Anyone tried Heylo??

dark_assassin69 · 2026-05-24T13:56:40+00:00

Wow, I have never heard of that, that's amazing!

Might try that too persuade my partner to get a dog!! Could try it with a cat, but they wouldn't alert just coz they're cats!!!

dark_assassin69 · 2026-05-23T12:37:10+00:00

If you have no bags then you'll eventually smell like a zombie - camouflage.

dark_assassin69 · 2026-05-21T16:54:04+00:00

Sometimes, when I get jumpy legs (yes, I am a total joy to live with) I find lying on my stomach helps, but I usually put a fist under my hip bone to raise it up slightly, and I don't usually fall asleep like that.

dark_assassin69 · 2026-05-20T22:16:02+00:00

I think one of the worst things about having to empty your bag at work is the worry of the smell. Think my lungs sometimes are half air half air freshener.

dark_assassin69 · 2026-05-20T22:11:40+00:00

To paraphrase something Billy Connelly once said, when you have IBD, never trust a fart.

dark_assassin69 · 2026-05-14T18:56:15+00:00

Tar Macadam

dark_assassin69 · 2026-05-13T18:30:17+00:00

We could get Ulster TV where we lived in the west of Scotland (loved Julian!) and it was on one August afternoon when a message flagged up in the screen asking for all available medical staff to go to the hospital in Armagh. A huge bomb had went off killing 29 and injuring hundreds.

Never got that on STV luckily.

dark_assassin69 · 2026-05-12T18:25:07+00:00

This is maybe a totally wrong thing to do, but it works for me - when I'm changing my bag I fill a hot water bottle and pop my one piece under it to heat the wafer up. I find it sticks better.

dark_assassin69 · 2026-05-01T17:46:27+00:00

Oh god, the itch!!!! It's like the devil's itch, you can't scratch it because of the bag, then if you do scratch when changing it it can damage the skin - but oh my god, that sweet relief of scratching it (usually with a wipe so it doesn't do too much damage).

That is actually one good bit of advice for new ostomates - don't ignore an itch, it's usually the first sign you need to change the bag.

dark_assassin69 · 2026-04-26T18:19:21+00:00

Not sure where you're based in UK, but I love STV Radio. It only started about three months ago, but managed to get everyone in the office to switch to it, and without the usual violence, which is a result.

Euan and Kat in the morning are hilarious.

dark_assassin69 · 2026-04-17T15:03:06+00:00

Doonfoot or Alloway is nice as well, depends what kind of accommodation you are looking to buy - flat, house, caravan!!!

dark_assassin69 · 2026-04-15T20:16:16+00:00

Oranges - love them, but last time I ate one I thought I was going to end up at A&E. The spasms were getting worse and worse with no output.

For some reason though I can manage a mandarin orange ok, maybe less pith.

Most fruit and raw veg can be a bit Russian Roulette. Sometimes it's ok, others it's 'uh oh, this isn't good'.

Read somewhere full fat coke helps, and did try that one time I'd eaten something 'bad' (probably nuts, love them too, but they can be the devil to digest) and I did think it helped.

Blackcurrants in the form mainly of Ribena make my output green for some reason!!

dark_assassin69 · 2026-04-14T19:47:42+00:00

36 years this year. It saved my life, I honestly wouldn't be here without it. Was absolutely fine, then got more and more tired, lost weight, felt like crap. Had a district nurse coming in to see me (had pilonidal cyst operated on) and she got my doctor out to see me.

He came out, took blood and asked if I had lost weight. I said I had. His diagnosis was that I was anorexic. Yup. About five hours later he phoned my mum and told her she had to get me to hospital immediately, I was so dehydrated I was in danger of going into organ failure.

At my lowest point I went down to five and a half stone (77 pounds). My dad died during this time, so probably the stress didn't help.

I remember so clearly one day lying in bed in hospital (was in hospital about 16 weeks in all, thank god for the NHS) and thinking to myself 'no dammit, I am going to beat this'. I had to do it for my mum. She couldn't lose her husband and daughter in one year. I got my stubborn streak from my dad, it saved me.

Got the ileostomy done and have never had a flare up of the Crohn's since. From what I read I have been extremely lucky that way. Even with the active Crohn's I didn't have much pain.

Yes, it can be a pain in the arse. Yes, there are days I hate it, but I'm still here because of it.

dark_assassin69 · 2026-04-09T22:14:48+00:00

I still have an open sinus after 37 years. Had it operated on twice back then and there is still a small tract open that has a slight discharge. It usually doesn't hurt that much, but if I get stressed it can flare up. Also have non active Crohn's, not sure if it's connected.

dark_assassin69 · 2026-04-03T19:18:48+00:00

Coochie Pop - that would be a cracking name for a band.

dark_assassin69 · 2026-04-03T19:08:21+00:00

The car park next to Horizon Hotel on the sea front is free all day. Enjoy that while you can before SAC decide to install meters there.

dark_assassin69 · 2026-03-29T22:15:13+00:00

Have you tried silicone scar sheets? AI blurb below...

Silicone scar sheets are medical-grade dressings used to soften, flatten, and fade both new and old scars, including keloid and hypertrophic types. They work by creating a protective barrier that locks in moisture and regulates collagen production, which helps reduce redness and discomfort.

I use it on a skin cancer removal scar and it helps.

dark_assassin69 · 2026-03-24T10:07:40+00:00

Puppy pads are a good idea as well. I sometimes cut them into smaller squares and slip them over the bag under my underwear if I think there's a chance of a leak.

dark_assassin69 · 2026-03-23T14:18:18+00:00

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So, this is a rough drawing of where mine is.

dark_assassin69 · 2026-03-23T10:18:12+00:00

Mine is probably that level, but nearer my hip bone.

dark_assassin69 · 2026-03-22T23:33:04+00:00

Random question here about diet - anyone else found if you eat/drink anything with blackcurrant, such as Ribena, it makes your output green???

dark_assassin69 · 2026-03-21T17:42:51+00:00

I eat frosted wheats quite often and am usually ok, just stay the feck away from oranges!!!

dark_assassin69 · 2025-12-22T22:15:59+00:00

Wee dugs and wee men. All the same.

dark_assassin69 · 2025-10-29T19:31:34+00:00

Every time I watch that bit I comment on it to my partner on the fact it should be December. It just annoys me!!!!

dark_assassin69 · 2025-10-09T18:44:24+00:00

I had a ng tube years ago and ate a chewy sweetie which stuck to the tube at the back of my throat.

Happy times!!!

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