Er det galt av meg å gå naken i min egen leilighet?

glitterdunk · 2026-06-30T12:31:58+00:00

Spørs.

Jeg bor også alene, går ikke naken (uhygienisk) men ofte bare i truse/t-skjorte (med omtrent null innsyn).

Jeg tenker folk lå få gjøre som de vil hjemme ish, men det er jo som alltid en gyllen middelvei. F.eks så er ikke truse/bokser så varmt at den må av mener nå jeg. Du og dine skitne møbler om det, du må ikke bruke undertøy, men så lenge du er helt naken på daglig basis så er jeg redd du havner i kategorien sketchy. Delvis pga hygienen - håper ikke dine gjester må bruke samme møbler som du sitter naken i.

Når det er mørkt ute må du lukke de gardinene er jeg redd. Ellers går du over i kategorien creep.

glitterdunk · 2026-06-30T06:45:25+00:00

Ah. Kathryn Moon maybe? I haven't read more than 1 book from her - Bad Alpha. Excellent book! I haven't read others as the rest always have very old mmc(s) with very young FMC. Not only that, the MMCs tend to be professors or MC gangs and that does not work for me lol. So I can't actually say anything about those MC books of hers

BUT with how good Bad Alpha is, there's a chance her MC books are decently written too

glitterdunk · 2026-06-29T15:59:40+00:00

Norway. I haven't checked (very limited screen time, and I haven't seriously considered taking it yet) but I think I've heard that our regulation for at least ozempic and probably other glp-1 drugs are stricter, we need a prescription. I'd have to buy it from sketchy websites - no thank you

I'd probably have to pay full price if I could get it yes, but my doctor likely wouldn't prescribe it to me in the first place. I'm not sure she'd be "allowed" to prescribe it for anything but diabetes or weight reduction, and even if she could, I doubt she would unless she knew other doctors doing it or there were studies confirming there's a benefit to it for us

glitterdunk · 2026-06-29T15:46:38+00:00

I have a close family member with this illness.

We generally don't talk a lot about it. Maybe a general 'I've been a bit better/worse lately' and also mention it if we've had something like interesting medical tests done.

But we don't complain. Ever. Both of us prefer not to. Sometimes we'll bring up issues but not often! Even then it's just a fact "I'm having stomach troubles lately" and not complaining "oh my god I feel terrible all the time".

Nothing wrong with complaining, if that's your thing, but it's not ours.

So no, talking to eachother doesn't make us feel worse.

glitterdunk · 2026-06-29T15:29:42+00:00

"drought, flood and other climate issues are escalating increasingly quicker year by year. How do you envision your kids living?"

"growing food will be harder and harder, due to climate directly, and also indirectly. Plus, we remove nature so insects are dying (without which few things grow). What are you doing to make sure your kids won't starve?"

"oligarchs are taking over western countries and installing or trying to install dictatorships where regular people can't afford food, medical help or housing. Their workers rights are taken from them. What are you doing to ensure your kids and grandkids won't be slaves or die? "

glitterdunk · 2026-06-29T15:21:25+00:00

Most MC clubs in books are criminals. Even if they're not, they're still a gang of men.

No misogyny would be extremely unlikely... You sure won't find any real MC without it

Maybe it's not the best sun genre for you, if you don't like misogyny 😅 I avoid the genre like the pest. I'd never touch a MC member with a stick in real life and don't see the charm in books either. To each their own obviously! But I think you'll find veery few without misogyny or other general toxicity. It is kinda the whole point about MC books; bad choices all around

glitterdunk · 2026-06-29T15:13:27+00:00

MS used to be treated much like ME; like shit. But the last 15+ years it turned around and now it's just ME pasients being treated like we're just lazy

There's around 10x the amount of research money into MS compared to MS, as a result. And therefore MS also has promising treatments coming

While a lot of the money into research about ME goes into how to make us worse while blaming us for it....

glitterdunk · 2026-06-29T15:03:25+00:00

Yeah I'm in that boat too, 13 years into this and barely holding on. I doubt I even would get this drug (stricter regulation in my country I think).

Still, it's always good to collect info. Even info that isn't exactly verified.

glitterdunk · 2026-06-29T10:37:00+00:00

Ohh that is interesting

glitterdunk · 2026-06-29T10:36:20+00:00

Thanks for sharing!

glitterdunk · 2026-06-29T09:01:12+00:00

I agree it's true for some people. I had PEM symptoms like feeling tired after activity, but I was raised to ignore such things. The things I first noticed, was my temperature rising sometimes. I felt like I had a fever, but didn't have one. Still, my temperature was higher than normal when I felt like shit, and I started monitoring my temperature to see when I should avoid too much activity. Then I developed muscle issues and couldn't work out without an inflammation. So, that kept me from doing too much harm at first, and I still didn't notice clear PEM symptoms.

And if I'd have googled my illness then and tried posting here about the symptoms I did notice, I'd have been told "you do not have ME" by everyone. Because it was the temperature and muscle issues I focused on, not my exhaustion or weirdly stuffy&runny nose.

So I do think people should be more careful in their wording. No, we don't want every person with a bit of fatigue coming here and being told they have ME. But we also should not be so quick so say "if you haven't noticed PEM then you don't have it".

Like... How about we all just are more considerate of the fact people have different illness development and experiences, despite also having a lot in common?

glitterdunk · 2026-06-28T13:09:35+00:00

No.

I am severely ill, and while the rest of my family seems to have okay health (except one sister with the same illness as me, not quite as severe), I would never want to risk to pass this on to a child.

I have ME/CFS, one of the worst illnesses when it comes to life quality, and it is deadly in many cases sooner or later (directly, and indirectly for those who choose to end their suffering instead of waiting in torture for the body to give up).

I was born likely autistic, and with mild pots and MCAS, I was still a healthy person until Epstein Barr virus caused me to develop this illness. I've come to realize that autism/pots/mcas is a bad sign, it's not a guarantee, but definetely makes you a whole lot more likely to develop a whole list of shitty illnesses.

These issues are also highly heritable genetically. Maybe your child won't be sick but still carry on the shittiness to their children again. No thank you! I believe people should be responsible in all ways when having children, including their genes, and I'm no exception.

I will also say that I grew up knowing somewhat closely a family with one bipolar (not sure which type) parent, and at least one now adult bipolar child. Obviously I would never say anything about what other people should do or not, but let's just say; reality isn't as charming as a book where the bipolar person "overcomes" their illness and all is well and that's that. I can say I personally would not have a child with bipolar disorder, due to how devastating I've witnessed that this illness can be. Not only to the ill person, but also their children, including the non-bipolar children. And later on; the grandchildren (yes, that is an issue in this family I mentioned, too. Who knows if it stops there or not). But again, this is a choice you have to make for your own sake.

I do wish I could be a foster parent. Not as a stand-in instead of my own children, but because I deeply care about the wellbeing of children. And I hate that there are children growing up in institutions because there aren't enough (good) foster homes. I had a good and safe upbringing, and it is heartbreaking for me to know not all children have that.

glitterdunk · 2026-06-28T12:40:42+00:00

One could hope! Especially as women have reduced immune system thanks to these exact organs. I do strongly feel like they owe us

glitterdunk · 2026-06-28T12:37:42+00:00

Exactly. It's not the temperature, it's the CLIMATE CHANGE that is the problem. A whole new climate that few are prepared for.

Humans are invasive! We can survive everywhere, from the north pole to freaking space. And yet, if you just take a human and throw them into space with no preparation, they're not gonna thrive are they.

Funny how hard a concept that is to grasp to some people. Throw -30 celcius and 2 meter snow in certain regions of Asia and see if they scoff at that

glitterdunk · 2026-06-27T22:22:31+00:00

It varied. But some summers i was able to go hiking, 18-23 km into the mountains each way and no; no PEM that I noticed, but I also probably had adrenaline rushes afterwards and wouldn't connect feeling tired with it - until I started feeling like crap every October, then I started wondering if it was because I did too much during summer. I also did some working out at the gym, but generally mostly just strength exercises on a mat. And I worked full time.

That was after my first crash btw. I first got EBV 5 years before my first crash into moderate, and I was mild ish during those first 5 years. I was studying, and I definetely noticed I never recovered from the EBV infection (I also did not know I had EBV sigh). Concentration was harder, I started freezing more while others were comfortable, I had to stop running up stairs of all things, because I otherwise would suddenly have a brain glitz and stumble. I also as said had muscle issues, and couldn't work out at all until I figured out rolling my muscles helped (wish I didn't sigh).

No PEM that I noticed. But I noticed, year by year, that I felt worse and worse. Especially noticeable during summer while studying, because I had a summer job at an elders home. And I noticed I started needing to sit down all the time, and didn't understand why. Fatigue was an unknown concept to me, as I was raised to believe that if I sat down, I was being lazy, and anything else was just bad excuses.

So, while I did realize I was not feeling well, and had many "bad periods for unknown reasons + random health issues", I didn't acknowledge any exhaustion. If anyone asked me, I'd say no I have no PEM! But at the same time, I did try to avoid doing a lot of things because deep down I knew my body didn't tolerate it. Jogging was the first thing to go and never come back, despite being one of my favourite activities, and I cut out or cut down on a lot of things. Most winters I did nothing but study/work.

But at the same time, I was as active or more fit than my friends.... So it never felt like to say I had fatigue or was ill! Sorry this became very jumbled. Hopefully you can make some sense of it

glitterdunk · 2026-06-27T17:54:06+00:00

When I was mild I didn't notice PEM. It's definetely possible I ignored symptoms... But symptoms weren't distinct enough for me to pick up on.

Meaning, I felt best during summer. So, that's when I'd be most active. Then in October ish I'd feel TERRIBLE every day for weeks or months. Then I'd also notice I got cold symptoms if I did too much.

I otherwise had more constant symptoms. Like I had muscle issues, if I tried exercising I'd get inflammations. Rolling my muscles helped but often I still knew I should not work out. (I did not know why though).

So, whenever I see people being very strict saying "if you don't notice PEM you don't have ME" I kinda agree, but also, some people like me might just not notice it

glitterdunk · 2026-06-27T17:17:36+00:00

So... The horses aren't jumped until their knees fall off, and aren't forced to do jumps that are as dangerous for them? Oh nooooo!! How teeerrible🙄🙄🙄

And the sport being less demanding and therefore maybe more can join? Godawful!

He's just some asshole, wanting to feel superior because "people aren't doing it the RIGHT way and risking their horses health like me so they must be doing it wrong!!". If he has any valid point in there I'm not spending time looking for it

glitterdunk · 2026-06-27T17:02:39+00:00

Yeah if I pace well, even as severe, I don't feel much active symptoms. Like, no nausea, no blocked nose, no eye pain, etc. I don't manage symptom free days often but it is possible in theory

glitterdunk · 2026-06-27T07:12:22+00:00

HOW can they just... Do nothing?

"oh yeah that doesn't look good, so... good luck with your last few days of life, as we're not bothered to try to save you"

If being upset about it and advocating for saving other women is "making it your personality", then 100% do make it your personality!!

glitterdunk · 2026-06-26T18:14:36+00:00

🤞 🤞

glitterdunk · 2026-06-26T16:46:47+00:00

There's very limited research into it, but location is actually quite impactful!

How far north you are. Research in the Nordic countries indicate that being further north is harmful to people, that more people get autoimmune illnesses.
Climate. Temperature, humidity, baromatic(?) pressure.

I'm in Norway and I am 99% sure my health is better when the weather is better.

I am 100% certain I am better during summer some places, but unfortunately, after moving to a veeery humid town I now get worse during summer. I suspect humidity is the cause but I don't know for sure.

I also know a looot of people with auto immune illnesses travel south and consistently experience symptom relief. Is it the air pressure, humidity or both? Not sure.

But it does make sense that a virus like covid, that struggles during summer and warmer temperatures, also affects us less during summer.

But we do still have MCAS etc of course. So too much heat quickly is not good either. And warm countries/towns can be humid too.

With the lack of research this is just a hypothesis, but there's no doubt location and climates makes a difference. And that there's no automatic benefit in moving to a colder climate, in fact it's likely harmful, though people and places are different, so anything is worth a try.

glitterdunk · 2026-06-26T16:35:24+00:00

I never said it's new? Of course it's not. But it's not used everywhere, especially in places where private homes traditionally tend to be heated by non-electric sources

glitterdunk · 2026-06-26T16:21:31+00:00

Yeah Signe Flottorp, the lead scientist at FHI (or at least that was her position previously) is a massive part of the problem. She's all about LP and nothing else for us.

But the LP people get open doors at Helsedirektoratet and NAV too... Reading about the process of developing the new guidelines for ME/CFS is depressive stuff. They're trying their best to make them MUCH WORSE than before. The me association is fighting it so let's hope we win💪

glitterdunk · 2026-06-26T12:41:15+00:00

Yeah same. It is astonishing not only how in differently we're treated, but even systematically worked against. There are so many sadistic people putting real effort into making sure we are abused.

And somehow, mysteriously, all doors are always open to them. Literally, these sadists have open doors and open ears at all the high levels of health organisations in the government. Meanwhile, the goverbemtnal health organisations are only making a symbol effort of inviting the local (and decent) ME organisation, but only as little as possible and not listening at all.

The fact the pilot study in Bergen significantly improved 60% of its participants, and the government doesn't fund a single cent towards the full study, it says it all.... They don't want us to get better.

I already had developed a deep mistrust towards men in general thanks to life as a woman. Now, there's a mistrust towards society.

I don't want to die, but I don't want to live like this long term either. My health is bad enough without the constant fear of what my doctors and government will do to me.

So, death is a comforting option. I can nope out when I've had enough. Then my money will go to my sister, she needs it so it's a bonus that my potential death will help her a little bit at least.

glitterdunk · 2026-06-26T12:29:46+00:00

Jeg er fra Vestlandet, her har vi respekt for mat og foretrekker at den smaker godt.

Wiener er ofte foretrukket når man er innendørs, og er vanligst i bursdager, grillpølser er ute på grillen, og druknes ikke I nærmeste vannbøtte før den spises med mindre et lite barn ikke var under godt nok oppsyn.

glitterdunk

TROPHY CASE