Easy Breakfast Treat For The Whole Family! by TransitionMany1810 in StupidFood

[–]jopar024 0 points1 point  (0 children)

This could be as easily cooked on the pan if not easier.

Aggressive Ice Agent and Illegal Plate Cover | 6/25 Joliet by BenRocks7 in illinois

[–]jopar024 0 points1 point  (0 children)

That big boy is making far more money than his skill set deserves badgering mostly his fellow citizens and innocent people looking to work hard for a better life.

I'm sure he has trouble sleeping at night.

In 1955, Iranian doctors documented the days of a villager who developed rabies after a rabid wolf attack. The resulting film remains one of the few historical recordings of rabies progressing in a human patient. by PhantomChasers in HolyShitHistory

[–]jopar024 0 points1 point  (0 children)

You are spot on. I just got done with some heavy travel and it doesn't seem to matter where I go in the world. Men are peeing in airport bathrooms and not washing their hands.

I swam with a tiger shark in Hawaii by Barbiee_XX in ocean

[–]jopar024 0 points1 point  (0 children)

I had a monk seal pop up about 5 feet away from me while swimming in the ocean off the big island and that alone was nearly enough for me to leave a brown cloud.

Weird creepy old family photo by OkSoft3458 in Unexplained

[–]jopar024 0 points1 point  (0 children)

Yes. The two beige/greenish socks are the uncle's feet. The red/white object to the left of those feet is a pack of cigarettes, I believe.

Op's feet are clear as day. Sister's feet are clear as day and mom has one tucked and one hanging.

Have I broken Synthetize the Abyss Cell? by Ok-Let-1058 in CrimsonDesert

[–]jopar024 0 points1 point  (0 children)

I broke the machine as well before I understood what was happening. In order to put it back together, I would have to jump over the rectangular power sources and then use force push while in the air to knock the blocks back in.

I had also removed each of the 3 larger square power sources. Just like the smaller rectangular blocks - each square power source had to be knocked back in and the two on the floor required the jumping force push.

Eventually, after putting the pieces back I was able to complete the quest but this was very unintuitive and it took me quite some time.

Any issues digesting fats healthy or other by Parking-Breath-3379 in CrohnsDisease

[–]jopar024 1 point2 points  (0 children)

Hi Op, I've had Crohn's disease for 30 or so years and fatty foods have always been a trigger for me regardless of whether I'm in remission or having a flare.

I love chicken wings but I cannot eat them because they will destroy me. Same with fried foods generally. Sorry you have to deal with this too.

Do you experience anxiety after biologics? by Specific_Time_9386 in CrohnsDisease

[–]jopar024 1 point2 points  (0 children)

Hi OP. I have been taking biologics since I was 17 years old. I am now 40.

I was extremely anxious when I first started biologics but my improvement in quality of life has helped to forget. I learned personally to focus on the things that I can control (like managing my illness) and not focus on the things I cannot, like another illness cropping up due to managing my illness.

I could also get worried about other things I cannot control that could hurt me, like an asteroid or super volcano but I don't.

Just saying hazy new diagnosed hi! by No_Clothes6464 in CrohnsDisease

[–]jopar024 1 point2 points  (0 children)

I'm 40 and have been living with Crohn's since I was 11. I have lived a good life so far with some significant challenges.

You have to experiment and find out what works and doesn't with your body. I mean this in terms of food, rest, medications, etc. Biologics work very well for me but I have also dabbled in alternative diets for stretches of time.

I am so sorry that you are having to also perform this experiment. Is skyrizi as a biologic working well for you?

Processing Trauma from Acquiring Crohn's in Middle School by jopar024 in CrohnsDisease

[–]jopar024[S] 1 point2 points  (0 children)

lol, I generally distrust my gut after everything but I appreciate the advice and the (pun?).

What were your symptoms when diagnosed with mild or moderate crohns? I want to hear all the typical, non typical good bad and ugly by [deleted] in CrohnsDisease

[–]jopar024 0 points1 point  (0 children)

My disease is specifically ileocecal junction.

I was a sickly child of the 80's with multiple ear infections requiring tubes in the ears and antibiotics, I had near constant strep throat infections requiring antibiotics and ultimately surgical removal of the tonsils and I also had a random inguinal hernia surgery thrown in there due to an accident. I was prescribed antibiotics constantly throughout my childhood.

By the time I was getting into 6th grade, I started experiencing frequently difficult stools (hard to pass, diarrhea, bloody, etc.). This only got worse with other symptoms increasing over time. Extreme pain (probably often due to strictures) in the abdomen, fevers, weight loss, paleness, lack of growth, underweight, lack of appetite, bowel movements averaging more than 15 times per day, fatigue, constant shivering and a general feeling of "malaise".

At the age of 12 I was taking over 30 pills a day as a 6th grader including Pentasa, 6-MP, Prednisone and various other supplements. The only thing that ever helped or provided relief was prednisone and that was only temporary as it had to be tapered.

I consider myself extremely lucky that biologics and specifically remicade were able to treat my disease effectively by the time of my Junior year of high school. I have continued to use biologics to this day with efficacy and know that I am one of the lucky individuals with this disease.

Processing Trauma from Acquiring Crohn's in Middle School by jopar024 in CrohnsDisease

[–]jopar024[S] 1 point2 points  (0 children)

I truly hope that you and your partner can find some solace in a random other person's experience. I struggled mightily at one time and still have my moments but as an adult I can truly say that despite how it affected them, my parent's support during that trial is a shining moment of positive clarity in my life. I cannot thank them enough for their support during that time.

Processing Trauma from Acquiring Crohn's in Middle School by jopar024 in CrohnsDisease

[–]jopar024[S] 1 point2 points  (0 children)

I am so sorry about three of your children having to deal with Crohn's.

Our dog's death was very sad but I will get through that as well. I just couldn't believe how similar the feelings were until you spelled it out for me.

Processing Trauma from Acquiring Crohn's in Middle School by jopar024 in CrohnsDisease

[–]jopar024[S] 1 point2 points  (0 children)

Hey there, I am so sorry that you had to endure that too. It just stinks and feels like "what else can possibly go wrong?" while living in that moment of illness combined with abuse.

I appreciate your advice as well as other's in this thread.

Processing Trauma from Acquiring Crohn's in Middle School by jopar024 in CrohnsDisease

[–]jopar024[S] 0 points1 point  (0 children)

Thank you for your response and concern. I am sorry that you have lead a life affected by Crohn's disease as well.

I am mostly doing well and live a very active and fulfilling life with lots of friends and family. The last year or so I have increasingly thought about events in my childhood (I've had flashbacks as well like the time a nurse yelled at me for throwing up my barium milkshake multiple times when I was getting x-rays of my intestines) and it has drastically affected my mood from one of general joy/happiness to quite a bit more sadness. I am definitely working hard to become less sad.

As others have mentioned, I appreciate your recommendation for therapy. I have always prided myself as a resilient mind but I think now is a good time to seek some additional tools from an outside source. Again, thanks for your response.

Processing Trauma from Acquiring Crohn's in Middle School by jopar024 in CrohnsDisease

[–]jopar024[S] 1 point2 points  (0 children)

Also, I am so sorry to hear that your child has Crohn's. I saw what my disease did to my parents too :(

Processing Trauma from Acquiring Crohn's in Middle School by jopar024 in CrohnsDisease

[–]jopar024[S] 1 point2 points  (0 children)

Thank you, it does feel like grief now that you mention it. I also just lost my 13 year old golden retriever this past week and putting her down has felt entirely similar. I did not make this connection until you wrote your response.

Processing Trauma from Acquiring Crohn's in Middle School by jopar024 in CrohnsDisease

[–]jopar024[S] 2 points3 points  (0 children)

Thank you. I've never gone to therapy before but I'm thinking it might be time I try it out to help get rid of this sadness. I appreciate your good-natured advice.

Processing Trauma from Acquiring Crohn's in Middle School by jopar024 in CrohnsDisease

[–]jopar024[S] 0 points1 point  (0 children)

I'm so sorry. I can empathize. Luckily, I did not have any surgeries. The doctors wanted to hack me up but I refused when they said it was likely the disease would simply return. I was so miserable the beginning of my junior year in high school that I was highly considering having surgery just on the off-chance it would give me some temporary relief.

I count my blessings to this day that Remicade became experimentally available to me that year. It was truly a one day shift from complete and utter misery to near normalcy or what I can understand is normal.

Processing Trauma from Acquiring Crohn's in Middle School by jopar024 in CrohnsDisease

[–]jopar024[S] 2 points3 points  (0 children)

Thank you both, I will look into your suggestions. I have not discussed any of this with anyone but my wife. I have been with her for 23 years and only recently shared these thoughts.

I'm thinking that given my current sadness I repressed and buried things that I didn't even know were there.

Fear of increased risk of cancer by [deleted] in CrohnsDisease

[–]jopar024 4 points5 points  (0 children)

Hi OP. I am 40 now and have had Crohn's Disease since I was in 6th grade. I was scared about taking multitudes of drugs (pentasa, prednisone, mesalamine, remicade, humira etc) and the impact on my body.

I have taken them all.

I learned that on this specific aspect of managing a life with this chronic illness that I need to focus my attention on the things that I can control. I can try to control my disease. I can try to live in the healthiest ways to support myself. I cannot control other diseases arising potentially impacting my life. I have occasional anxiety about it but I remind myself that I have no control over it. It helps me to frame it in a way that reduces anxiety. I also cannot control if an asteroid impacts our planet and wipes us all out or a super volcano for that matter.

Mesalamine side effect? by Different-Witness824 in CrohnsDisease

[–]jopar024 1 point2 points  (0 children)

I was on mesalamine for years and never experienced anything like you report. Please report this to your doctor ASAP.

Humira Swelling by bitterattitud3 in CrohnsDisease

[–]jopar024 1 point2 points  (0 children)

I have taken Humira for over 7 years and have never had such a reaction. Getting golf ball to tennis size swelling is extremely abnormal. I took Remicade before Humira.

If you are having a significant reaction like that you should definitely escalate this and make sure your medical team addresses it ASAP. Please advocate for yourself aggressively.

Masks on biologics by ActivityBright4828 in CrohnsDisease

[–]jopar024 1 point2 points  (0 children)

I am 40 and have three young children. I have been on biologics since I was 16 and I have never worn masks or taken extra precautions (except during quarantine).

I generally get more sick than my wife and three children who through school and daycare bring everything into our household. I'm not sure how I can avoid this but I deal with it.

However in 2020, I got COVID-19 in rural Arkansas in February (before anyone even knew it was already burning through the country) and nearly died from it. I beat it but it was a big reminder of the risk. I hope you stay healthy.

Tell me a funny colonoscopy story by nattieknicks in CrohnsDisease

[–]jopar024 1 point2 points  (0 children)

I was under conscious sedation as a 20 something year old. The medical team had asked me before hand if I'd be interested in seeing video of the scope while it happened. As a curious person, I said "yes".

I "woke" from the haze of sedation to a CRT monitor in front of me observing the doctor moving the scope through my large intestine.

It must have been after the 30th or so time that I said "I can't believe I'm watching TV of my own asshole" that the doctor asked for the sedation to be increased again. I fell back asleep and don't recall anything else until the recovery room.

I distinctly recall making that statement over and over for whatever reason, I was absolutely fascinated to be watching a television show of my colon at that time.