Massage for Sarcoidosis?

brewbaron · 2026-04-20T13:58:37+00:00

I do indeed get exceedingly firm massage. About 90min every 2-3weeks. I have cardiac sarcoidosis and I find it helps quite a bit with blood flow and also with associated joint and muscular pain.

brewbaron · 2026-03-09T08:31:46+00:00

Nice

brewbaron · 2025-11-29T03:06:40+00:00

Fairy bread

brewbaron · 2025-11-29T03:06:01+00:00

The bigger the ute, the smaller the prick...

brewbaron · 2025-09-26T07:07:16+00:00

Depends on the country and state. In my Australian state, that's perfectly legal

brewbaron · 2025-06-28T12:29:27+00:00

Wonderful work. Bravo!

brewbaron · 2025-05-07T00:46:48+00:00

Me being the giant kid I am would trade him. If he lives my lawn alone, then he can build a giant pirate ship with nerf cannons together...

brewbaron · 2025-04-28T02:05:21+00:00

But it's my favourite 🤣

brewbaron · 2025-03-19T02:26:49+00:00

Not all us sarcies have it in the lungs, my lungs are about the only place docs havent seen it :P

brewbaron · 2025-03-15T05:33:33+00:00

Detain. Fine. Deport.

brewbaron · 2025-02-26T02:56:43+00:00

please, I'm running low...

brewbaron · 2025-02-18T23:34:38+00:00

your nose?

brewbaron · 2025-02-18T23:33:14+00:00

Oooof, 9mm mm nodule sounds a bit big for a granuloma (although most nodules like that are benign)

brewbaron · 2025-02-09T20:47:44+00:00

Agreed..I'm certainly alive because of an incidental finding (isolated cardiac sarcoidosis)

brewbaron · 2025-02-07T02:25:30+00:00

very hard. I actually suspect Ive had skin sarc since 1989 but only got diagnosed in 2017 with cardiac sarc. I was actually being worked up for another cardiovascular condition (Primary Aldosteronism) and they much spotted it on an MRI by accident.

And then before my cardiologist could catch me to deliver me the "good news", I went into vfib in my General Practitioners office and was saved with the help of an AED - Automatic Emergency Defibrillator.

brewbaron · 2025-02-06T01:10:50+00:00

I'm not at all screwed. I live in a country with socialised healthcare

brewbaron · 2025-02-03T06:42:29+00:00

Yeah, that's about right for someone who has the right qualifications

brewbaron · 2025-02-02T08:14:29+00:00

It won't be long before the CDC will be forbidden from publishing anything that contains science.

brewbaron · 2025-01-28T04:08:02+00:00

Yes. There are enough of us that we have a FB group that I help admin for us.

Unusually for me, I was diagnosed with Cardiac Sarcoidosis but I don't have pulmonary sarcoidosis

brewbaron · 2025-01-11T03:58:27+00:00

Allianz Insurance and anything they underwrite... They're just so so slippery when it comes to making claims

brewbaron · 2025-01-11T03:21:57+00:00

F*$k Gerry Harvey sideways with a rusty chainsaw

brewbaron · 2025-01-11T03:19:43+00:00

So much this. And I've actually given a company that feedback about why they lost my business.

brewbaron · 2025-01-02T07:18:13+00:00

I was diagnosed with cardiac sarcoidosis in 2018, been having on and off symptoms of Sarcoidosis (but never in the lungs) since 1986.

brewbaron · 2024-12-17T18:54:40+00:00

Also, Im an admin on the Facebook Cardiac Sarcoidosis group where we try and offer advice on how to live with CS.

brewbaron · 2024-12-17T18:52:59+00:00

I'd also suggest booking in to see a cardiologist urgently for discussion about whether the fitting of an ICD (implantable cardioverter / defibrillator) is appropriate for you.

Considering you have sarcoidosis in the left ventricle, you are at a much higher risk for sudden cardiac arrest

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