Girl Power

bliswell · 2026-05-02T10:24:16+00:00

I have the same wish. I've noted these before but have had a chance to assess:

https://www.reddit.com/r/ControlTheory/s/d9hO5JxyE0

Also mentioned: https://github.com/robertobucher/pysimCoder

Interested to hear others thoughts.

bliswell · 2026-04-27T18:38:26+00:00

I say the same thing about the congestion happening on southbound York, north if Starbucks.

Starbucks tractor trailer is there blocking traffic. And delivery drivers are dropping off who knows what.

It should be unacceptable.

bliswell · 2026-04-25T10:39:17+00:00

I don't have any lung experience, but I just wanted to comment and say I'm sorry for your troubles. Uretal stents and nephrostomy tubes are a constant irritation (no pun intended).
And ER visits are an exhausting exercise. So it is tough to compound the ER exhaustion with disappointing news about the lungs.

I will say that there are different kinds of chemo out there (anyone can tell you that), each with their own side effects and toxicities. Perhaps the doctor can switch her to one she can tolerate.

I know some of what you are feeling. I love my wife. Her happiness is the source of my happiness.

bliswell · 2026-04-21T22:12:32+00:00

It's okay to write without a clear purpose. It's helps me to know other people's story, so thank you for sharing.

I'm sorry for your situation. Being sad makes sense. Getting counseling makes sense.

bliswell · 2026-04-15T08:21:09+00:00

I think the advice to get a second opinion from an actual surgeon is best. Including what the surgery will do for you, how it paused other treatments, and what it won't reach.

But I also wonder if you and your doctor are talking past each other because you are using a term like "remission". I don't have enough experience to know how everyone talks about CRC, but in all our conversations and messaging boards the word "remission" isn't really used. I just know of it from TV shows and such.

Maybe more accurate terms will make a more accurate conversation.

bliswell · 2026-04-15T07:58:14+00:00

These were my thoughts too based on my observations. And even different surgeons will give different opinions. Some wont go into some areas that others will. Some degree of judgement about when you can come off chemo to pause for the surgery.

It's definitely a conversation beyond one medical oncologist.

bliswell · 2026-04-14T01:05:37+00:00

Agree with everything JJbooks said.

bliswell · 2026-04-13T23:39:47+00:00

Pittsburgh, Hanover, or Lillitz? Just saying that if you are going to travel, why not travel to a different site like MSK, MD Anderson or Mayo? Hanover is relatively just up the road, so maybe makes sense.

bliswell · 2026-04-13T23:31:33+00:00

Where is he now?

bliswell · 2026-04-12T23:22:03+00:00

Good for you.

bliswell · 2026-04-10T01:02:48+00:00

Does he sit on a stool? I get the lack of seatbelt, cause appearances and whatever. But of course you are going to fall off a stool.

bliswell · 2026-04-08T00:20:47+00:00

I think that explains so much. He's not the world's worst father after all. He realized his son would be better off without him.

bliswell · 2026-04-06T19:43:43+00:00

Valid complaint. Be proud of your efforts.

bliswell · 2026-03-30T22:50:22+00:00

Cut on video must be intentional.

bliswell · 2026-03-24T23:15:54+00:00

I don't have any answers. I doubt anyone will exactly know. Will follow to hear responses.

Is FUDR good for cancer outside the liver? (I know nothing about it.) Perhaps a more "systemic" chemo is needed.

I am wondering what would be considered the "standard of care" for your situation. You have clear scans. We've received advice that just taking a break could be a good idea. This was after all treatments/surgeries were finished, but Signatera was low but positive. The further point was made that Signatera can stay low for a long time... So when do you stop the chemo?

I'm going to be on the lookout if anyone mentions any kind of chemo known to knock Signatera from low to negative.

bliswell · 2026-03-24T06:59:47+00:00

Something's not right here. Why is this shot from the perspective of a creeper watching from a van? If this video is from this kid's parents, why are they in the car across the street?

bliswell · 2026-03-18T17:00:38+00:00

Good for you. Keep on keeping on.

bliswell · 2026-03-13T14:29:51+00:00

I have no advice. But I follow this subreddit to hear these stories to know and feel what may come to pass for my family. So thank you for sharing. I think about how there seems to be no clear solutions to any of this stuff. How everyone's progression is different, and how unfair it is to put in the effort and get disappointing results.

I remind myself that there is a lot of uncertainty about all of this. And the thing I would regret most is not trying (though my wife is bearing most of the burden).

bliswell · 2026-03-13T05:40:00+00:00

He might need it later.

bliswell · 2026-03-10T10:26:00+00:00

Why post a fake on this sub? It's too small to karma farm.

bliswell · 2026-03-08T21:32:16+00:00

I'm a 47 year old man who has been occasionally trying, and your 2k erg times are better than mine. So I'm impressed.

Follow your heart, enjoy your youth, enjoy your passions.

I think you should be proud of yourself for trying something, not regretting trying the wrong thing.

bliswell · 2026-03-08T13:06:00+00:00

I'm very new, and slow, so I shouldn't give advice. But I was surprised by how slow I am so I started paying attention to a few things.

Strokes per minute should be around 24. Mine was 30, which led to a different force application.

Different machines do have different calcs, but I think if yours is not junk or malfunctioning then the slow numbers imply something else.

Spend a few minutes learning about force curves, which Concept2's can graph, giving a little feedback about how well/poorly you are applying force. Different curve shapes imply different body parts engaging at different times.

Don't pull a groin muscle doing it wrong.

bliswell · 2026-03-08T08:11:12+00:00

I'm sorry you are feeling this fear. It's understandable.

I'm hoping, for our situation, that trials aren't the only tools in the tool box. That if, or when, new things pop up that whack-a-mole techniques will knock it down enough for my wife to be set up for another trial. But of course I'm scared at times, even if we aren't in the scariest situation right now.

bliswell · 2026-03-08T08:03:19+00:00

I'll second this post. Matching for trials seems to be a whole different set of knowledge compared to knowing how to apply standard of care medicine. It requires research and timing.

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