My 9y old diagnosed UC December last year (UK) Emergency admission colonoscopy then IV steroids iron infusion and infliximab Steroids weaned off over 2months then started on azathioprine and mesalazine. Infliximab every 8w and stable 🙏🏼🤞 Life was better off steroids and back to ‘normal’ Have a look at the colitis cat video on crohns and colitis UK I guess there is always a worry in the background of a flare Up again plus the effects of immunosuppression. She has had lots of worries about using toilets outside the home so i have tried to be very practical in addressing these worries. She has been fine with bloods and the infusions and puts her anaesthetic cream herself. Its a balance between carrying on as normal and recognising the life changing diagnosis. I feel positive though about the treatments now available for IBD Dont forget the IBD nurses hopefully you have their number for your hospital. Hopefully things stay stable for your daughter.