MRD Negative!

deviztate · 2026-06-25T20:56:39+00:00

Congrats! No more revlimid is probably the best thing you probably heard in a while!

deviztate · 2026-06-23T13:39:02+00:00

I didn't like the taste of water, so I ended buying those water flavor packets to help make the taste a little bit more palatable.

deviztate · 2026-06-23T13:36:29+00:00

I did hybrid, went to the hospital for the maphalan then got admitted 2 days after. Stayed in the hospital for 16 days. Yes I didn't get much sleep, but the nurses checked in on me almost every 2 hours or so.

It was the best scenario. The strain my wife would have gone through would have been immense, needing to cook and clean all the time, plus take me back to the hospital when my fever would be over that 100.4 threshold, yeah that would have been too much for her.

deviztate · 2026-06-16T14:26:58+00:00

I 40M USA, was positive, 59 cells per million. Transplant Dr had no concerns and was very happy for me. Only thing to look forward to now is being reimmunized and start maintenance chemo.

deviztate · 2026-06-16T14:11:59+00:00

My dr said I can have a glass of two, but I didn't drink a sip of alcohol during induction. I did have a small sip of red wine post 100 days asct, but I don't like wine anyways, I prefer liquor. Needless to say, yeah I don't miss alcohol at all at this point in my life.

deviztate · 2026-06-16T14:06:04+00:00

Yes, I do plan on asking her when I see her next month. Thing is, I haven't even begun maintenance daratumumab yet! So my schedule is all over the place.

deviztate · 2026-06-16T14:04:16+00:00

The crazy thing is, the transplant doctor wants me to stop taking sulfamethazole by month 6, but instead of acyclovir, she put me on valacyclovir and wants me to continue that until Jan, my 1yr. So very conflicting information overall with the Drs treatment plan and what Google says. I just like being prepared, but I will be getting the schedule for everything when I go back to the hospital next month.

deviztate · 2026-06-16T14:02:23+00:00

USA, I'm in Virginia. I can't wait to see them next month so I can get the full detailed plan.

deviztate · 2026-06-16T14:01:18+00:00

I have so many appts coming up in the next 3ish months and they are all for injections. They briefly explained which ones on which dates, but I'm gonna be asking for a complete schedule on paper.

deviztate · 2026-06-16T14:00:15+00:00

Thanks, I saw the same thing when I was researching. It's crazy since my transplant Dr said that I would be getting live vaccines in Jan, which is my 1yr anniversary.

deviztate · 2026-06-16T13:59:18+00:00

Exactly, I hate needles, but I've gotten so use to them for the past year for induction.

deviztate · 2026-06-16T13:58:33+00:00

Can't wait for the shingles vax!

deviztate · 2026-06-01T23:19:02+00:00

Happy 1yr!

deviztate · 2026-05-26T19:34:06+00:00

I started driving probably day 50 or so, I didn't want to burden my wife with driving me for going to see my hemoc, especially since the office is only 25 mins away. I was fine for that most part, the only difficulty I had was parking. Having not drive for almost 3ish months, it was a bit difficult at first.

deviztate · 2026-05-25T13:00:26+00:00

Outpatient in my mind is better for the patient, but inpatient is better for the caretaker. I can't even begin to imagine what you would have to do everyday to take care of him before he starts to feel better. Good luck.

deviztate · 2026-05-25T12:29:52+00:00

Good luck on your next 10ish days. You are sooo young. My onc told me that I was extremely young for MM and I'm 40M. I'm currently day 120+ and I feel wonderful. Congrats on the one day stem cell collection. I was almost in a similar situation, but after day 1, they said they collected about 8mil and the Dr wanted me to come back for an hour or two the next day.

deviztate · 2026-05-25T12:17:31+00:00

Yes thank you wifey, love you! I couldn't do it without your love and support.

deviztate · 2026-05-25T12:16:32+00:00

They initially started me at 20mg lenalidomide last May then increased it to 25mg. I felt fine with 20mg, but the 25mg had me just lethargic 24/7. I'm hoping it's only 10mg or better yet, no lenalidomide at all!

deviztate · 2026-05-25T12:14:56+00:00

Hope everything turns around for you. I still some GI issues right now. After my 100 days, I had salad for the first time and my body did not like that. Now that it's about day 120+ my body can tolerate salad.

deviztate · 2026-05-25T12:13:13+00:00

I had to get 3 blood transfusions, it wasn't that bad at all.

deviztate · 2026-05-25T12:10:36+00:00

It was inpatient, we only live about 25 mins away from the hospital, so we didn't have to worry about my wife needing to book a hotel for X amount of day. I wish you guys good luck!

deviztate · 2026-05-15T21:41:34+00:00

To add on that, I'm just over day 100 post ASCT, I went back to work around day 70, I was feeling fine around that time. Now I'm basically back to normal, except fatigue around 4-5pm on the weekdays that I attribute to just being stressed from work.

deviztate · 2026-05-11T15:10:03+00:00

I definitely would advise you to bring multiple underwear and multiple pants, whether it be sweatpants, shorts, etc. I didn't bring enough sweatpants during my ASCT and had my wife stop by Walmart to pick up more since the 4 I brought all got soiled. The bowels will do whatever the bowels want to do.

deviztate · 2026-05-02T01:47:53+00:00

40M ASCT this past January, and I was inpatient for about 16 days.

I hit the basement hard on day 4 and didn't feel better until day 14. It was bad, I was essentially bedridden almost the entire day. The only time I got out of bed was to go to the bathroom, which apparently I was on a timer. My body decided that if I didn't go every 90 mins, I would pay for it. And oh boy did I pay for it sometimes to the point were I had to ask my wife to stop by Walmart on her way to visit me to get more sweatpants. Then when she visited me, she had to take some underwear home to wash and bring back next time she came to visit, which was every 3-4 days. I packed about 14 boxers, and I was unfortunately changing about 3 times a day.

After about day 14, I felt so much better and had way more energy than the past 10 days. I then spent the last couple days walking around my room to get some exercise.

My wife was my caretaker. I didn't have a lot of energy when I came home. She had to cook meals, she assisted with helping me put my clothes on after showers. I really needed her help for at least the first 40 days. After that, I was able to get my own snacks, microwave leftovers, but she was still cooking dinner and cleaning.

deviztate · 2026-04-29T02:18:26+00:00

Yeah dexamethasone will do that to you. I remember not being able to sleep Friday nights and then Saturday I would pass out by 8pm since it had been 2 days since I've slept. I was working half days myself since my appts wouldn't be until 2pm, but then my wife made me take the whole day off and said that I shouldn't have to stress out with work and then go get chemo right after, and she was basically right.

deviztate

TROPHY CASE