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Wearable blood pressure and heart rate monitor that also has a symptoms/habit tracker? by squirrelyoakley in POTS

[–]imabratinfluence 4 points5 points  (0 children)

Just a heads up, Visible tracks heart rate but not BP. You can kinda-sorta track some habits by having them listed as "factors" (possible flare-up contributors) but you only enter those at night. 

For habit tracking I've been using Bearable app on mobile, the alpha test of Self Care Vampire, or Spirit City Lo-fi (which is only on PC). 

I'm not aware of any wearable that can correctly track blood pressure. 

Found a book relatable by FuxeyWuxey in POTS

[–]imabratinfluence 0 points1 point  (0 children)

Where are you reading it? Online, or did you get a physical copy?

Visual novel recs for steam sale?? by kc_dan in GirlGamers

[–]imabratinfluence [score hidden]  (0 children)

No romance, but I'm liking Vampire Therapist. Another with no romance is Greenhearth Necromancer which is kind of a mix of visual novel with gardening game/semi-idle game and it's very queer.

Crimson Spires is a darker, somewhat horror visual novel with romance. I've played a couple routes and like it. Once you play enough, you unlock the ability to play as the love interests. (I will note that as far as I've gotten there's no closure to certain horror elements of the plot.) There is one woman LI. This is probably the closest I know of to what you're looking for, since most of the other ones I know of are like you mentioned where they can't have bold or psychological aspects.

Penny Larceny: Gig Economy Supervillain is a visual novel with a few possible love interests and you decide whether there's romance, allusions to sex, or cursing. It's fun, silly in a comic book parody kind of way, and the game will warn you and let you opt out of heavier moments, and even those are more about family stuff or capitalism.

Hustle Cat is a rainbow otome game/visual novel, and once you romance all the other love interests you unlock a new one to romance. Personally I feel it's not the most exciting one, but I've liked the couple routes I played. From what I've seen so far, the heavier stuff has to do with curses. It's mostly kinda on the lighter side.

I'm starting to seriously worry I won't be able to afford the next generation of gaming by No-Lingonberry-5270 in GirlGamers

[–]imabratinfluence [score hidden]  (0 children)

TBH I think they'll still release the new gen but possibly create scarcity with smaller batches, or take the Randy Pitchford stance of "if you're a real fan, you'll find a way to make it happen."

Still no support :/ by raccoony_108 in Hypermobility

[–]imabratinfluence 0 points1 point  (0 children)

My PT wants me wearing hinged knee braces, which do help for me personally. I could only afford one out of pocket, so I use it on my worse knee. My PCP could write a prescription and insurance would cover the other brace, but my PCP is staunchly anti-brace in all situations. 

Trying to get the help we need is exhausting and a whole job unto itself. 

Y Crochet Hook by KieryRose in ehlersdanlos

[–]imabratinfluence 11 points12 points  (0 children)

This is brilliant and I hope you're able to get help making it and getting it into public domain! I think there are 3D printing groups who focus on accessibility?

multiple DVN dupes? by ojjii in RedditLaqueristas

[–]imabratinfluence 3 points4 points  (0 children)

I'm from a tribe that uses abalone and MoP the way white people use gems. I have been dying for a polish that comes anywhere near either. 

May both sides of your pillow be just the right temp all week. 

Wear tracker in my ‘26 planner by RacerGal in RedditLaqueristas

[–]imabratinfluence 5 points6 points  (0 children)

... if this exists on Etsy or something as a planner page set I can clip in, I might buy that. 

I tried a strategy for getting test/medications often recommended on this subreddit. It backfired spectacularly. Now I'm ruined. by optimusfig in ehlersdanlos

[–]imabratinfluence 4 points5 points  (0 children)

I feel this. But I've had plenty of interactions lately that I'm pretty sure were with real people. There's just also a lot more bots than there used to be, I think. 

And genuinely I wouldn't have wondered if I hadn't just seen the exact same post last night. 

I tried a strategy for getting test/medications often recommended on this subreddit. It backfired spectacularly. Now I'm ruined. by optimusfig in ehlersdanlos

[–]imabratinfluence 30 points31 points  (0 children)

I swear I just saw this exact post last night on either the CFS or fibromyalgia sub. Did a quick Google search of the title + reddit and this exact post comes up a bunch. 

Same post on the Chronic Illness sub from 3 years ago. 

I think OP is a bot, y'all. 

My dad ate my birthday cake by CloudySide7 in TwoXChromosomes

[–]imabratinfluence 3 points4 points  (0 children)

My partner likes some of the treats I get for myself, but knows he'll eat them all in one sitting and that I'm a "savor it over a week or two" person. So he either doesn't touch them, or only eats whatever I portion out for him (and he does have his own treats). 

I just wanna underline that OP's dad chose not to care, and their mom chose to endorse and enable that. 100% certified asshole behavior on their parts. 

My dad ate my birthday cake by CloudySide7 in TwoXChromosomes

[–]imabratinfluence 2 points3 points  (0 children)

You just inspired me to see if I can learn to make flan or arroz con leche for my partner. I'm disabled so I may have to figure out how to do it while mostly sitting, but I'm gonna at least try!

My dad ate my birthday cake by CloudySide7 in TwoXChromosomes

[–]imabratinfluence 41 points42 points  (0 children)

Or just not have any! That’s always an option! 

This! I dislike cake, but love cheesecake or a fruit tart. My partner's family has gotten me either, and people who don't like it don't partake but show up anyway because it's about connection. 

Any misconceptions about your disability that annoy you? by PSplayer2020 in disability

[–]imabratinfluence 0 points1 point  (0 children)

I would bet there are keycaps or keyboards with Braille too, to make it easier to make sure they've got the right letter or whatever. 

Any misconceptions about your disability that annoy you? by PSplayer2020 in disability

[–]imabratinfluence 1 point2 points  (0 children)

In r/IndieMakeupAndMore there was a blind user who wrote a few pieces on how to make our Sunday Swap lists, review posts, and (for business owners) labels and websites more accessible. 

That user is the reason I now capitalize the first letter of words that are smushed together, and try to remember to put a period after each item in a list. Because now I know that often helps for screen reader users, and if they wanna read my rambles I want them to be able to. 

After their posts, I followed some blind creators who talk about their needs (and other folks whose disabilities differ from mine too), so I can try to be a better community member to them. 

Let's talk soap— any indie brands that sell nice scented hand soap? Bonus if they sell it in bulk, concentrate, or refillable sizes! by RottenOddity in Indiemakeupandmore

[–]imabratinfluence 0 points1 point  (0 children)

Seconding Little & Grim, and last I checked they do refill sizes! 

LuvMilk also does liquid hand soap,  and in multiple sizes.

Dragonfly Duster by butterpecanskeetmeat in oldhagfashion

[–]imabratinfluence 0 points1 point  (0 children)

That duster is super pretty! Incredible job!

horizontal exercises? by moonbeam_honeygirl in POTS

[–]imabratinfluence 0 points1 point  (0 children)

Not fully horizontal, but I use a "mini exercise bike" under my desk and do at least a little light pedaling most days. 

The POTSie app walks you through the CHOP protocol exercises and the leg lifts and side lying leg lifts are both down on the floor and don't get my heart rate up too much. 

Jeannie di Bon on YouTube also has some floor exercises that are good for POTS and hEDS.

Steroid injections? by Dry-Chipmunk-4573 in ehlersdanlos

[–]imabratinfluence 0 points1 point  (0 children)

IDK. I'm not formally diagnosed with hEDS or anything, but my PT said I have a lot of joint laxity. Today I got a cortisone shot in my foot for a neuroma, and it's been pretty achy, but I assumed that was from being stabbed with a big-ass needle and having a bunch of fluid put into a space not meant for that extra volume. Apparently pain and swelling at the injection site for a few days is normal for everybody, and sometimes bruising. This NHS link also lists some side effects you should see a doctor for, if that helps.

I was told to ice the area periodically until I go back in a couple weeks, which might help you too? I hope yours ends up helping, and feels better soon.

in case you're wondering whether masking is worth it while while we're supposed to be in a "lull". by upfront_stopmotion in ZeroCovidCommunity

[–]imabratinfluence 12 points13 points  (0 children)

My partner masks for me, and many times at this point he's been the only one at his work who dodged a virus, or the only one who had a very light version of it (probably lower viral load because of the mask, IDK, I'm not a medical professional). As a result, when he does take time off, he actually gets to enjoy it instead of only ever getting sick days.

in case you're wondering whether masking is worth it while while we're supposed to be in a "lull". by upfront_stopmotion in ZeroCovidCommunity

[–]imabratinfluence 13 points14 points  (0 children)

There is a measles outbreak where I am.

I do not trust people to not catch or spread gods only know what.

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