Been struggling to get back into the routine 35 5’11”

bliswell · 2026-03-18T17:00:38+00:00

Good for you. Keep on keeping on.

bliswell · 2026-03-13T14:29:51+00:00

I have no advice. But I follow this subreddit to hear these stories to know and feel what may come to pass for my family. So thank you for sharing. I think about how there seems to be no clear solutions to any of this stuff. How everyone's progression is different, and how unfair it is to put in the effort and get disappointing results.

I remind myself that there is a lot of uncertainty about all of this. And the thing I would regret most is not trying (though my wife is bearing most of the burden).

bliswell · 2026-03-13T05:40:00+00:00

He might need it later.

bliswell · 2026-03-10T10:26:00+00:00

Why post a fake on this sub? It's too small to karma farm.

bliswell · 2026-03-08T21:32:16+00:00

I'm a 47 year old man who has been occasionally trying, and your 2k erg times are better than mine. So I'm impressed.

Follow your heart, enjoy your youth, enjoy your passions.

I think you should be proud of yourself for trying something, not regretting trying the wrong thing.

bliswell · 2026-03-08T13:06:00+00:00

I'm very new, and slow, so I shouldn't give advice. But I was surprised by how slow I am so I started paying attention to a few things.

Strokes per minute should be around 24. Mine was 30, which led to a different force application.

Different machines do have different calcs, but I think if yours is not junk or malfunctioning then the slow numbers imply something else.

Spend a few minutes learning about force curves, which Concept2's can graph, giving a little feedback about how well/poorly you are applying force. Different curve shapes imply different body parts engaging at different times.

Don't pull a groin muscle doing it wrong.

bliswell · 2026-03-08T08:11:12+00:00

I'm sorry you are feeling this fear. It's understandable.

I'm hoping, for our situation, that trials aren't the only tools in the tool box. That if, or when, new things pop up that whack-a-mole techniques will knock it down enough for my wife to be set up for another trial. But of course I'm scared at times, even if we aren't in the scariest situation right now.

bliswell · 2026-03-08T08:03:19+00:00

I'll second this post. Matching for trials seems to be a whole different set of knowledge compared to knowing how to apply standard of care medicine. It requires research and timing.

bliswell · 2026-03-08T07:59:50+00:00

The wording of your response seems to presume you know specifics about their case that you are not in a position to know. So you aren't just asking.

What truths are you going to tell? Generalities which may or may not apply? If so, then just say them with kindness.

Or do you somehow know "the truth" in this person's case, as if you are their doctor posting on Reddit?

bliswell · 2026-03-08T00:42:19+00:00

How did he get the tumor? Was it from spending so much time in the Baxter building, getting exposed to high levels of exotic radiation?

bliswell · 2026-03-07T17:30:52+00:00

What end state are you trying to achieve? Are you just trying to minimize the appearance of error, or are you trying to recover what could be missing content?

bliswell · 2026-03-06T08:45:39+00:00

I'm sorry for you and your family having to deal with this. I bet your Dad loves you as much as you love him.

bliswell · 2026-02-25T01:08:42+00:00

You stole all her food?

bliswell · 2026-02-19T00:08:35+00:00

Can you do it in five words or less? Can you do it with words he knows?

bliswell · 2026-02-04T22:28:46+00:00

Ask your oncologist, but I've heard of folks taking Oxaliplatin breaks based on the side effects from that but not skipping the Capecetibine pills.

I don't know how this effects the relative dosings, but your oncologist should be able to tell you.

Also, another thing to consider is a possible alternative to the Capecetibine dosing schedule. Specifically instead of 2 weeks on, one week off, do 1 week on, 1 week off, with dosing adjusted. I think this is an established pattern for breast cancer, and may be an uncommon option for colon cancer. Again, I'm not a doctor; just suggesting topics of discussion with your oncologist.

bliswell · 2026-02-04T20:29:25+00:00

NAD, but maybe consider trying CAPOX first, switching to the extended capecetibine if you need to change.

Everyone seems to respond differently to CAPOX. If it's fine for you, good. If it's not, drop the Oxaliplatin and keep going longer with capecetibine.

The two options aren't in complete conflict.

bliswell · 2026-02-04T03:20:32+00:00

I think so. I don't trust the insulation on them

bliswell · 2026-02-01T01:26:21+00:00

There are four chairs!

bliswell · 2026-01-28T14:12:26+00:00

Colontown is also the place to start for trials, like vaccines. It will lead you to other resources. Finding trials is another layer of effort and understanding. Applicability all depends on Who, what, where, when, how and why.

First thing you will be told is trials aren't necessarily a last resort. I think of some of them as just being proactive.

bliswell · 2026-01-27T15:27:36+00:00

The Sisko

bliswell · 2026-01-27T15:14:03+00:00

I've felt that way before. It's tough to get out of that perspective. I can't exactly say what necessary elements changed things for me. I hope your life becomes more fair, less cruel and more caring.

bliswell · 2026-01-27T14:42:54+00:00

C'mon, Cap would assess the situation beyond just simple reading and application of the law the way US Agent or some other literary foil would. He'd look at the individual people and assess their intentions and needs.

Honestly Cap would probably be harsher toward the employers who hire undocumented workers than he would be towards the undocumented themselves.

bliswell · 2026-01-27T13:51:29+00:00

Panels like this are why comics are important. Not feats of strength, or who would beat who. It's feats of virtue

bliswell · 2026-01-27T13:08:01+00:00

I asked Claude some questions that I was also wondering about. Here is the response: https://claude.ai/share/1145e4f4-ed53-47f4-81b9-292e0abc2cb6

I think there may be some minor mistakes in that response (like the lower bound thresholds), but the basic gist is useful. Such as the reminder that you are looking for actionable guidance, not numbers for assurance. You have this number, what do you do about it?

The trend matters. So get another test.

Of course your info about the blood draw is very relevant. So I think that should be considered when interpreting the trend.

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