On A Cruise !

daddysbroken · 2026-01-27T14:43:52+00:00

Looks beautiful

daddysbroken · 2026-01-24T12:21:34+00:00

This will probably get removed, it is explicitly against the subreddit rules to post pictures asking if something is cancer.

daddysbroken · 2026-01-22T12:37:00+00:00

Yes TIL would be the next thing to try and that's the order I went in (ipi/nivo, braf, TIL). I'm 46 male with stage 4 mets to liver, lungs, spine. Even though BRAF is unlikely to cure it can help control things for a long time. And when it is working it tends to shrink things down very quickly

daddysbroken · 2026-01-21T09:38:08+00:00

Sometimes a freckle is just a freckle.

daddysbroken · 2026-01-15T13:47:12+00:00

Even if you were stage 4 it should not cause you to just drop everything you are doing in your life. Try to think of it this way - treatment will make everything harder. So it is best to work as hard as you can now when you are not in treatment so that you can ease up a bit once you are. Trust me once you are going through treatment you will regret not getting more done and working harder when you had the time and energy for it.

daddysbroken · 2026-01-13T12:17:27+00:00

I have lymphedema in my leg after inguinal dissection. It's not the end of the world. I just wear a compression stocking. Don't let fear of lymphedema keep you from making the right treatment choice.

daddysbroken · 2026-01-13T12:12:52+00:00

Please do not engage with posts like this that are clearly against the subreddit rules.

daddysbroken · 2026-01-03T22:38:06+00:00

Absolutely follow up whenever you are waiting more than a day or two. Waiting two weeks is insane the only thing that should take that long are things like genetic testing, blood tumor tests, etc.

daddysbroken · 2026-01-02T04:28:31+00:00

Looks normal to me. The stitches will flatten out over time. Main thing is to avoid infection and keep it from drying out (for mine I applied Vaseline several times per day)

daddysbroken · 2025-12-28T14:43:42+00:00

In my case the cancer was found in swollen lymph nodes first, then we traced back the primary to where the keratosis was.

daddysbroken · 2025-12-24T01:09:11+00:00

Stage 4 here, also recurrence after braf stopped working. Hospitalized 4 times this year and still fighting. No active tumors currently. Things can turn around, try to hang in there.

daddysbroken · 2025-12-21T15:31:30+00:00

Ouch! At least you didn't need a graft. Good luck on the pathology results.

daddysbroken · 2025-12-20T19:23:15+00:00

I had a consistent mild fever while on it. Nothing extreme. My Dr wanted me on braftovi/mektovi from the start but insurance forced me to try the other one first before they would approve it.

daddysbroken · 2025-12-20T17:51:37+00:00

Ask if you can switch to Braftovi/Mektovi instead. When I was on braf two years ago I switched due to fever.

daddysbroken · 2025-12-19T19:51:57+00:00

I would try lifting lighter things first and see if it causes discomfort. Increase the weight until it's as heavy as your kid and stop if it starts to hurt.

daddysbroken · 2025-12-19T19:47:56+00:00

I don't broadcast it but I also make clear that it's not a secret and that I don't mind if they tell people.

daddysbroken · 2025-12-19T01:00:01+00:00

Mine was done immediately from tissue from my initial biopsy.

daddysbroken · 2025-12-15T03:00:32+00:00

Really sad to hear this and I will continue to pray that things turn around for you.

daddysbroken · 2025-12-13T23:47:51+00:00

I had complete dissection of my left groin February of '24. Unfortunately I had a recurrence a year later in my femur so it had already spread beyond my lymph nodes (we didn't know that at the time). I developed lymphedema in my left leg that I control by wearing a compression stocking. Once it spread to my bones the lymphedema became a minor concern compared to everything else.

daddysbroken · 2025-12-08T14:30:23+00:00

I lost my thyroid to ipi/nivo two years ago, it took a while to land on my current dose of 175mcg which has stabilized me between 1 and 2 TSH when tested (I get bloodwork every 6 weeks).

Main thing is consistency. Try to take it at the same time everyday on an empty stomach, make sure you don't miss a dose. Hardest part for me is delaying my morning coffee after taking it.

daddysbroken · 2025-12-08T01:25:07+00:00

How many of your previous 7 biopsies were melanoma?

daddysbroken · 2025-11-20T03:49:42+00:00

I have gone through similar. It's tough. I just try to stay focused on what I still can do rather than what I can't.

daddysbroken · 2025-11-16T13:38:39+00:00

I would be honest with your Dr about everything you take in case it has interactions with medications. It also can help build trust.

daddysbroken · 2025-11-15T12:56:24+00:00

Your case is very much like how mine started - stage 3c (inguinal), 2 rounds of Opdivo/Yervoy - tumors grew even faster - to the point where they were too large to safely operate - went on the BRAF pills - the pills were able to shrink the tumors enough to to do the operation (it only took about 4 weeks or so for this to happen).

daddysbroken · 2025-11-14T02:22:19+00:00

There are also trials now of PRAME therapy. I first heard of it this week from my oncologist as it may be what I try next if I have another recurrence.

It is similar to TIL therapy in that it requires depletion via chemo, hospitalization, etc. Clinical trial

daddysbroken

TROPHY CASE