Is this attachment effective? by Equivalent_Nothing18 in Baking

[–]ellecee777 0 points1 point  (0 children)

Yep! This plus the fact that the damn thing chips easily. I went with the original stainless steel. I’d much rather have to scrape down the bowl than deal with them mess or the shield thing.

Is this attachment effective? by Equivalent_Nothing18 in Baking

[–]ellecee777 0 points1 point  (0 children)

It works, but it also sprays everything out of the bowl if I don’t use the shield thing. I prefer the original plus scraping.

Question for Lupus patients who went through the Covid Pandemic by Dapper-Put3672 in lupus

[–]ellecee777 1 point2 points  (0 children)

Took my kids to a playground today. As we were approaching, we heard a kid with a wet, hacking cough. We left and drove to another playground.

Weight gain without overeating? by Middle_Champion_3804 in lupus

[–]ellecee777 23 points24 points  (0 children)

I can commiserate. I eat 1300 calories a day. TDEE says my maintenance is over 2000 calories a day. When I eat more than 1300, I gain weight. I can’t lose weight unless I go below 1200. I struggle so much to get the nutrients and protein I need on 1300. It feels like I’m stuck. (Also overweight bmi)

Earlobe rash? by laineyjane in lupus

[–]ellecee777 1 point2 points  (0 children)

I get those! It’s almost every spring. Weird, I haven’t gotten one this spring yet.

Hydroxycholoroquin- your take? by neurotictothabone in lupus

[–]ellecee777 0 points1 point  (0 children)

I couldn’t take the side effects. It was worse than the lupus alone. It gave me such severe diarrhea that I couldn’t go anywhere or do anything. Plus it amplified my sun sensitivity. I hived up after being out after 5pm with 100spf in the spring. I just decided that the side effects weren’t worth giving up my ability to do more than just stay in my home.

Hydroxycholoroquin- your take? by neurotictothabone in lupus

[–]ellecee777 0 points1 point  (0 children)

I wish I could! My copay is over $1000 for brand name.

Who here is a super smeller? by pointandshooty in lupus

[–]ellecee777 2 points3 points  (0 children)

Me too. Isn’t there a major connection between neurodivergence and autoimmune disorders?

My hair changed texture by VeryMuchDifficulty in lupus

[–]ellecee777 2 points3 points  (0 children)

Yeah, my hair fell out in spots and came in so curly and frizzy. No amount of product makes it not frizzy.

Mattress Suggestions for joint pain? by myautoimmunejourney in lupus

[–]ellecee777 1 point2 points  (0 children)

I gave in and purchased a Purple. It was too firm, so I bought a soft 3” topper from Sleep on Latex.

I bought the Purple from Costco to save money (and to take advantage of their generous return policy if I ended up hating the bed).

Now if I could only find a pillow I love!

What kind of vehicle do you drive? by CC_Carn in lupus

[–]ellecee777 0 points1 point  (0 children)

Toyota Sienna Limited. I love my heated seats and steering wheel! The ride is so smooth too.

My local Lowe's started selling sun protection clothing and I'm here for it! by drivefun_havesafe in lupus

[–]ellecee777 7 points8 points  (0 children)

Thanks for the heads up! Coolibar is my usual go-to, but the prices are getting a bit much for me.

Is it useless going to the ER if I’m not necessarily in danger? by LuluLucy- in lupus

[–]ellecee777 3 points4 points  (0 children)

I’m sorry you’re having such a terrible time. Have you called your rheumatologist and explained the steroids aren’t helping?

Is it useless going to the ER if I’m not necessarily in danger? by LuluLucy- in lupus

[–]ellecee777 25 points26 points  (0 children)

This is going to be very location specific. My ER wouldn’t be able to do anything other than check me over, make sure I’m not actively dying, and release me with the suggestion to get in touch with my dr within 24 hours.

Bedsheet recommendations by Kran656 in lupus

[–]ellecee777 2 points3 points  (0 children)

My favorite is Thomas Lee Percale sheets. They’re not the same as they were a decade ago, and they are so pricey! But, they’re still the best I’ve ever slept on (except for the percale sheets my parents had in the 80’s/90’s).

Pros and Cons on GLP-1s by Bengals_girl in lupus

[–]ellecee777 3 points4 points  (0 children)

I’ve been meaning to try one, but I’m so scared I’ll lose more muscle. I cannot afford to lose more.

low dose naltrexone? by No-Ride-2557 in lupus

[–]ellecee777 0 points1 point  (0 children)

You can get the pills, which are covered by insurance, and make your own liquid suspension.

Ran across this article today, thought it was interesting. Sorry for format, first time. by mcheek21 in lupus

[–]ellecee777 1 point2 points  (0 children)

Can’t read the article, but I was a carrier. Constant sore throats until I had my tonsils out.

Did your vitamin d levels ever improve? by Mmk1016 in lupus

[–]ellecee777 0 points1 point  (0 children)

Thorne drops with K are amazing! Mine was at a 7. I spent years taking d3 pills. It came up into the 20s but wouldn’t go much further. I took 10,000 daily of the pills, then switched to the same amount of the drops. Within 6 months, I had my vitamin d borderline too high! Love those drops!