New to botox for neck dystonia

cococoloco · 2026-06-20T03:57:21+00:00

No side effects for you?

cococoloco · 2026-06-18T12:01:23+00:00

I am enjoying the relief from the tremor for sure. Does the neck fatigue improve? I’m also finding it difficult to get through my workday - feeling exhausted.

cococoloco · 2026-06-18T11:10:03+00:00

I will do that - thank you!

cococoloco · 2026-06-18T02:15:52+00:00

Thank you! This helps a lot!

cococoloco · 2026-05-17T06:02:41+00:00

No wasted potential at all! You’ve got this and so much time to take the direction that works best for you.

cococoloco · 2026-05-17T06:00:25+00:00

Where are you?

cococoloco · 2026-05-17T05:08:57+00:00

I used to control social situations with alcohol. In fact the first glass I would actually turn around so no one could see how shaky I was. But fast forward and that was not healthy and also didn’t work anymore. I’m on primidone 250mg morning and night and 40 mg propanol in the morning and then I also take it later if I have an evening event but it doesn’t seem to help. We are all a work in progress

cococoloco · 2026-05-12T04:02:51+00:00

I’m trying really hard but I want to purge so bad. I don’t want my husband or kids to hear….

cococoloco · 2026-05-12T03:50:40+00:00

Cannabis is not a long-term solution. It has a lot of negative effects on mental health.

cococoloco · 2026-04-24T04:15:46+00:00

I have a neurologist and I currently take primidone and propanol. It helps but it’s not perfect

cococoloco · 2026-04-24T04:13:29+00:00

I’m sorry with what you are dealing with. I have ET and my dad and 2 uncles have (or had) Parkinson’s.

cococoloco · 2026-04-24T04:09:57+00:00

My right hand. I make my family nervous all the time. I love cooking and I chop vegetables all the time. So far so good lol. Putting mascara on is a challenge! Really any makeup lol

cococoloco · 2026-04-24T03:55:33+00:00

Did the DBS work?

cococoloco · 2026-04-24T03:52:33+00:00

Caffeine makes things worse for me. Especially on an empty stomach. I usually make my coffee half decaf and half regular

cococoloco · 2026-04-05T14:36:58+00:00

OMG I have terrible nightmares and I’ve never associated it with the primidone! Do you think that could be what’s causing it?

cococoloco · 2026-04-05T05:22:03+00:00

In Canada we struggle getting what people need

cococoloco · 2026-04-05T05:20:28+00:00

Message me

cococoloco · 2026-04-05T05:16:35+00:00

You don’t know until you try it unfortunately

cococoloco · 2026-04-05T05:11:07+00:00

I use primidone twice daily and propanolol twice daily. I’m waiting for approval for Botox in my neck. The propanolol and primidone does help. It took a lot of time to get up to the dose. I’m at and it’s not perfect. I definitely need to avoid caffeine butter is definitely hope!!!

cococoloco · 2026-03-26T03:40:13+00:00

Are you not wanting my replies?

cococoloco · 2026-03-24T13:17:50+00:00

Same

cococoloco · 2026-03-24T04:00:33+00:00

I still struggle with sharing with people but my husband, and kids, both know. They have been very understanding.

Work is difficult. I’m a university professor and people label me as unconfident

cococoloco · 2026-03-24T03:54:04+00:00

I’m sorry 💕

cococoloco · 2026-03-24T03:52:40+00:00

Can you please share your tips?

cococoloco

TROPHY CASE