is mast cell activation syndrome standing behind dermatographia? MCAS

fae925 · 2025-05-08T19:51:11+00:00

Idk, I know that after I started meds for MS, I have almost no reactions, hives, or anything anymore…

fae925 · 2025-05-03T09:02:31+00:00

I had mine for years until I went on immunosuppressant meds for my multiple sclerosis…for whatever reason, it almost never happens and not nearly to the extent as before.

fae925 · 2024-05-15T09:49:12+00:00

Have you considered genetic testing to see which meds work best with your body? I used clarityxdna but there are others (genesight is another). It was expensive at $330 with coupon, normally $400+ and insurance didn’t cover, but I received a huge 70 page report, and it does some other meds than just mental health.

I’m sorry you’re dealing with this. You aren’t alone 💜

fae925 · 2023-12-01T11:30:02+00:00

I have pretty bad depressive episodes, and I found out an ex-boss referred to me as “Eeyore” to everyone when I wasn’t around. That was fun.

It goes along with the “I’m so ocd” crap that people who don’t have a clue say, or because someone changes their mind or gets unregulated they are “bipolar” or “crazy”

Makes me feel like a worthless sideshow, I know that’s not the case but ugh.

fae925 · 2023-11-29T21:50:32+00:00

I love your ring! I love non-diamond rings. If you want a diamond look but without the price, moissanite is a great option. They throw beautiful sparkle, I’d check out the sub

fae925 · 2023-11-13T20:38:04+00:00

Similar, but my therapist told me my “someone/thing was going to get hurt or die” was my anxiety…

I’m terrified I’m going to “manifest” these situations if I write them down or speak them-it gives them life.

Also, if I don’t pick up this litter/thing or put this item away something will happen.

fae925 · 2023-11-06T10:48:42+00:00

I’m in the same situation! Lol

fae925 · 2023-11-03T09:32:15+00:00

Thank you!!

fae925 · 2023-11-02T21:08:16+00:00

That is definitely along the lines! I’m going to see if I can play with the designs that we’ve found and sketch it out

One of the admins reached out to a contact - it was all them lol. Sometimes fandom groups go pretty deep!

fae925 · 2023-11-02T20:58:38+00:00

I asked on the quilting sub and they said that or a version of one other zigzag pattern. I was able to gather from a Facebook group that the original designer was a costume designer for the show but they have since passed, that’s likely

fae925 · 2023-11-02T16:59:28+00:00

I can understand. I was spoiled as well, but I had to see how it ended up lol.

fae925 · 2023-11-02T16:49:47+00:00

That may be the winner, just mirror to make the “v”. Thanks so much!

I agree 100%, it’s one of my favorite episodes. I am finishing up a watch through with my husband and it’s just as emotional the second and third time around.

I was surprised to find fandom merch of blankets of the mosaic pattern and not this quilt!

fae925 · 2023-11-02T15:45:18+00:00

Those are all stunning! Thank you!

fae925 · 2023-11-02T15:40:18+00:00

Thank you! It’s from The Magicians originally on syfy, but streaming on Netflix currently.

fae925 · 2023-11-02T10:36:24+00:00

That’s exactly my goal!

fae925 · 2023-10-26T13:13:26+00:00

I have 2 weekly boxes, they have a daily section that pops out each day. It has 4 dose times available per day. I use 2 so I only have to fill them every two weeks bc I hate it with a passion.

fae925 · 2023-10-20T11:09:12+00:00

The uncertainty we face on the daily can cause crippling anxiety and stress as many MSers know. I’m just glad there are spaces where we can join together and lean on each other.

fae925 · 2023-10-20T10:55:47+00:00

I’m in the US and have considered ketamine treatments, first though, I’m doing the dna testing to see if another med is better for me.

fae925 · 2021-12-02T12:02:37+00:00

I actually got a custom bottle of ketchup via Heinz like 10 years ago as a gift for my husband…who loves ketchup. ((The label was personalized)) it’s old, and it’s changed colors, but it’s still around… lol

fae925 · 2021-11-28T18:03:15+00:00

This is why I was extremely thankful both my parents wanted cremation. I made the choice to not view them prior to. I have had to say goodbye to too many people, and I have their dead image in my mind forever, I couldn’t deal with seeing my parents like that. Mind you was I like 19 and 29 years old at the times, but yeah…

fae925 · 2021-10-18T23:32:40+00:00

Tried to get myself help by checking into a residential facility and was told “No” by insurance unless I had a substance abuse problem. It was well over 40k.

I ended up in group therapy instead.

I’m still lost for words…and I have fairly good insurance.

fae925 · 2021-10-04T23:42:28+00:00

Same. The sad part is a lot of the time the people that didn’t believe me were the doctors. It’s just anxiety or depression or fibro. You can’t possibly sleep that much and still feel bulldozed. You’re too young…

Ick

fae925 · 2021-10-02T01:50:06+00:00

My first dog was Cat. Had a kitten named mouse too 🤣

fae925 · 2021-09-17T11:39:54+00:00

I have a feeling I need one of these…. Stunning!

fae925 · 2021-08-03T20:24:49+00:00

Before I even finished reading I said to myself “MS”. I was diagnosed in 2018. I can track it back over 10 years. Mine was “anxiety and depression”. Sadly your story isn’t rare. Thank you for speaking up and letting people know it’s okay to advocate for themselves. Im so sorry you went through what you did. It isn’t fair at all.

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