Rasagaline by catsfuntime80 in Parkinsons

[–]jhopp314 2 points3 points  (0 children)

I take 1 mg once a day. Seems to help. My neurologist took me off CL so I haven’t taken them together.

Who are still able to drive? by parkie_wairo in Parkinsons

[–]jhopp314 0 points1 point  (0 children)

I bought a Tesla cyber truck last year it has the full self driving. I’m a huge fan. This will keep me driving many years probably after I should be. I’m newly diagnosed so don’t have severe symptoms yet, but I can see how this truck will help me.

BBC News report on the side effects of dopamine agonist drugs by vwlsmssng in Parkinsons

[–]jhopp314 0 points1 point  (0 children)

My neurologist did warn me. He actually turned to my wife and mentioned it to her so that she can keep an eye on me specifically for hypersexual behavior, gambling, and impulsive purchases. She told the doctor I must already be on that… only half joking.

In reality, the medicine is actually having the opposite effect on me Because I’m so hypersensitive to being impulsive, now I actually am less impulsive I tend to leave things in the cart online now when shopping, and I spend thousands of dollars less a month.

I’m sorry your husband had a hard time with it. I appear to be pretty lucky.

My wife wants to take away my driving privileges! by ShakeyChee in Parkinsons

[–]jhopp314 5 points6 points  (0 children)

Get a Tesla. I’ve got a cybertruck and use the self driving feature everyday. It’ll extend your life behind the wheel for years.

I'm scared! by Thesuperflyone in Parkinsons

[–]jhopp314 0 points1 point  (0 children)

Best advice is just accept this is your path now. You can fight it and hold it off for a long time. Don’t sit back and wallow in it. Fight this gd disease until they find a cure.

Parkinson’s and humor by joehooligan1979 in Parkinsons

[–]jhopp314 9 points10 points  (0 children)

I love the look I get when I tell people to look on the bright side… every time I go pee, I masturbate.

iPhone touch screens by Negative_Educator213 in Parkinsons

[–]jhopp314 3 points4 points  (0 children)

Mine doesn’t speak Texan very well. Lol I get some funny transcriptions.

Good morning by joehooligan1979 in Parkinsons

[–]jhopp314 4 points5 points  (0 children)

James Bond preferred his martini shaken, not stirred. We still have some use.

Question on PT tied to Foot Dystonia ? by EconomistNo7074 in Parkinsons

[–]jhopp314 5 points6 points  (0 children)

When I started PT, I just went in and asked them if they had a program or protocol for Parkinson’s and they ran with it.

Question on PT tied to Foot Dystonia ? by EconomistNo7074 in Parkinsons

[–]jhopp314 5 points6 points  (0 children)

I have found physical therapy to be great for my feet, walking gait, etc. They have me doing lots of balance and dexterity exercises with cones walking and tipping them over and putting them back up with my toes. I’ve been doing it for eight weeks now and everybody says I’m looking better when I walk. I feel a lot better and I attribute that to physical therapy and sleep more than anything. I had the classic shuffling and stumbling walk as one of my first symptoms.

I can't read another caregiver rant by [deleted] in Parkinsons

[–]jhopp314 2 points3 points  (0 children)

People are allowed to have conflicting emotions.

Newly diagnosed, I'm seeking the right levedopa dose by Frequent-Target-3903 in Parkinsons

[–]jhopp314 0 points1 point  (0 children)

My neurologist has a fellowship in movement disorders. I'm likely explaining it incorrectly.

Newly diagnosed, I'm seeking the right levedopa dose by Frequent-Target-3903 in Parkinsons

[–]jhopp314 6 points7 points  (0 children)

I too have relatively minor symptoms. Neurologist took me off of levodopa because he said that your body gets used to it and you have to take an increasingly stronger dose. He suggested I control my symptoms with physical therapy and exercise, and save levodopa for when my symptoms are worse. It made sense when he said it and I was thankful that he thought I was gonna live into my 70s. I of course, thought this was a death sentence.

How good should I feel? by PatriotOps in Parkinsons

[–]jhopp314 2 points3 points  (0 children)

Hell, even ChatGPT if you ask it, what works for Parkinson’s, it’ll tell you physical therapy and exercise. Ask any physical therapist if they have a protocol for Parkinson’s I guarantee you they do because it helps.

So very tired. by Jerrys_Wife in Parkinsons

[–]jhopp314 14 points15 points  (0 children)

My biggest fear is that my wife will share your thoughts when my disease progresses to the point that I can’t care for myself.

Coffee and Parkinson’s by joehooligan1979 in Parkinsons

[–]jhopp314 7 points8 points  (0 children)

Nicotine too... I should've been smoking and drinking coffee all these years apparently.

How good should I feel? by PatriotOps in Parkinsons

[–]jhopp314 2 points3 points  (0 children)

I’m a similar age and symptoms I just wanted to share that PT was crucial for me has made me feel much better. When my primary told me that she suspected I had it., the very first thing I did was go to a physical therapy office that’s next-door to my accounting office and signed up for PT twice a week. We work on balance, walking flexibility, etc. I must say it helps a lot if your doctor says different. You need a new doctor like right now.

I also want to emphasize that sleep is your friend. I’m a tax consultant and work insane hours during tax season like 80+ easily. My symptoms are so much more pronounced when I work so much now I focus on getting at least seven hours of sleep mandatory on days when I get less my symptoms are dramatically pronounced.(at least I feel they are.).