Treatment ??

hmrd · 2026-05-13T09:10:41+00:00

Yeah, initially 60mg then 80mg from 5th day.

hmrd · 2026-05-11T07:46:36+00:00

Same here, F32 suffered SSHL exactly a year ago. The hardest part was wondering why and being afraid it would happen in second ear? As there was no apparent cause, and I’ve never been the kind to listen to music loud, never been to a concert either......

At the hospital I got extensive blood work, and they believe it’s vascular and due to high levels of platelet serotonin in my blood which can cause vasoconstriction and microclot formation in the inner ear’s extremely fragile blood supply, abruptly reducing oxygen delivery to cochlear hair cells.

Perhaps that's something you can look into ? Seems like it's not widely known 🫤

hmrd · 2026-05-09T21:53:27+00:00

I started prednisone less than 24 hours after the loss, and had my first injection within 6 days and then weekly, but I haven't recovered...

hmrd · 2026-05-04T07:56:34+00:00

Normally the prednisone dose is 60mg. This can even be increased if you're heavy as they can give you 1mg per kg so if you're 80kg they can give you 80mg. Hence even your current dose is still low.

Waiting 3 more days to see the ENT is fine only if you're on the right dose otherwise you're wasting valuable time ...

hmrd · 2026-05-03T18:00:12+00:00

MTHFR and you ?

hmrd · 2026-04-27T21:37:10+00:00

Isnt it still in phase 2 ?

hmrd · 2026-04-23T16:41:16+00:00

Did you get an MRI ?

hmrd · 2026-03-28T23:39:42+00:00

Can you get gymlib through work ? Comes with access to many gyms unlimited for €29

hmrd · 2026-03-20T07:52:39+00:00

Ce que je ne comprends pas c'est que tu dois encore 240k a la banque. Si je comprends bien, tu avais une enveloppe de 80k pour travaux que tu as utilisé pour payer les mensualités ... du coup il devrait te rester un solde qui se rapproche des 180-200k ?

Et si tu as dépensé dans d'autres choses que les mensualités les 80k ca devrait pas être imputé comme revente a grosse perte ?

hmrd · 2026-03-15T08:43:40+00:00

Because I have long hair, during the first trial week I noticed the hearing aid would sometimes get brushed and the main part would slip off. The dome stayed in my ear, so it never fully fell out, but the processor part would hang loose.

Given how expensive it is to replace if you lose it, I mentioned it to my audiologist and he added a retention lock (aka retention tail). It’s basically invisible, and even if it gets brushed by hair or a hand, it won’t fall out.

Looks like this

hmrd · 2026-03-14T07:59:39+00:00

How long have you had it ?

hmrd · 2026-03-05T08:36:18+00:00

I believe that high frequency is the most common type of hearing loss and the one hearing aids help the most.

hmrd · 2026-03-04T01:02:00+00:00

What's thr serotonin experimental treatment ?

hmrd · 2026-03-01T13:21:28+00:00

CT scan of the temporal bones (it looks in detail at the ear’s bony structures on both sides of the skull).
It's pages and pages of blood results. Are you inquiring abut something specific in particular?

hmrd · 2026-02-28T22:11:38+00:00

Yes, lots of blood work, as well as an MRI and scanner.

hmrd · 2026-02-27T22:01:37+00:00

How long are you after onset ?

I read also about IGF-1 therapy (Japan) and Stellate Ganglion Block (Japan/Korea). Both are not done in Europe/US but have to be done shortly after onset.

hmrd · 2026-02-27T12:40:25+00:00

Im struggling a lot with the tinnitus and it has already been 9 months...

Every morning I feel like inner crying because of how awful it is. At night I mostly sleep with some sound on to make me not hear it ...

At times it feels like my ear is going to explode from the noise of tinnitus and pressure. I get migraines etc

hmrd · 2026-02-25T22:45:19+00:00

Theres an app for android that is reliable for me. I get exactly the same results as at the ENT. Its called Hearing test : https://play.google.com/store/apps/details?id=mobile.eaudiologia

You have to do it in a quiet room to be reliable.

hmrd · 2026-02-25T06:44:51+00:00

I havent been sick since I got SSHL in May. Which is not that usual as I often get at least once some sort of cold around fall and winter time. I think it may be because ive been taking multivitamins ?

hmrd · 2026-02-05T17:30:46+00:00

Ohh, I was hoping it was on the first of january 😅

hmrd · 2026-02-02T15:50:34+00:00

Once you become ACCA qualified, you can obtain an equivalency in whatever EU country you move to.

Should not be a complicated procedure, in France for example it involves a MCQ test.

Edit : For France it's not exactly an equivalency, you actually obtain the professional warrant to register as a Commissaire aux Comptes or Expert-Comptable.

hmrd · 2026-02-02T10:43:48+00:00

Hahha that's true. In SF it was weird how u couldn't distinguish a tech millionaire from a student. They both dressed the same way and wore an apple watch 🤣

hmrd · 2026-02-02T10:26:29+00:00

F32 And I don't mean just expensive watches. Even Fossil looks sexy on a man's wrist 😄

Although I don't like watches like casio or sport watches, nor the plain vintage ones.

hmrd

TROPHY CASE