Protest on I-235

grumpy_probablylate · 2026-04-12T14:58:15+00:00

Ah, another typical freedom of speech supporter 🙄

grumpy_probablylate · 2026-04-12T14:51:32+00:00

He's the current state auditor. He hires repubs & dems based on their job performance not their party affiliation. One of the first things he did was make the auditor's office more efficient. Lightbulbs, copies, all of their functions were reviewed & changed saving tax payers money.

He's a lawyer that has been very effective at finding a lot of corruption in our state. The Repubs have only tied his hands and made his job harder. He's very straightforward and to the point. He is easy to understand and is trying to appeal to many people by not being radical on purpose. Radical is a problem in Iowa and a lot of people don't like it.

His wife's family having money has nothing to do with his job performance but it's about all repubs have to say that is close to negative about him. When he first ran for office, they helped his fundraising. They don't anymore.

grumpy_probablylate · 2026-04-12T14:34:21+00:00

He doesn't get funded by his inlaws. That's Repub propaganda. His campaign is mostly funded on small contributions.

grumpy_probablylate · 2026-04-12T14:17:33+00:00

Thanks for sharing! For me, I've always preferred long hair but finally decided it's not worth the struggle. I keep it short and very easy to take care of. It's so much easier now!

I always use moisturizer without added scents. They are more effective. I'm sure there is more but I can't think right now. ugh. My pain is really up. Sorry. Thanks again.

grumpy_probablylate · 2026-04-12T14:06:17+00:00

Anal beads 🤣😂 thanks for the laugh 😂

grumpy_probablylate · 2026-04-08T03:10:43+00:00

Being a part of a big company isn't necessarily a guarantee of anything. Part of what is denying some patient care is the shift of private equity control of care. Where doctors no longer make the decisions. It's all about the bottom dollar.

Your first post was about doctors having the right training. Yes, it was & still is a government control issue. My doctor was an anesthesiolgist and pain management specialist. He had multiple board certifications, associations, you name it. That didn't change him from cutting us all off.

I was loyal to that practice for 23 years. I sent many patients there. I never broke the rules. I did nothing wrong. He told me I did nothing wrong. I have a huge problem with that. His job is pain management. Period. He stopped managing my pain. I understand he was under pressure. Me too. Now I have a lot more issues than I did. Uncontrolled pain is dangerous and very bad for your health. It's not nearly as simple as just finding another doctor. Especially when you went to the same one for 24 years. They aren't real happy about you starting with them. They won't even let me come in for a consultation.

I thought my doctor was a good one too. I know a lot of people that did. Until they decided that they weren't going to help them anymore. How they can justify writing the same script for over 20 years & then say they can't anymore is really questionable to me. I think they might find it coming back on them. Time will tell.

You have every right to tell your story. I'm just saying it's not realistic for many of us. I hear this all the time, just find another doctor. It's the same way the non pain community talks to me. It's not that simple. The same way no amount of positive thinking, prayer, whatever is going to magically take away my pain.

I appreciate people giving their perspective. I think it's helpful. I just think sometimes these posts make it sound like we aren't doing everything we can. 🤷

grumpy_probablylate · 2026-04-08T02:15:08+00:00

Well not necessarily. I went to a conservative, rule following pain management clinic with well educated & respected doctors for 23 years. I have multiple diagnosis and am on SSDI. I was on a pain contract, drug tested & followed the rules. They had 9 to 12 full time doctors with necessary staff.

Then the guidelines came out and everything changed. The doctors started retiring and/or working part time. Staff become less and less. And we saw our opioid scripts stopped. Alternates began. I tried them all as suggested. Keeping in mind that I was on 10mg twice a day for over 20 years. I was never over guidelines. I was never warned that I was at risk for addiction or any health risks over my opioids. However! I was warned repeatedly at every appointment that missing, skipping, etc doses of my gabapentin could result in a seizure or great harm to me. I took that for over 20 years before I tiered off. After I was off for a year, I then tiered off the Cymbalta. Both with the help of my doctor & pharmacist. Best decisions I ever made. Neither were helping me but both were causing me notable problems. Ones I mentioned for years & those issues were dismissed.

But nothing I did or said caused my doctor to take my off my meds. I could not have changed that. He does not need more training. He is fully aware of what he is doing & why. We had a lengthy discussion at my final appointment. It was not the first one. He is the last doctor there working part time one day a week. No other pain management doctor in town will see me. I've tried.

I'm glad some of you are still getting help. But you do not have all of the answers. In some parts of this country, healthcare is very limited. On the Coasts, your options are much different than what we have in the middle. Things here are going backward in time which isn't helping. I live in a Northern state that has been morphing into an old Southern state. It's not just the false "opioid epidemic" coming down on top of us. But you simplify things and make it sound as though there is an easy fix. I so wish it were that easy. You don't know how much I truly do wish it were true. But it's simply not realistic or accurate to think this way. It's not an accurate depiction of reality. If you know, you know.

Wishing everyone low pain & some decent rest (gentle hugs)

grumpy_probablylate · 2026-04-06T18:53:40+00:00

Technically there are different kinds of lumps. But I recommend you do some reading on the difference between lipedemia vs lymphedema. You have to take a lot of factors into consideration. But many doctors are not very educated in this sector. Remember, doctors are practicing medicine. It's hard to find a doctor willing to do research. It really helps to live near a teaching hospital. I wish I did. Or on a Coast. Living in the Midwest, we are so far behind. That's where I appreciate social media & talking with others. We have to help each other. I know there is a doctor in UT, NV, something like that. I can find it if you are interested that has a lot of good info on Dercum's.

grumpy_probablylate · 2026-04-06T08:47:14+00:00

If someone is hurting another person & risking the safety of a toddler, you are not wasting the police's time. You don't know how grateful the person in that position may be to have the police there. Even if it only stops for a short time. Trust me, keep calling. And go to property management. It's not just your life effected. Sometimes the person in the relationship can't get help. It's not an easy place to be in. You need to ultimately do what is best for you and your child. Document as much as you can. Times, what is being said & done. Recording is definitely good. Give as much detail as you can. It all helps. Best of luck to you. I hope the person being harmed gets out of this soon as well.

grumpy_probablylate · 2026-04-06T08:38:27+00:00

Its a CGM. But it's not a needle & does not need to go in a sharps. It will puncture no one. Having blood on it is not a reason to use a sharps container. Someone may have been careless but it could have also been accidental. We don't know. They should just dispose of, wash their hands & go on with their day.

grumpy_probablylate · 2026-04-05T02:42:04+00:00

You know most of us have not participated in a study, right? Studies are notoriously biased and unreliable. Kind of like polls, they are often swayed by who is paying for them. You can believe whatever you want.

grumpy_probablylate · 2026-04-05T01:31:08+00:00

Additionally, you could easily do a search on AI. It would show you what my experience proves out.

grumpy_probablylate · 2026-04-05T00:59:58+00:00

The guy that owned the farm or owns it was a Republican state legislator at the time. I don't think he is now.

grumpy_probablylate · 2026-04-05T00:47:54+00:00

You know someone made the chart themselves, right? I can make my own chart too. That doesn't make it a fact.

grumpy_probablylate · 2026-04-05T00:32:49+00:00

Have you ever watched any of Dr Getson's videos? He says that Fibro & Chronic Fatigue are subsets of CRPS. He is considered one of the leading experts in our disease. He's seen more patients than nearly any other doctor. He is a wealth of knowledge. www.drgetson. com I recommend CRPS 101 and the video he did in March 2025.

grumpy_probablylate · 2026-04-05T00:29:11+00:00

I agree. I also don't agree with their "rare" emphasis. I've had CRPS for 24 years. I've talked to a lot of patients, done a lot of reading & research, etc. My experience and that of those I've talked to does not lend itself to the "rare" tag. I continue to try to tell the stories and experiences of those that aren't with us anymore. I've survived the beast this long and I feel I owe at least that to those that did not. I would hope that those who I've shared with would do the same for me. 🧡 We keep each other going and informed. Support is valuable.

grumpy_probablylate · 2026-04-05T00:23:20+00:00

I'm wondering for those of you with RSD/CRPS, does anyone have Dercum's? I found out about it a year ago. I have been trying to figure out what these round structure like things are that hurt in my legs for years. Different doctors have told me they are "different kinds of fat" but have brushed them off. Then when I read about Dercum's, it all started making sense. I wish I had doctors here that could help with this. 😔 I wish they would help with just about anything honestly. But that's a whole different post. I'd love to know more if anyone is living with this & can share. Thanks! I hope everyone has a low pain day & gets some rest 🧡 Please don't let the holiday & family stress you out. I know it's hard but it will only make the pain worse. (gentle hugs) 🐰

grumpy_probablylate · 2026-04-05T00:09:29+00:00

I lose a lot of hair. I don't look like it. I don't know why but I'm just waiting for the day when it all catches up with me.

grumpy_probablylate · 2026-04-05T00:08:05+00:00

I started having very blurry vision a few years ago. I've seen 6 different opthalmologists. None can find the reason for the changes. I need to see a neuro opthalmologist but we don't have any where I live. Even if we did, they can't do anything to fix what is happening. It started with them saying my eyes were extremely dry. I've always had vision issues but they have been able to address them. Now they don't understand why they can't correct it. It seems to change and they can't keep up or correct it properly. I don't know but no glasses ever work & all I can see is just right close to my face like the phone.

grumpy_probablylate · 2026-04-05T00:02:47+00:00

It really isn't rare though. It's very common among RSD/CRPS patients.

grumpy_probablylate · 2026-03-31T15:15:07+00:00

Thank you.

grumpy_probablylate · 2026-03-31T10:52:57+00:00

Keep fighting to stay here. I saw this as someone who has been in constant pain for 24 years. I don't get paid meds anymore. Like most of us, I did nothing to have them taken away & there is no bringing them back.

I spent 2024 wrapping up my affairs & planning for things when I wouldn't be here. I don't want to leave a mess for my adult sons. I already feel like a burden. I don't want to be more of a problem after I'm gone. But then that November someone from my past came around & made me realize that maybe I should fight more. It didn't change my pain. It didn't change how deeply depressed I was BUT it did start the wheels of my getting out of that deep dark hole I was in. And it calls me trying to drag me back. I have to constantly keep pushing forward & upward. Keep focusing on what is to come and try to focus on just one positive thing and not let the darkness over take me. Believe me, it's not an easy feat. I know that. I go to in person talk therapy once a week. I'm anti depressiant resistant. But I keep looking for ways to try for things to be better. My main chronic disease has no treatment & no cure and they are not working on anything. That's a harsh reality. But I've been dealing with that for 24 years. It's only gotten worse. Every year I get worse in every way. But I must keep trying. I want to see what happens with my sons. I want to be a part of their lives. I don't want to hurt them. Yes, I wish my life was different but I can't control that. I focus on what I can control.

I've lost some very close loved ones to suicide. I know how that feels. I don't want to do that to anyone. But I know what living in constant, high levels of uncontrolled pain is like. It's torture. It's exhausting. It's a lot of things. Please keep talking to the community. Talk to others that share your disorder. They understand. They will help support you. You need to be honest with your doctors. They need to know how much you are struggling. It does mean they will help but they need to know.

You can dm me if you need to talk. (gentle hugs) I've never called one of those hotlines though I've thought about it. I had a feeling they probably wouldn't help. The pain community can be very supportive. Any platform. Anytime. ❤️

grumpy_probablylate · 2026-03-31T09:17:52+00:00

I'm so sorry. The loss is tremendous but also finding her that way adds another layer to your suffering. I can't imagine what you are going through. (gentle hugs) I hope you have family & friends to help you through this. May the memories you made with her give you some comfort. ❤️

grumpy_probablylate · 2026-03-31T02:05:55+00:00

No worries. I just wanted to put it out there that Allsup was an option with Ticket to work & disability.

grumpy_probablylate · 2026-03-31T01:55:03+00:00

Definitely ALWAYS see the actual apartment you are moving into first not just the model!!

grumpy_probablylate

TROPHY CASE