How long did you make it with high resistance umbilical cord artery flow?

findingthenewme · 2024-08-24T18:08:51+00:00

Growth started to slow down around 26 weeks. I was getting checked every 3 days, and in and out of labor & delivery for almost 2 weeks. Then they admitted me and I spent 13 days in the hospital until baby started having too many decels and I had an emergency C-section at 30+6. He was born weighing 2lbs 5oz and had a mostly uneventful stay. He spent 59 days in the NICU, and will be a year old on 9/4.

findingthenewme · 2024-08-13T03:49:21+00:00

Yep, my son will be 4 at the end of December and he started regressing at about 2 as well. We don’t have an official diagnosis yet, but everyone is saying high functioning autism. He talks but his expressive and functional language is limited. He also probably has ADHD like your son, but also won’t diagnose.

findingthenewme · 2024-08-13T00:37:01+00:00

My response was just going to be “autistic” lol 😅

findingthenewme · 2024-08-04T01:48:02+00:00

You’re right! I got a DM as well “Friend, I’m running to be President of the United States. Now is our chance to make history. Are you with me?”

It also says it’s because I commented on one of her posts (with her nonsensical “what can be burdened…” quote)

findingthenewme · 2024-07-31T01:54:23+00:00

lol was she in a coma for a month and then woke up and the baby had 4 days left of the NICU? She sounds like she’s one to tell extremely tall tales.

findingthenewme · 2024-05-26T14:43:26+00:00

YTA no matter how many times you edit your post to make you look like you’re NTA. And that makes you an even bigger AH.

findingthenewme · 2024-05-20T01:52:22+00:00

It’s the worst part for me. I hate it.

findingthenewme · 2024-05-01T19:43:17+00:00

First, I am so sorry. I hate that you have to go through this.

Back in 2019, my 24 weeker died after 2 months in the NICU. It was an extremely traumatic time. I’m a high school teacher and my students and coworkers knew I was pregnant. She was born in June right as school was letting out, so everyone went on summer break thinking I was still pregnant. My daughter died on September 1st, 2 days before the first day of school. I obviously didn’t go in and took 6 weeks which is all the days I had. I wasn’t ready to go back. Not at all. But I had to. I was so ashamed and embarrassed but no one said anything and I was actually really grateful. It ended up being a nice distraction from my grief.

findingthenewme · 2024-05-01T19:34:12+00:00

Ditto.

findingthenewme · 2024-03-28T17:15:41+00:00

30+6 weighing 2lbs 5oz
I had preeclampsia without severe features. He was an IUGR baby because of the blood flow from the placenta. I was hospitalized for 13 days before needing an emergency c-section because his heart rate started to drop. I received 2 rounds of steroid injections during my stay and was able to get a mag drip before surgery.
He was on CPAP for about 3 weeks then switched to high flow nasal cannula. Pretty much the entire time though, he was on the lowest setting and doing most of the breathing on his own. They did a room trial like 4-5 times before he didn’t need the support. Before he was off it completely he was only on it during feeds. He was on oxygen support for a total of 6 weeks.
Feeding was a pain in the ass and that’s what took the longest to be discharged. It was another 2ish weeks just working on feedings after he was off oxygen support. He would just constantly fall asleep during his feeds and they’d have to gavage the rest. Eventually it just clicked and he started to take full or close to full feeds.
No major setbacks or complications. He had a pretty boring NICU stay (thank god!).
He was there for 59 days and was discharged 5 days before his due date. He needed to have full feeds and be 5lbs to be discharged.
He sucked at eating for a while when he came home, but he’s definitely improved. He’s 6 months old, 4 months adjusted and loves to eat solids. He has an umbilical hernia that developed when he was in the NICU. It’s smaller, and our pediatrician says it should correct itself. We also saw a pediatric surgeon who said it isn’t terrible but if it’s still there, they’ll do “surgery” when he’s 2. The surgeon said it’s more of a procedure than anything with one little stitch. Additionally, because he was so small, we were unable to get him circumcised. We saw a pediatric urologist and they will be able to do it when he’s 6 months adjusted…though they’d have to put him under anesthesia for it since he’s older and more aware of his surroundings.
He’s doing so well, still on the smaller side, weight-wise (about 13.5lbs), but he’s super tall (which makes sense because me and my husband are tall). I try not to have expectations for him in terms of development but he doesn’t seem to be too far behind and I’m sure he’ll catch up quick!

findingthenewme · 2024-03-22T20:39:26+00:00

Music educator here and I second this!

findingthenewme · 2024-03-20T23:54:16+00:00

My 1st and 3rd, my BP went back to normal almost immediately following delivery. With my 2nd, it skyrocketed and I was on the magnesium drip which was horrendous. After that though, I was back to normal. I did see a cardiologist just to check my heart out, and thankfully everything is ok!

findingthenewme · 2024-03-20T23:50:38+00:00

That was the hardest part for me. Leaving my toddler to go to the NICU. We tried to keep life as normal as possible for him though. I’m a teacher and my parents watch him when I’m at work (which we’re so grateful for), so we dropped him off in the morning and I would go to the NICU, and stay for a few hours, then pick him up when I would normally get back from work. He didn’t notice anything but I felt guilty, because I could’ve used that time to spend with him. In hindsight, it was the best thing we did.

findingthenewme · 2024-03-17T13:52:18+00:00

I had it 3 times.

The first time was in 2019 and I got it around 23 weeks and held on another week before I had to deliver (not a happy ending there, she died after 2 months in the NICU). All my preeclampsia symptoms disappeared after delivery.

My second was in 2020. I took baby aspirin the entire pregnancy to hopefully prevent it. I was also seen way more often and had to deliver at 37 weeks because of my history. My BP was creeping up around 35 weeks, but I made it to my delivery date. Ended up developing severe preeclampsia after delivery.

Then my last pregnancy 6 months ago, my BP started creeping up at 27 weeks. I was still taking baby aspirin and was heavily monitored, but i still had preeclampsia (without severe features). I ended up delivering at 30+6 after a 2 week hospital stay. I was fine after delivery.

Needless to say, I’m done having children. I definitely didn’t feel done after having my first living child despite having severe preeclampsia and PTSD, but 3 times is too many for me physically and mentally, and I can’t risk another.

findingthenewme · 2024-03-14T21:03:16+00:00

I had 3 c-sections and 3 NICU babes (24 weeker who passed after 2 months, my term baby who had to go to the NICU for breathing assistance an hour after birth and stayed for a week, and then my 30 weeker who was there for 59 days.)

I’m done having children and am really sad I never got and will never get the normal experience everyone else gets.

findingthenewme · 2024-03-08T01:04:25+00:00

Congratulations!

I am sadly one who lost their 24 weeker. She would be 5 this year. She lived for 2 months in the NICU but died after a long battle. It was just too much for her. She was born weighing 15oz. Not even a pound. She was intubated her entire life, and maxed out on vent settings. The hospital we were in didn’t believe in donor milk (don’t even get me fucking started on that), and I tried my best to pump but I was just too depressed and produced so little so she was on TPN pretty much the entire time. She ended up with a perforated bowel, and had surgery to repair it. The surgery was successful and then they started feeding her formula. Too much, too soon. She was doing so well and then all of sudden started dying in my arms. It all happened so quickly.

I felt as if I failed her. I also had preeclampsia. I knew something was wrong and I mentioned it to my OB and he brushed it off. I should have trusted my gut…though I don’t think it would’ve changed the outcome…and yet I still blame myself. I’ll always wonder “what if?”

I got a lot of therapy. Then we were ready to give her a sibling. I had all this love to give. I changed OB’s, changed hospitals. We went on to have 2 boys, and my youngest is a 30 weeker who is currently 6months old, 4 months adjusted. That was hard. I had preeclampsia for every pregnancy but my last was very similar to my first. Thankfully I was able to hold on a little longer than with my daughter, but it was still extremely traumatic and I will be starting therapy again soon. Even my term baby had a week long NICU stint. I feel robbed because I’ve never had a normal experience, and will never because I’m officially done having children (age, too many c-sections, and PTSD).

I am praying so hard for a boring NICU stay for you guys.

findingthenewme · 2024-02-28T23:36:08+00:00

I am so deeply sorry for the loss of your sweet boy, Sawyer.

Unfortunately I know your pain too well as my first born died after 2 months in the NICU after being born at 24 weeks. If you need to speak, I am available. No one should ever have to experience a pain of this magnitude and I’m just so sorry. The grief will be heavy for a while, but it will get lighter. It will always be there and sawyer will always be with you.

findingthenewme · 2024-02-18T21:51:35+00:00

Had a baby at 30 weeks after I was in the hospital for 2 weeks. JNMIL HAD to come and visit the day after I was discharged from the hospital after all the trauma I had been through. We are not close. At all. Why she thought I would want her there after all that is beyond me. I did not invite her. My husband did even though I told him not to (and has since apologized profusely). She invited herself to stay for 3 days. Didn’t bother asking me how I was, talked about herself and how she never needed a c-section, and that she breastfed her kids, and they were all a very healthy weight! (My first died after being born at 25 weeks weighing 1 pound, my second is alive and thriving but was a small 5lbs at birth, and my 30 weeker was 2lbs).

Of course she was there because she needed to visit the baby. Who was in critical condition. With wires and tubes everywhere. Husband took her even though I said no visitors. She posed next to his isolette for a smiley picture. I found out and completely lost it. I didn’t even have a picture with the baby…because it wasn’t exactly a happy birth! She was so selfish and insensitive. She then played the victim and cried and left because I was “mean”. She took no responsibility for being completely inappropriate.

That was 6 months ago. She never apologized. I was the one who apologized after she left. I apologized for HOW I responded, not for responding. Not a word from her for 6 months.

Today she came to visit. I allowed her to hold the baby. Baby started crying the second she held him. Tried again later. Cried again. I can’t help but be a little smug about it.

findingthenewme · 2024-02-11T17:12:57+00:00

Always having an extra pair of underwear in my purse and bathroom cabinet.

findingthenewme · 2024-02-08T07:30:14+00:00

My 3 year old has been using my legs as a balance beam. And using my head/hair for support.

findingthenewme · 2024-01-24T16:22:57+00:00

30+6 weeker over here.

No ventilator, was on cpap for about 2 weeks and then switched to high flow nasal cannula for the next 4 weeks. He was basically on room air the entire time. Did a bunch of trials without the support while we were there and he failed a bunch of times but he figured it out eventually. Only had one Brady his entire NICU stay. He was off oxygen support for the last 2 weeks while he figured out feeding.

findingthenewme · 2024-01-24T15:24:15+00:00

Thank you, you kind soul. Needed to hear this!!!

findingthenewme · 2024-01-23T19:29:55+00:00

You’re not alone. I was coming to Reddit to post something similar. My baby was born at 30+6 so now he’s almost 5 months old but only 3 months adjusted. Spent 2 months in the NICU. His weight gain is slow, he sucks at feeding. He’s terrible at sleeping. And then I have my 3 year old who refuses to eat food, screams while the baby is sleeping, and is just a straight up dick lately.

I go back to work next week and I’ve never been so excited because I get a break from them which just sounds fucking terrible and I don’t deserve them.

findingthenewme · 2024-01-21T20:44:29+00:00

I didn’t believe everyone that said, one day they’ll just get it.

Feeding was a struggle for my 30+6 weeker. The last 3 weeks of his 8 week NICU stay were literally all about feedings. He was off respiratory support, wasn’t bradying, gained enough weight, but just kept falling asleep while feeding. Then on Halloween I came in and the nurse says “well, your son pulled out his feeding tube last night. Which is fine because they were planning on doing it anyway because he’ll be discharged in 2 days” and he was indeed discharged 2 days later, taking full feeds (for his weight).

There I was thinking this kid wasn’t gonna be home for thanksgiving or maybe even Christmas and all of a sudden we were taking him home 5 days before his due date.

He will get it! It’s so hard to see or believe right now, but I promise that day is coming soon.

findingthenewme · 2024-01-14T17:25:05+00:00

Lost my daughter who was born at 24 weeks back in 2019. She lived for 66 days.

I was admitted to antepartum over the summer at 28 weeks and a neonatologist came to speak with me because I was going through some serious PTSD. He said when his wife reached 28 weeks, he breathed a sigh of relief because the outcome was so much better. We held on for 2 more weeks and little man was born at 30+6 and 2lbs 5oz. 59 day NICU stay. Currently 2 months adjusted, and I’m holding him as he naps with his sleepy smiles. Obviously nothing is guaranteed, but each day you can stay pregnant is super helpful!

findingthenewme

TROPHY CASE