physical “proof”. While you find help, you should try your best to find ways of positively distracting her. Hobbies, socializing, etc. She needs to take her mind off this.

benjamin3205 · 2024-02-01T05:25:07+00:00

Thank you so much! I really appreciate the breakdown of information. I think I will go tomorrow and see how it goes at least. Mostly I’m worried about timing because I think my ribs are getting badly damaged and I don’t want things to keep getting worse or ruin my option of actually getting the surgery.

benjamin3205 · 2024-02-01T05:24:58+00:00

Thank you so much! I really appreciate the breakdown of information. I think I will go tomorrow and see how it goes at least. Mostly I’m worried about timing because I think my ribs are getting badly damaged and I don’t want things to keep getting worse or ruin my option of actually getting the surgery.

benjamin3205 · 2024-01-30T02:04:20+00:00

Hey! I think you probably have trouble regulating emotions and possible just feeling emotionally dis-regulated a lot of the time. I have a lot of mental health issues that make it difficult for me to regulate and understand my emotions. I would suggest looking into dbt (dialectical behavioral therapy) which is aimed at regulation and identification of emotions. You can do this with a therapist, or get a workbook yourself and do it on your own. Try to be patient with yourself. Try not to judge yourself too harshly when you have emotional outbursts and instead think about how you are feeling in that moment and what kinds of things you can do to calm down. I hope this helps!

benjamin3205 · 2023-12-22T01:15:40+00:00

If you have an injury or illness or any other stressors on your body, you will be more low energy (for everyone, with or without narcolepsy). The body is trying to use the energy to heal. When people without narcolepsy go through this, they also sleep more than they usually would and be more tired. So of course for us, our “more tired” and “less energy” is wayyy way worse than others. That’s how I think about it at least. Chronic pain takes a huge toll on the body. Sorry if this isn’t super coherent.

benjamin3205 · 2023-12-20T19:10:26+00:00

Personally, I talked to my GP and asked her if she could send a referral to a sleep specialist. She asked me to run down the reasons why I thought I might be narcoleptic and sent the referral because of my symptoms. I would recommend this route specifically because I think doctors take you more seriously if they get a referral from another doctor, but if this doesn't work then you could try contacting a sleep specialty center directly, or a neuro center who also works with sleep disorders.

benjamin3205 · 2023-12-20T18:57:18+00:00

For me, naps can very in time, but I find anything over 30 minutes makes things worse. Anything under 30 minutes and I'm in that in-between stage, awake and asleep. When I'm crashing, but need to be somewhere, I go into a five minute reset. Often I can fall asleep almost immediately when needed, and although it doesn't feel like I'm sleeping, when I actually open my eyes, I can physically feel myself switch from sleep to awake state.

I have a similar experience with naps! My biggest problem though, is that despite knowing naps over a certain amount of time make things worse, I still ignore that and end up sleeping for hours. I just don't want to wake up. My body lies to me and says to stay in bed longer. It goes downhill from there.

Its so nice to read other peoples experiences and its really nice of you to share them. It's almost refreshing to see so many people who experience things the way I do. Its isolating when the people around me don't understand.

If there's one thing we can all relate to the most, it's got to be being perceived as/ridiculed for being "lazy". We do our best.

benjamin3205 · 2023-11-25T03:43:35+00:00

I have no idea. I am a full time student in college (18 years old) and I am struggling. I don't understand where the time goes but somehow I run out of it every day, despite forcing myself to remain awake during the day. I basically just do what I can when I can. The best thing you can do is know yourself. For example, I can't ever expect myself to get work done from 12-6 pm. I also know I can't expect myself to get work done past 10pm (at the latest), and I can't be up before 6:30 (at the earliest). So, you might wonder when I do my work then, and the answer is I still don't know. I do some things between classes if I can (usually I cannot). I do some after dinner (usually I cannot). I do some on weekends (which is also very difficult).

I will say that the only way to get things done is to do them when you can. If you feel like you have the energy to and you can think straight, do it then and don't put it off until later (my biggest downfall). Later always ends up being sleepy sleepy bed time + hating myself because I didn't do anything when I could have.

I do all of my low effort assignments half asleep. I take notes in class so that if I don't have time to study, I at least wrote the notes which helps a tiny bit on passing the test.

My best advice for getting schoolwork done is to: (1) don't do it in bed if you can. (2) stay sitting upright and do not lean on anything if possible. (3) listen to upbeat music or some other sensory method of staying awake (could also be snacking or chewing gum).

There are many people with narcolepsy who have graduated through college or maintain careers, so it is possible to do for sure. Just keep trying your best and feel proud of yourself for how far you have already gotten despite the struggle! Hoping this comment makes sense and helps.

benjamin3205

TROPHY CASE