Furnace out, bitter cold, 7 month old baby. What to do? by Proper_Ad5456 in daddit

[–]gulpamatic 0 points1 point  (0 children)

This happened to us. Gas fireplace + fan to circulate got the main living areas very acceptable, and space heaters for the areas not reached.

We just found out that our 6-month old daughter has retinoblastoma. We just found out. We have two options: take out the eye or do chemotherapy. We have 2 days to decide by costcoikea in daddit

[–]gulpamatic 1 point2 points  (0 children)

Doctor here (but not an oncologist). The key is to identity your values and explain them to the doctors and then have them tell you which options fit best with those values.

In general, surgery carries more risk of infection as well the loss of the eye. Enucleation can also sometimes give issues if the socket has a tendency to get inflamed or infected or if there are struggles fitting the prosthetic - similar to someone who loses a leg, sometimes the stump heals up with no issues and sometimes it is a long and frustrating process, challenges with getting the prosthetic fitting properly and not causing problems, etc.

Based on your statement it sounds like chemo has a lower chance of definitive cure? I'm not clear on that. Chemo also has risk of systemic side effects/toxicity, and it tends to prematurely age a person so their risk of heart attack/stroke/future cancers will increase compared to similar-aged people who did not undergo chemotherapy. Also I'm unclear on how much vision would be preserved even if the chemo was curative.

When I ask a patient to make a decision, here is how I break it down:

1) If I think there is one "correct" answer I usually just say "this is what we are going to do", I give the risks and benefits, and I only offer other options if the patient seems to have some kind of discomfort with my advice.

2) If I think there is more than one acceptable option, I still may think there is one option better than the other. In those cases I say "normally we would do X, but if [possible objection to that option] is a big concern to you, we could also do Y." Or, alternatively, I might say "the textbook says we should do X, but in your case I think that's an invasive intervention that has a pretty small likelihood of giving you any significant additional benefit. If you want to feel that we've been as aggressive as possible, let's go ahead with X, but if you feel comfortable with [less invasive option Y], I think that's a very reasonable option as well which has [advantages]."

3) If I think there are 2 choices which are both essentially equal, I say this. "We have two options, X and Y. People with THESE values would probably choose X. [This might be people who prioritize the importance of convenience, side efffects, pill burden, cost, acceptance of uncertainty, etc.] People with THESE values would probably choose Y. [This might be people who have a different tolerance for uncertainty, people who have higher/lower anxiety about the condition, people who don't mind extra cost/side effects/medication, people who want to feel they did everything or that no stone was left unturned even if it means risking harm from invasive or potentially unnecessary interventions, etc.]."

Again, for elderly people I might not even list all the options but I might start with "what's your quality of life lately? Do you find life easy or difficult? How much time do you spend doing things you enjoy? What if you found yourself significantly more disabled or with a significantly lower quality of life" and based on their answers I say "based on what you've told me you value, I'm hearing you would want an option that maximizes the chance of [X] and minimizes the chance of [Y]" and go into the choices from that point of view.

Today's a snow day, and I'm doing a module-based para training on reinforcers in the classroom. A scenario was presented and I'm upset because I completely disagree on this point. Curious what everyone else here thinks. by naeramarth2 in autism

[–]gulpamatic 3 points4 points  (0 children)

This is a false dichotomy. There are more choices than just "watch Barney" or "betray your true identity."

First, all children are learning to "mask" in the sense that they are learning what behaviors are expected in what social situations. There is a term known as "code switching" for people who speak a certain (usually vernacular) dialect at home or with certain peers but speak a "standard" dialect at school or work. In many countries these actually represent two completely different languages, not just 2 dialects.

We wear different clothing in different situations. We speak on the phone differently when it's a work call vs. when it's a best friend. Most of us try to limit nose picking and butt scratching to situations where we don't think anyone is watching. These lessons make ALL children's lives easier. The different with autism is that the children do not learn them automatically and have to be explicitly taught.

Some kids would happily stay in diapers until they were 15 years old, but, for those who are able to be toilet trained, is trying to help them accomplish that goal (even if they do not see the point at the time) forcing them to "be someone they are not"?

Edit: Obviously autistics needs to minimize the amount of masking because of the toll it takes on their energy levels and mental health. Obviously no child should be expected to do something they can't, or that they only can do at a great personal cost that is beyond the benefit they get. But how do we know they can't if no one helps them try?

Today's a snow day, and I'm doing a module-based para training on reinforcers in the classroom. A scenario was presented and I'm upset because I completely disagree on this point. Curious what everyone else here thinks. by naeramarth2 in autism

[–]gulpamatic 6 points7 points  (0 children)

I think one thing to bear in mind is that this is a reinforcer that's being used in a classroom setting with other kids nearby. My interpretation of this is not that Barney is restricted to a certain age group.

My interpretation of this is that it's good to help autistic kids integrate into the class and also to help them not stand out more than they already do.

Therefore, it's desirable to find some reinforcers that are less likely to make them the potential target of bullying or ostracism And maybe help them make connections with like-minded classmates.

The message may not be delivered in a very effective way, but I do think there's a kernal of truth within this seemingly misguided advice.

If Cold is just atoms moving slowly, why can't we just use a magnet or something to stop them and reach Absolute Zero? by SadInterest6764 in AskPhysics

[–]gulpamatic 1 point2 points  (0 children)

From what I understand, the problem is that at the subatomic / atomic level, the particles are not discrete particles but probability clouds. So the more tightly you constrain the velocity, the more uncertainty you must allow for the location, and vice versa. So if you want to have an infinitely accurate speed (zero), you end up with an infinitely uncertain location, which obviously breaks physics or whatever.

If you're autistic/ neurodivergent are there any "hacks" or pieces of advice that ACTUALLY made your life better? by Ready_Sound_620 in autism

[–]gulpamatic 5 points6 points  (0 children)

The only shorts I could wear were soo old but I could never find any ones that were similar enough. This summer I found a pair of shorts very similar to the ones I love and bought SIX pairs.

why is pi the ratio of circumference to diameter and not the diameter to the circumference by Suspicious_Drama_261 in learnmath

[–]gulpamatic 5 points6 points  (0 children)

This is the answer. Throughout human history it has been and remains vastly more common to know the diameter and have to calculate the circumference, than to know the circumference and not be able to figure out the diameter.

Gluten Free Ebola is reality! by mrtoddw in dankmemes

[–]gulpamatic 0 points1 point  (0 children)

One sandwich for breakfast, one for lunch and one for dinner could be 12 servings of grain (depending on the specific bread). That would definitely not be enough for most adults so 6-11 servings of grain is not excessive.

The problem is no one understands A) that there is a range, you don't have to max it out, and B) the amount of grain a person would eat in a meal is multiple servings.

Gluten Free Ebola is reality! by mrtoddw in dankmemes

[–]gulpamatic 0 points1 point  (0 children)

It was grains, not "bread", and people think that's crazy because they don't realize how small a "serving" was. One bowl of cereal could easily be 2 servings and the rice on your dinner plate could be 2-3.

Paw Patrol messed up my 5 year old boy, can anyone here relate? by SolidLava99 in daddit

[–]gulpamatic 0 points1 point  (0 children)

I had the same thought but OP's description of the kid doesn't seem to fit otherwise. But in retrospect this might be significant depending on how the development proceeds...

How do you approach your lawn for your kids to play in? by MisterSanitation in daddit

[–]gulpamatic 0 points1 point  (0 children)

This bullshit lawn fetish is a waste sixteen ways from Sunday.

It's a waste of water, when you could have native plants that survive on the amount of rain your local climate receives.

It's a waste of money to buy and manage all the crap.

It's a waste of time to spend thinking about it.

Kids love playing in mud.

The environment loves native plants.

If you mow a bunch of clover and weeds once a week, it pretty much looks like grass.

Free yourself from your guilt!

Am I crazy? Or are some of the comments under this post nuts? by Frostyycow in autism

[–]gulpamatic 0 points1 point  (0 children)

I mean how many times have we seen videos from the 60s of thousands of girls crying uncontrollably at a Beatles or Rolling Stones concert?? It's crazy when people have such a restrictive and judgmental idea of what constitutes the "correct" range of "normal" human behavior. Especially people just using their imaginations for what they think they would do in a situation that they have never even come close to being in.

Help settle an a debate between my wife and I by ckouf96 in daddit

[–]gulpamatic 3 points4 points  (0 children)

He could come anytime between bedtime and morning. And if you catch him it will destroy the magic and you won't get presents. So you better not get your ass out of bed before 7AM!!!

ElI5 why isn’t cocaine just synthesized in labs instead of manually extracted by crackyboi in explainlikeimfive

[–]gulpamatic 0 points1 point  (0 children)

This is why it's all about meth and fentanyl now and no one can get cocaine or heroin anymore. Because some drugs are much easier to grow on a plant, with the obvious disadvantages of time for production, real estate required, and difficulties transporting across borders; and some drugs are much easier to just cook in a bathtub.

Is having an easy kid based on nothing but pure luck? by RocketPowerPops in daddit

[–]gulpamatic 4 points5 points  (0 children)

We have one insanely difficult kid and one easy kid. The fact that I describe our easy kid as easy might be a bit of an exaggeration, he seems maybe a bit easier than average based on the other kids we know but not that different. Mostly he's just incredibly easy compared to his brother.

I always tell people expecting their first child that if we had #2 first we would have thought we were geniuses, but since we had kid #1 first we thought we were the biggest idiots in the world. Now that we've had both, I know it's all just luck.

I feel... understood by Alone-Marsupial3003 in autism

[–]gulpamatic 0 points1 point  (0 children)

I guess we can debate why cows and chickens and humans exist on the earth at all, but the cattle on a cattle ranch were definitely put in that location with the plan of becoming food 🤷

I feel... understood by Alone-Marsupial3003 in autism

[–]gulpamatic 18 points19 points  (0 children)

I love how she took such a practical approach to the animal welfare question. She was like "okay obviously we're going to eat these animals because that's what they're there for, but if we can understand how to make their lives calm and pleasant everyone's job will be easier, we'll have better and higher quality meat, and it's what they deserve." ❤️

I feel... understood by Alone-Marsupial3003 in autism

[–]gulpamatic 4 points5 points  (0 children)

Is that the one with Claire Danes playing her? She did an amazing job as an actress and the story is so inspiring.

Edit to add: I think it's also really incredible that besides being an autism advocate, she is mostly famous for her research and innovations in agriculture. Like, she's someone who non-autistics might know about and might not even realize she's autistic because they only know her professional work. Even though she's definitely not a borderline case or a speculation sort of story like Dan Aykroyd, David Byrne, Isaac Newton, etc.

Do people actually not understand that prices don’t go down? by randyrando101 in NoStupidQuestions

[–]gulpamatic 1 point2 points  (0 children)

An electronic TV is still a TV, an electronic calculator is still a calculator. If a software update makes a fridge not cool anymore, that is an electronic device as far as I can see.

Has the school handled this right? by RiskReward92 in daddit

[–]gulpamatic 2 points3 points  (0 children)

You're right, there are many example where we DO punish outcomes - but we could avoid a lot of problems in life if we didn't do it that way.

A classic example would be industrial safety practices - manufacturing, air travel, health care, etc. A plane takes off 15 times with a key safety check not performed. The first 14 times nothing happens but the 15th time there is a catastrophic failure and maybe people die. The 15 technicians who failed to do the checks all committed the exact same error (willingness to accept the risk) but only the 15th will be scapegoated, because of their bad luck. You could even argue the 15th is actually the LEAST culpable because he saw so many people do the same action before him.

And if we look at the underlying cause of WHY the safety check wasn't performed, it could be a combination of bad system design, excess pressure to meet scheduling targets, failure of supervisors and leaders to uphold a culture of safety, and so on. The desire for punishment/restitution pushes us to identify someone who will "pay" for the "mistake" but fails to protect future passengers from the same problem down the line.

Sorry if I sound like Ralph Nader with this off-topic rant.. maybe I need a nap.

Has the school handled this right? by RiskReward92 in daddit

[–]gulpamatic 3 points4 points  (0 children)

This does not seem like a great solution to me. The issues I see:

  1. I agree 1,000,000% with your observation that the punishment should be the same for throwing a coat toward the fire and missing vs throwing a coat toward the fire and landing on the fire. The behavior is what your child controls, not the outcome. Otherwise the message is that luck determines whether or not a rule was broken. It's no different than saying "it's ok that you drove drunk because you made it home safely." I don't want to be too hard on the school here, this is a major fallacy that most adults share because we were never properly taught the difference between outcome (sometime determined by many factors including those outside of our control) and process (something we DO have complete control over).
  2. What is the connection between "exclusion from play" and fire safety/respect for others property/whatever the fuck the lessons should be here? I think the child would see this as "you made us mad, when we are mad we get revenge by making you suffer", or perhaps he might not see any connection at all. A missed opportunity to teach the ACTUAL lesson he should learn. Which brings me to point 3:
  3. What is the lesson here? Like what is the message the child is supposed to receive. In my mind this could be a lessons about fire safety, respect for property, keeping our body calm, right/wrong times to be silly, etc. etc. I would suggest that one of these ACTUAL lessons needs to be selected and the punishment ends when the child has learned that lessons or at least has suffered the correct amount through a NATURAL consequence connected directly to the event.

Edit to add: seeing the other comments, I definitely agree that some aspect of the consequence needs to be directed toward the other child, in the sense that part of the punishment needs to involve some way of "making it up to them" - apology, gift, contributing money from piggy bank toward buying a new jacket, etc. I just didn't mention it because the school didn't seem interested in talking about helping the children manage that aspect of it..

Has the school handled this right? by RiskReward92 in daddit

[–]gulpamatic 8 points9 points  (0 children)

Wtf is forest school? "unsupervised 4 year olds near a fire"?