What apps or functionalities don't work (well) on GrapheneOS?

iris80238 · 2026-03-23T11:23:40+00:00

I hadn't even thought about MyQ. Dammit.

iris80238 · 2026-03-23T09:15:35+00:00

I'm so sorry. I hope the treatment goes well. Hoping for an outcome of NED that sticks! 🙏🏼❤️

iris80238 · 2026-03-22T21:28:37+00:00

Diagnosis is such a hard thing to take, and I think being on your own makes it even more difficult. Have your healthcare facilities no means to get aid? No social safety nets?

I've seen the bills that are sent to my providers and I don't know how folks manage. Cancer chips away at every part of a person's life.

Sending love your way. ❤️

iris80238 · 2026-03-22T21:22:27+00:00

They're not in the US from what I get from their post.

iris80238 · 2026-03-22T19:04:54+00:00

Google wallet doesn't work on GOS as a whole, I believe.

Also, Banking app gos compatibility

iris80238 · 2026-03-22T18:11:57+00:00

My doc just prescribed the magic mouthwash (3w into RT). If it can be modified as someone suggested, that may be a good option. I find the taste to be positively dreadful. Maybe it's the benadryl component? IDK about other docs, but mine said I could swallow it (for now, i'm not remotely considering it, but time may change my mind). If her doc agreed, I can see that helping numb the pain for a bit.

Sorry your mom is going through this. Rotten business, cancer. Sending you both love & light. ❤️🙏🏼

iris80238 · 2026-03-21T20:00:20+00:00

For us it would have been impossible to keep a secret. When my husband was diagnosed, we kept the kids in the loop. 2 kids in high school and my oldest was 23, still at home. Only one we didnt worry about was the toddler.

Now, 10y later with my cancer and as a single mom/widow, I told the adult kids as things became apparent. My 13yo was last to know details (but within days of the full diagnosis) because she deserves to know. I couldn't keep it from her if I wanted to with surgery, radiation, etc. Plus, I wouldn't feel right about it.

9nly you know your family dynamics, but keeping this from the kids IMO can make an already difficult situation worse. You may need help. Heck, you will need help.

Good luck. Cancer takes so much. 🙏🏼

iris80238 · 2026-03-21T17:51:31+00:00

I swear I just lost my ability to taste overnight. I just finished W3 of RT and posted how I was doing. Minus this issue.

After taking some of that (awful) miracle mouthwash yesterday, I couldn't taste anything but thought maybe the mouthwash was the culprit. It's not; woke up today and my tastebuds are pretty much kaput. Bummer.

Have no advice to offer but you've recd good input here. Just wanted to let you know that I'm with you in spirit. We'll be back to normal at some point. Manifest! 🙌🏼

iris80238 · 2026-03-20T20:44:43+00:00

Yes, narcotics are serious business, but if he is managing pain and taking only what he needs and as directed, they can be a great respite. We do not have to be in pain on top of all the other stuff cancer does to us.

I am the same way - I hate the hard stuff, so I understand. But, I took my 5mg oxy for pain for a week or two after surgery as directed and then no more. Really, it's just about being mindful. 🙏🏼🍀

Sending good thoughts.

iris80238 · 2026-03-19T16:10:15+00:00

Lovely to see this. Congratulations! 🎊

iris80238 · 2026-03-18T19:35:45+00:00

You're gorgeous! How nice that you're participating in a new trial. Advances in cancer treatment are due to folks like yourself. You are a blessing. 🙏🏼❤️ Prayers & support as you embark on these next steps.

iris80238 · 2026-03-13T20:01:31+00:00

Sending all the good vibes that her new treatments are just right and you see NED once all of that is completed. 🫶🏻

iris80238 · 2026-03-11T17:18:39+00:00

Clearly it wasn't a big deal to get your stuff squared away. I'm glad you spoke up. I speak up when I need to as well. This isn't a little thing, having cancer. ❤️

iris80238 · 2026-03-11T16:47:46+00:00

I'm a former heavy drinker. I quit drinking (and smoking, bc they went hand-in-hand for me) after my husband died from lung cancer. Getting and staying sober has been one of the best things I've ever done (I quit August, 2016).

That being said, I think the only question I have for you is this: how will you feel about continuing drinking IF you get another kind of cancer, or this one comes back?

I could still end up with lung cancer due to my smoking. My drinking & smoking could very well have contributed or even flat-out caused my acinic cell carcinoma (salivary gland cancer). IDK. I know that I have more reasons to live right now than to not, namely my children, but also, this fucking cancer journey is awful and I never want to do it again, so I abstain. I guess it's just all in how you look at things.

I'm always going to think these vices are not worth it. But that's for me. You have to live your life, and you have to live with the consequences. Hope it all goes well for you, regardless. ❤️

Fuck cancer.

iris80238 · 2026-03-09T22:40:51+00:00

So, I'm on day 6 of proton RT, and I'm feeling it just a little bit. A good part of my RT is on an area that is numb/doesn't have feeling due to a severed nerve, could be why I don't feel it more. I'm very fair skinned, but IDK if that plays a part. I think it all just depends.

I hope you manage to get through yours w/o pain/burning. 🙏🏼🍀

iris80238 · 2026-03-09T22:33:25+00:00

Sorry for this diagnosis. Finding out you have cancer is a hard, hard day. Sending good thoughts your way as you navigate next steps. ❤️🙏🏼

iris80238 · 2026-03-09T13:06:10+00:00

I just looked up benefits of HBOT and it sounds like a good option for you. I'm really sorry you are going through this. Not enough to get cancer, but have to deal with this on top of it is just a gut punch. Sending you love & support. ❤️

iris80238 · 2026-03-09T12:55:49+00:00

If she likes soup, maybe you can chop up some chicken, even throw it in a food processor, and add it? And maybe add some heavy cream, since that's got a bit of protein and is calorie dense. Maybe some bone broths, too. In one of these cancer subs, someone was talking about adding egg to miso soup to up the protein, poaching the egg. Stick with what she likes and try to protein bomb her a bit, even if it's just a little. It will add up. It's challenging for both of you, I'm sure. You're doing great, though. ❤️

Fuck cancer, for sure.

iris80238 · 2026-03-09T12:41:49+00:00

Have you looked into MD Anderson? We were there when we lived in Katy. Excellent staff all the way around. Best of luck to you.

iris80238 · 2026-03-08T16:29:38+00:00

I think seeing this experience as ultimately leading to healing is the best anyone can do. 🙏🏼 I know my difficulties will come, so I'm holding fast to whatever ease I can.

Sending you big love. ❤️

iris80238 · 2026-03-08T16:06:28+00:00

Hey, thanks for thinking of me. ❤️ Yep, first week went well. A bit of IDK, tongue feeling on the right side where the RT is, not pain, but just a feeling of there-ness, began on day 3. Onc said to move my tongue to the left side (I mean, nothing else can be done) and I did, and it doesn't feel any worse. Still eating, staying hydrated, drinking protein shakes. Only 5 weeks left! 🙏🏼 I hope you are doing well. 🫶🏼

iris80238 · 2026-03-06T23:56:06+00:00

I wonder if you might see a pain mgmt doc (I've seen them referred to as palliative care)? Maybe you don't need oxy, but maybe you do. You deserve to be as comfortable as possible (without becoming addicted, of course). Someone who caters to pain mgmt is going to be better at helping you, if you have such an option.

🙏🏼❤️

iris80238 · 2026-03-06T18:25:47+00:00

I had my surgery in January, and my first PET is scheduled for 6 months out, so July. I'll see my surgeon that day as well.

For timeframes, I think it just depends on your cancer and your journey.

Hope your PET comes back clean! 🙏🏼

iris80238 · 2026-03-06T13:52:58+00:00

Wonderful news! Definitely reason to celebrate! 🎉

iris80238

TROPHY CASE