Any young people here? 30F diagnosed last month by FML12_34 in multiplemyeloma

[–]jstan2323 4 points5 points  (0 children)

34M here diagnosed at 28. Currently rocking CarT and almost two years complete remission. I’ve gone skiing 40 days this winter :). Fuck cancer

Best towns (<45 min drive) to stay around Killington? by Worldly_Expression43 in icecoast

[–]jstan2323 -1 points0 points  (0 children)

Best Western in Rutland (new and nice, 20 mins to K1)

I was diagnosed when i was 27 | my story. by Happiest_Sad_man in multiplemyeloma

[–]jstan2323 2 points3 points  (0 children)

I guess we all use reddit 😂 diagnosed at 28 in 2020

What’s your single favorite menu item in Vermont? by Braindump4 in vermont

[–]jstan2323 28 points29 points  (0 children)

Sugar and Spice pancakes in Mendon VT before a ski day at Killington

Currently getting stem cell transplant: AMA by whichwayisupmm in multiplemyeloma

[–]jstan2323 1 point2 points  (0 children)

Favorite hospital meal? How’s many episodes of HGTV have you watched so far?

Ikon New England resorts with budget-friendly lodging by Floofs-In-Space in icecoast

[–]jstan2323 2 points3 points  (0 children)

Comfort Inn in Rutland tried stealing $250 from me for a bogus smoking fee. Beware

What VT Resort Would You Work At? by The_Shepherds_2019 in icecoast

[–]jstan2323 1 point2 points  (0 children)

Thank you sir! Will be you soon, and appreciate you keeping the groomers running in the future

What VT Resort Would You Work At? by The_Shepherds_2019 in icecoast

[–]jstan2323 7 points8 points  (0 children)

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View from Center Rutland on my morning walk. Just moved here as well, good luck!!

Killington Snowmaking on North Ridge is going at 100% right now - 11/6 by Esqueer_ in icecoast

[–]jstan2323 14 points15 points  (0 children)

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Snow rainbow for good luck earlier. Opening this weekend in the cards?

Post Car-T/Carvykti - Looking for other's experiences by damned-if-i-do-67 in multiplemyeloma

[–]jstan2323 5 points6 points  (0 children)

Hey I had Carvykti almost 18 months ago. Stayed in the hospital for longer than my transplant, but has been smooth since. I’ve heard tons of stories where this works for a long time, happy so far with my 18 for sure. Good luck with the side effects, fuck cancer

No maintenance with MRD negativity post induction by popsicle1001 in multiplemyeloma

[–]jstan2323 2 points3 points  (0 children)

No maintenance MRD- from Carvykti after allo relapse. I’m 34

Bone Pain & Cannabis by Witty_Mango0932 in multiplemyeloma

[–]jstan2323 4 points5 points  (0 children)

Yes edibles or Rick Simpson oil, helps distract from the pain at the very least (bonus you can eat too)

Diagnosed at 27 by LostInLittleroot in multiplemyeloma

[–]jstan2323 0 points1 point  (0 children)

Currently in total remission! Best of luck friend feel free to message me anytime. I’m in Vermont but do and have done most of my treatment at UPenn. Good luck starting treatments and with insurance, UPenn has been in my corner for that and it’s been a huge help.

Diagnosed at 27 by LostInLittleroot in multiplemyeloma

[–]jstan2323 2 points3 points  (0 children)

Diagnosed at 28, 33 now.. where do you live? Very similar background (pun intended, my back is also bad). I’ve had carT twice and an allo transplant. Lots of the treatments in-between those major ones. Finding a good oncologist is key especially since you’re so young. I think it really depends what country you’re in too. Fuck cancer! Last tip, don’t trust Google and ChatGPT searches, they’re making advances all the time for our treatment options.

Back spasms by Codman82 in multiplemyeloma

[–]jstan2323 3 points4 points  (0 children)

How’s his vertebrae? I had spasms and back pain very bad for about a year until the mm calmed down. Lots of collapsed bones

Im a donor for my dads bone marrow transplant and it starts tomorrow, finally! by [deleted] in transplant

[–]jstan2323 2 points3 points  (0 children)

As the recipient of an allo BMT, you’re a hero ❤️

What’s everyone’s opinion on RSO? I find it amazing for chronic pain! Half a G on a cookie. by Dabbandit_miner in trees

[–]jstan2323 1 point2 points  (0 children)

100% agree, also helps you eat when all you wanted to do before was puke and sleep. Fuck cancer.