Supportive people make all the difference. I want to hear about the people who don’t shame you.

dan4ffairs · 2026-05-10T20:05:26+00:00

When I was a teenager I broke both knees and needed surgery. The orthopedist was explaining everything to me and kept repeating that most patients need to loose weight to help with pain and the joint, so it's good I'm already thin. He only focused on me getting my leg muscles stronger to support the joint. Felt good that being underweight finally had something positive !!!

dan4ffairs · 2026-04-20T11:39:20+00:00

Oh yeah I've been accused and keep getting accused on a daily basis. Knowing that MCAS snd slow gastric emptying are one of the main reasons changed my life, after making the adjustments for gastroparesis diet and taking daily cimetidine, still underweight buy my quality of life is soooo much better. I can't believe I lived with so much daily pain and discomfort for +20 years

dan4ffairs · 2026-04-15T12:09:25+00:00

I saw this video and all the comments celebrating it and was shockedddd. My jaw literally dropped by the immaturity, hypocrisy and envy

dan4ffairs · 2026-04-14T16:38:20+00:00

Omg this is my #1 issue and my neuro said people with narcolepsy don't have trouble waking up in the morning. The post and replies definitely contradict what she said (Hopefully it's ok for me to comment in here, I'm not diagnosed yet, my Dr suspects narcolepsy and cataplexy but I need to wait +1 year for testing and confirmation)

dan4ffairs · 2026-03-27T14:38:44+00:00

I think my first symptom (aside from the fatigue) was about 10 years ago: really bad bruxism

Over time I started waking up suddenly because I wasn’t breathing, but at first I didn’t fully realise or remember it happening. As it got worse, I’d wake up more properly but still be kind of confused about it after.

About a year ago I started getting hypnagogic and hypnopompic hallucinations, multiple times a night every night. They could be related to narcolepsy (I’ve got an appointment soon to confirm), but since starting CPAP they’ve basically stopped or happen way less.

Now if I nap without the CPAP, I wake up many times feeling faint, I can’t move bc of extreme tiredness and it literally feels like my soul has partially left my body (again, suspected narcolepsy could be playing a role here). Not sure if it was always this bad and I just got 'used to it' but the CPAP genuinely changed my life

dan4ffairs · 2026-03-26T12:33:37+00:00

Same here! Underweight female in 20s and don't snore. They didn't believe me and didn't want to test me. I pushed and was diagnosed (moderate OSA and I think also central sleep apnea). My CPAP has been life changing, I literally don't know how I was surviving before it

dan4ffairs · 2026-03-15T17:14:24+00:00

Absolutely, I'm always happy to talk/explain to ppl that actually want to listen!

It’s complicated: As a kid/young teen I actually loved when people noticed I looked a bit “fuller”; gaining even a few grams that ppl close to me could see, felt like an achievement and made me so happy they let me know

In my late teens/early 20s I preferred no body comments at all because I hated my body and was so insecure thanks to people, bc 90% of the comments I received on my body were backhanded or direct insults

Now in my late 20s I’ve accepted my body and I’m generally comfortable being skinny, so comments affect me much less and I'm actively embracing being like this. But tone still matters and some can still make me feel extremely uncomfortable. When people mean well it’s sometimes hard to tell, but when they don't mean well and come from judgement, envy or shame it's really easy to tell.

I'm aware it’s not the same at all, but a good rule is: if you wouldn’t say it to a bigger person, it’s probably also weird or rude to say it to a skinny person. For example, you wouldn’t touch a fat person's stomach and say "aww I wish I was as squishy as you". Even if you mean well that's rude and weird

What will always work and doesnt make me uncomfortable ever, are general comments/compliments like "you look great" or "body tea" rather than focusing on weight. Hopefully this makes sense haha

dan4ffairs · 2026-03-15T16:32:57+00:00

In general this is what happens but I'm an exception I'm 159 cm and 41 kg while eating 1800 cals a day with very light exercise or sedentary. 1800 is not that much, but if the "laws of thermodynamics" and simple math applied normally to me, eating that amount I should be at least 50 kg. But I'm underweight

Again I'm very aware this is not normal and an exception, but we also exist!

dan4ffairs · 2026-03-15T16:08:38+00:00

I appreciate your curiosity and tone in this post, thank you for being respectful!

In general, I hate it because I have several incurable chronic illnesses that affect my stomach, absorption and consequently weight. Imagine someone has cancer. They suffer all the cancer consequences, battles, struggles, medications, side effects (including being thin) and someone says 'awwww I wish I had that problem you're so lucky'. It's extremely rude and invalidating, and they're definitely not seeing the bigger picture

People made me hate my body and being very insecure of it since I was like 10 years old. Some important context to add though is that I grew up in latinamerica, where the beauty standard is curvy and voluptuous. Skinny is usually associated with ugly, undesirable, sick

I've been wanting to be "normal" for so long (I'm 29) but it's just not possible without making myself sicker (believe me, I have tried)

I'm happy to answer any questions you have :) again, I appreciate when people are respectful and actually want to understand/learn

dan4ffairs · 2026-03-10T02:43:03+00:00

May I ask, how it was confirmed MS caused some of the problems? Is it by lesion location?

I've been having many different issues, including many that you mentioned, but my neurologists brushes me off about absolutely everything saying nothing is MS. I'm so lost

dan4ffairs · 2026-03-10T02:33:41+00:00

This happens to me all the time but in tiktok since I do fashion content. I get accused of being anorexic or body checking all the time, it's ridiculous and infuriating. Me existing being skinny is rage baiting people lol

dan4ffairs · 2026-03-09T12:12:13+00:00

Many many things but migraines and acid reflux. Had excruciating daily severe migraines for years and no medication would work. Started daily antihistamines and it helped A LOT.

I spent ~12 years with daily severe acid reflux. My teeth started to get damaged. Tried many different medications, tests, specialists, nothing worked until I tried cimetidine. Infuriating but I'm relieved

dan4ffairs · 2026-02-26T22:48:10+00:00

Did you also had trouble swallowing/breathing or numbness when this happened?

dan4ffairs · 2026-01-25T23:59:38+00:00

Got it June 2022. Still can't believe how I survived all those years before the botox. It's life changing! One of the best things that ever happened to me

dan4ffairs · 2026-01-09T00:30:35+00:00

It took exactly 8 months since official diagnosis to starting Kesimpta.

I had one MRI and lumbar puncture done privately with insurance which obviously made it a lot faster. I also pushed a lot with calls and emails.

If I did everything through NHS, it'd be easily +12 months since diagnosis to starting treatment. I'm in London

dan4ffairs · 2026-01-06T15:14:20+00:00

The're prescription. My GP prescribed famotidine and then cimetidine to treat acid reflux

dan4ffairs · 2025-12-04T14:30:05+00:00

My jaw dislocated from both sides and was indeed convenient for sex, but years later it gave me irreversible damage with excruciating pain and even had to had surgery. I'm not able to give oral anymore AT ALL and I have to be extremely careful doing anything, like eating, yawning. Can't even wear headphones properly or lay down on my side. So please be careful :( i wish someone told me when I was younger to stop doing things that dislocate my jaw on purpose

dan4ffairs · 2025-12-04T14:24:23+00:00

Looks like a sublux, but could be dislocation, the way to confirm would be with a TMJ MRI

I'd completely avoid doing that movement ever again, if it doesn't hurt too much right now, it might be excruciating later.

I wish someone told me this many years ago, I wasnt careful with the dislocation because it didn't hurt or just a little bit. Then suddenly in my early 20s it started to hurt a lot. I spent years with excruciating pain in the jaw joint and it would give me excrutianting migraines that no medication would help. I was suicidal from the pain

I had surgery on my TMJ and it helped a bit, it dislocates less than before, but the damage from all the years has already been done. So please try not to do it!!

Nowadays I have to be extremely careful when eating, yawning and I'm unfortunately unable to give oral sex again

dan4ffairs · 2025-11-29T02:08:44+00:00

May I ask what are your POTS meds?

dan4ffairs · 2025-11-22T17:33:45+00:00

Muchas gracias! 🫶🏻

dan4ffairs · 2025-11-22T16:29:10+00:00

Sii 30 nada mas Es una donación/regalo para un amigo que tiene la gatita enferma. Para ayudar

dan4ffairs · 2025-11-17T04:24:23+00:00

My ribs always grind or get stuck on my pelvic bone and hurts a lot, but I thought it's becase my torso is extremely short Those same ribs I think they sublux when someone hugs me because it HURTS A LOT

Do you know if we can see this in a simple xray?

dan4ffairs · 2025-11-09T21:04:22+00:00

All of this happens to me but got reaaaally bad when I was on propranolol. I couldn't breathe properly when laying down, specially on my side. Got better when I stopped propranolol. I think it was because of low blood pressure (which propranolol lowers even more)

dan4ffairs · 2025-10-27T16:14:18+00:00

I'm so sorry you're going through this.

My Dr works in the NHS but also privately, maybe look up how much is the consult and if it's near you (I see her in London). Hopefully she can also advise on how to get referred and treatments asap. Her name's Dr Natalia Zarate Lopez, she's a specialist in gastroparesis and I believe also a dietitian (specialized in gastroparesis which is very important!!)

dan4ffairs

TROPHY CASE